Patients with COPD tell their stories about living with the long-term condition: an innovative and powerful way to impact primary health care professionals’ attitudes and behaviour?

Abstract

Long term conditions such as COPD have long term implications for the daily lives of patients and their carers. Hearing about these consequences in 'the first person' is an influential training tool with a powerful impact on PHCPs' attitudes and behaviour.

’Who Cares?' The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods systematic review

“…In this review, it required transformation of quantitative data into qualitative data. 15 102 We aimed to present a convergence of caregiver experiences by conducting a mixed methods synthesis. However, it demonstrated four differing concepts between the two paradigms.…”

“… 14 COPD has frequent unplanned hospital admissions and a high morbidity rate. 15 Caregivers experience depressed mood, greater anxiety and increased subjective burden when their support needs are not met. 16 17 The unpredictability of HF and COPD leads to caregivers constantly adjusting their role, creating a need to continuously reassess what caregiver needs are.…”

Development and evaluation of a digistory about autistic spectrum disorder – a pilot study

“…The digistory engendered participants' empathy with 'Sam', illustrating an emotional aspect to their learning. While previous studies have reported similar findings, those effects were attributed to realtime patient involvement [15] or to students actively creating a digistory [10,11]. Thus, this pilot is noteworthy in that benefits were gained from students simply viewing the video, and offers potential advantages for cost-effective and scalable delivery.…”

Contextual Factors and Mechanisms that Influence Sustainability: A Realist Evaluation of Two Provincially Scaled Evidence-Based Initiatives

“…Like our ndings, other studies have found that sharing patient success stories enables HCPs to feel energized after watching them, as these stories are "impactful, heartwarming, and understandable" (53). Foster et al, (58) found that listening to patient stories not only had profound emotional effects on HCPs, but motivated practice change as they developed newly formed intentions to improve patient outcomes. Similarly, Haigh and Hardy (59) found that patient stories shown to HCPs led to re ection, empathy and discussions surrounding practice change aimed at service improvement.…”