Patients With Dementia: INVOLVING FAMILIES TO MAXIMIZE NURSING CARE

Anderson, Kathryn H.; Hobson, Allen; Steiner, Patricia; Rodel, Brenda

doi:10.3928/0098-9134-19920701-07

Cited by 72 publications

(87 citation statements)

References 13 publications

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“…Although a few interventions use fairly rigorous evaluation designs when determining efficacy (e.g., Anderson et al, 1992;Maas et al, 2000;Pillemer et al, 2002), these programs have been implemented in singular facilities or regions only. Given the diversity in resident populations that likely exist in different facilities and regions, successful programs must be administered and evaluated at multiple sites.…”

Section: Discussionmentioning

confidence: 99%

“…A smaller-scale study by Anderson, Hobson, Steiner, and Rodel (1992) determined if family involvement in the delivery and planning of care would have positive effects on NH residents with dementia. The study was conducted at a VAMC unit in the Midwestern U.S. and included 12 subjects with dementia and their family members.…”

Section: Interventions Designed To Facilitate Family Involvementmentioning

confidence: 99%

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Family involvement in residential long-term care: A synthesis and critical review

Gaugler

2005

Aging & Mental Health

246

237

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The objective of this review is to critically synthesize the existing literature on family involvement in residential long-term care. Studies that examined family involvement in various long-term care venues were identified through extensive searches of the literature. Future research and practice must consider the complexity of family structure, adopt longitudinal designs, provide direct empirical links between family involvement and resident outcomes, and offer rigorous evaluation of interventions in order to refine the literature. KeywordsFamily Involvement; Nursing Homes; Assisted Living Facilities; Family Care Homes; Family Caregiving; Informal CareOver the past several decades, various research studies have demonstrated that family members remain involved in the lives of their loved ones following placement in residential long-term care facilities (e.g

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Section: Discussionmentioning

confidence: 99%

Section: Interventions Designed To Facilitate Family Involvementmentioning

confidence: 99%

Family involvement in residential long-term care: A synthesis and critical review

Gaugler

2005

Aging & Mental Health

246

237

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“…For NH social workers, making efforts to meet with family early in the institutionalization process (Greene, 1982) and with as many members of a resident's social network as possible may pay off in better support for residents and primary caregivers over time. Existing programs encouraging family participation include incorporating families into care planning (Anderson et al, 1992) and facilitating volunteer opportunities to provide activities, entertainment, and other services (Hansen et al, 1988). Facilities incorporating these types of programs send a clear message to the families of residents that their efforts are welcomed and valued.…”

Section: Discussionmentioning

confidence: 99%

“…Interventions such as education about coping with the dementing process, assisting caregiver's with health-based limitations, identifying and enlisting the assistance of the caregiver's larger social support network, solving transportation issues, and improving relationships with staff are possible ways of ameliorating these barriers. A handful of promising interventions have been proposed or conducted, although most were pilot or demonstration projects and none examined family involvement as an outcome (Anderson, Hobson, Steiner, & Rodel, 1992;Drysdale, Nelson, & Wineman, 1993;Hansen, Patterson, & Wilson, 1988;Kelley, Specht, & Maas, 2000;McCallion et al, 1999;Pillemer, Hegeman, Albright, & Henderson, 1998;Sancier, 1984). Prior to further evaluation and design of interventions, research is needed to identify which, if any, of these more changeable barriers relates to family involvement for today's caregiving families.…”

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confidence: 99%

Identifying Changeable Barriers to Family Involvement in the Nursing Home for Cognitively Impaired Residents

Port

2004

The Gerontologist

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Purpose: Barriers to family involvement in the nursing home with the potential for change through intervention are examined, including transportation, caregiver health, relationships with staff, and resident characteristics. Design and Methods: Data were collected for 93 family caregiver-resident pairs by means of telephone interviews and chart review. Regression modeling was used to identify relationships between involvement (caregiver visit frequency) and the changeable barriers after the known variables of distance, kinship, payment source, length of stay, and cognitive function were taken into account. Results: Lower visit frequency was found for caregivers reporting problems with transportation, poor relationships with staff, and a smaller network of supportive family and friends. Higher caregiver anxiety was related to higher visit frequency. Implications: Several barriers to family involvement are shown to be as or more influential than ones identified in previous research, thus providing empirical support for interventions currently used as well as suggesting new areas for intervention.

