Patients' Views on the Impact of Stroke on Their Roles and Self: A Thematic Synthesis of Qualitative Studies

Satink, Ton; Cup, Edith; Ilott, Irene; Prins, Judith B.; Swart, Bert J. de; Sanden, Maria W. G. Nijhuis-van der

doi:10.1016/j.apmr.2013.01.011

Cited by 103 publications

(105 citation statements)

References 51 publications

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“…Satink et al, found stroke survivors recall discharge home as an uncertain and ambiguous time lacking in continuity [12], with some reporting they are unsure where to start in terms of recovery.…”

Section: Introductionmentioning

confidence: 99%

One size does not fit all – Stroke survivor’s views on group self-management interventions

Clark

Bennett

Ward

et al. 2016

Disability and Rehabilitation

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Introduction: Stroke is the main cause of complex disability in the UK. Many stroke survivors feel abandoned when rehabilitation ends and 59% are left with long-term unmet needs. There is now emerging interest in whether group self-management programs (SMP) specifically for stroke could help. However, more work is required to understand the acceptability of group SMPs to stroke survivors and the factors of concern that could impact efficacy.Purpose: To explore stroke survivor's views on 1) possible benefits of a group SMP 2) possible challenges of a group SMP and 3) when/where to implement a SMP in an individual's stroke journey.Method: 14 stroke survivors took part in semi-structured interviews, which were analysed using an inductive thematic approach.Results: Three main themes were identified in the data: 1) A space to share support 2) it's not a one size fits all problem 3) how's it all going to happen?Conclusion: A group of stroke survivors can provide valuable insight and ideas about how groups should be constructed. To the best of our knowledge, this is the first patient engagement study that explores group SMPs for stroke. In future work, researchers may find it helpful to consider the findings from this study to inform the design of group SMPs.

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Section: Introductionmentioning

confidence: 99%

One size does not fit all – Stroke survivor’s views on group self-management interventions

Clark

Bennett

Ward

et al. 2016

Disability and Rehabilitation

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“…Consonant with the actions listed, the first A (Ask) consists in understanding beliefs and values, knowledge (14)(15)(16)(17)(18) and the behaviors of the people in sanitary and motivational areas. Within the Community area, one should understand the health condition of the person and what their ability to self-monitoring.…”

Section: Discussionmentioning

confidence: 99%

“…Within the Community area, one should understand the health condition of the person and what their ability to self-monitoring. In the emotional component is important to the assessment of motivation for change and the identification of barriers (14,21,23) to achieve the goals set out in the self-management plan.…”

Section: Discussionmentioning

confidence: 99%

Strategies for self-management support by patients with stroke: integrative review

Morais

Gonzaga

Aquino

et al. 2015

Rev. esc. enferm. USP

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Objective:To analyze strategies for self-management support by patients with stroke in the light of the methodology of the five A's (ask, advice, assess, assist and arrange). Methods: Integrative review conducted at the following databases CINAHL, SCOPUS, PubMed, Cochrane and LILACS. Results: A total of 43 studies published between 2000 and 2013 comprised the study sample. All proposed actions in the five A's methodology and others were included. We highlight the Assist and Arrange, in which we added actions, especially with regard to the use of technological resources and joint monitoring between patients, families and professionals. No study included all five A's, which suggests that the actions of supported self-management are developed in a fragmented way. Conclusion: The use of five A's strategy provides guidelines for better management of patients with stroke with lower cost and higher effectiveness.

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“…Patients perceive nursing staff as only focusing on meeting patients’ basic physical needs, which gives patients a feeling of physiological and emotional isolation during their inpatient rehabilitation (Gallacher et al, 2013; Hole et al, 2014; Satink et al, 2013; Secrest & Thomas, 1999). Patients admitted to inpatient rehabilitation are described as being inactive and alone during the day (Bernhardt, Dewey, Thrift, & Donnan, 2004; West & Bernhardt, 2012) despite evidence that early rehabilitation and intensive training are significant for functional outcome (Askim, Bernhardt, Salvesen, & Indredavik, 2014; Bernhardt, Godecke, Johnson, & Langhorne, 2017).…”

Section: Introductionmentioning

confidence: 99%

Strengthening nursing role and functions in stroke rehabilitation 24/7: A mixed‐methods study assessing the feasibility and acceptability of an educational intervention programme

et al. 2018

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AimTo assess the feasibility of a nursing educational intervention for inpatient stroke rehabilitation and its acceptability from the nursing staff’s perspective.BackgroundThere is currently a lack of interventions that integrate the diversity of nurses’ role and functions in stroke rehabilitation and explore their effect on patient outcomes.DesignWe used a convergent, parallel, mixed‐method design with data interviews and questionnaires.MethodsData collection was undertaken between February ‐ July 2016. Data from questionnaires (N = 31) were analysed using descriptive statistics. The interviews (N = 10) were analysed using deductive content analysis.ResultsThere was a high level of satisfaction with the educational programme in terms of its acceptability and feasibility. The qualitative findings disclosed the nursing staff's experiences with the educational programme. Mixed‐methods analysis showed confirmatory results that were convergent and expanded. Only minor adjustments are required before an effect study can be conducted.

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Patients' Views on the Impact of Stroke on Their Roles and Self: A Thematic Synthesis of Qualitative Studies

Cited by 103 publications

References 51 publications

One size does not fit all – Stroke survivor’s views on group self-management interventions

One size does not fit all – Stroke survivor’s views on group self-management interventions

Strategies for self-management support by patients with stroke: integrative review

Strengthening nursing role and functions in stroke rehabilitation 24/7: A mixed‐methods study assessing the feasibility and acceptability of an educational intervention programme

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