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“…Involving family members is considered a necessary part of ensuring client-centered activities, for familes' past knowledge of, and current involvement with, the resident (Anderson, Hobson, Steiner, & Rodel, 1992;Hansen, Patterson, & Wilson, 1988). The specific type of activities that should be encouraged is difficult to document, and certain activities may be more suited to residents of SCUs and others better suited to residents of nonSCUs (Grant & Potthoff, 1997).…”

Section: Review Of the Literaturementioning

confidence: 99%

Dimensions of Care for Dementia Sufferers in Long-Term Care Institutions: Are They Related to Outcomes?

Chappell¹,

Reid²

2000

The Journals of Gerontology Series B: Psychological Sciences an

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Objectives. This study empirically examined whether dimensions of care cluster in special care units (SCUs) compared with non-SCUs. The relationship between SCU status plus separate measures of the dimensions of care and outcomes for dementia sufferers was then investigated.Methods. Data were drawn from the Intermediate Care Facility Project. The sample ( N ϭ 510) included residents with dementia, aged 65 and older, in intermediate care facilities throughout the province of British Columbia, Canada. Longitudinal data included 6 outcomes: cognitive function, behavioral problems of agitation and social skills, physical functioning, and quality of life measured through affect and expressive language skills. Separate multiple linear regression equations were estimated, relating each of these outcomes to 5 dimensions of care: preadmission and admission procedures, staff training and education, nonuse of physical and chemical restraints, flexible care routines and residentrelevant activities, and the environment. Results.The results showed there is virtually no clustering of dimensions along SCU/non-SCU lines. Neither SCU status nor the individual dimensions were highly predictive of outcomes. Residents' affect at t 1 emerged as a characteristic that was significantly correlated with other outcomes.Discussion. This Canadian research can be added to the few but growing number of rigorous studies that suggest SCUs are not homogeneous and do not necessarily provide better care than non-SCUs. Moreover, it raises questions about the benefits of "best practice" dimensions of care, regardless of SCU status.S the demographic shift continues, the proportion of elderly persons and of old elderly persons in society is increasing. The risk of dementia rises rapidly with age among the oldest age groups, and thus the number of individuals with more severe levels of dementia has increased. Long-term care facilities, as a result, now tend to house higher proportions of residents who suffer from advanced dementia than was true in the past. To meet this demand, providers of care have of necessity been experimenting with management in this area. This experimentation has resulted in the identification, rethinking, and implementation of several dimensions of care , such as assessment and care planning, staff training, flexible care routines, individualized care plans, and the environmental setting.It is commonly thought that such dimensions of care, adequately implemented and in the right combination, will result in optimal outcomes for residents suffering from dementia (Holmes et al., 1994). Although these dimensions of care are in theory expected to result in superior outcomesand thus have become the philosophy behind the creation of special care units (SCUs)-their effects on outcomes are not fully known. In this study we empirically examined whether such "best practices" dimensions of care or a subset of them are, in fact, more likely to be implemented within SCUs. We also examined whether specific dimensions or combinations of dimensi...

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Patients With Dementia: INVOLVING FAMILIES TO MAXIMIZE NURSING CARE

Cited by 72 publications

References 13 publications

Family involvement in residential long-term care: A synthesis and critical review

Family involvement in residential long-term care: A synthesis and critical review

Identifying Changeable Barriers to Family Involvement in the Nursing Home for Cognitively Impaired Residents

Dimensions of Care for Dementia Sufferers in Long-Term Care Institutions: Are They Related to Outcomes?

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