Patients with heart failure as co-designers of an educational website: implications for medical education

Kristiansen, Anne Mette; Svanholm, Jette; Schjødt, Inge; Jensen, Karsten Mølgaard; Silén, Charlotte; Karlgren, Klas

doi:10.5116/ijme.5898.309e

Cited by 17 publications

(37 citation statements)

References 33 publications

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“…On the one hand, the participants emphasised accuracy of the information, but on the other hand, they wanted the educational material to be simple and without medical terminology, which is a tension that has been noted in previous studies [ 33 ]. There is not seldom a conflict between, on the one hand, user requirements for a simple, intuitive design making use of everyday language; and on the other hand, requirements for accurate and complete medical information [ 33 ]. This is a contradiction that designers have to deal with; it may be tempting to choose simplicity as this is often asked for, but this may in the long run not meet the needs of the users.…”

Section: Discussionmentioning

confidence: 99%

“…The objective of DBR is cooperation in the design of ‘user-centred’ information systems and services in real settings [ 32 ]. Also, previous studies have shown that involving patients as co-designers may be useful in providing content which is experienced as meaningful in educational websites [ 33 ]. It is not well-known how the two care models, i.e., user-driven model, and self-care model, could be implemented in a portal for diabetes care in a culturally specific context, such as Iran.…”

Section: Contribution Of Technology To Self-managementmentioning

confidence: 99%

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Designing internet-enabled patient education for self-management of T2D diabetes—The case of the Razavi-Khorasan province in Iran

et al. 2021

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Background The number of people with diabetes is estimated to increase to 642 million by 2040, with most having type 2 diabetes. Patients with diabetes require continuous monitoring and possible treatment changes. Patient education is the process of enabling individuals to make informed decisions about their personal health-related behaviours and internet-enabled interventions have the potential to provide support and information to patients with diabetes. Objective The aim of the study was to design a portal prototype based onto two models of care and a contextualised education programme to support the self-management of diabetes patients by involving stakeholders in the Iranian province of Razavi-Khorasan. Methods A Design-Based Research framework was adopted. A qualitative research method was used to analyse interviews with patients and care givers. Mock-ups were developed first and designed with features of user-driven and self-care models of care. The mock-ups also had adaptation features, such as for control of the disease, ability to cure self, and family support. The portal prototype was developed iteratively by building on the mock-ups and evaluated through interviews. The features and elements of the mock-ups and the portal prototype were evaluated in an outpatient diabetes clinic in Mashhad. Results Thirty-three participants were involved in the study. The evaluation of the mock-ups resulted in two themes and seven categories: 1) self-care improvement, including self-care requirements and self-management, and 2) educational usefulness, including medical information, information mode, mobility, interaction, and efficiency. The mock-up evaluation was used as a basis for designing a portal prototype. Next, the portal prototype was evaluated, and three categories emerged from the interview data: 1) user experience, 2) functionality, and 3) interactivity. Participants were not able to prioritise between the two care models. Some functionalities of the portal could benefit from the development within a cultural context to determine differences to the best way to present material. Conclusions A portal prototype has been designed to include two care models to support self-management and functionalities that support aspects of culture-specific diabetes self-care. This study provides guidance on developing an internet-enabled educational portal, aimed at providing support for patients in their social context.

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Section: Discussionmentioning

confidence: 99%

Section: Contribution Of Technology To Self-managementmentioning

confidence: 99%

Designing internet-enabled patient education for self-management of T2D diabetes—The case of the Razavi-Khorasan province in Iran

et al. 2021

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“…Nearly all studies, 65, mentioned a theory of PD. Clemensen et al's description of the PD methodology [28,29] was referenced in 10 of the reviewed studies [30][31][32][33][34][35][36][37][38][39], and that by Sanders and Stappers [13] was referenced in 9 [27,30,31,[40][41][42][43][44][45]. A handbook on PD by Simonsen et al [10] was referenced 7 times [27,31,36,[46][47][48][49].…”

Section: Overall Findingsmentioning

confidence: 99%

Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review

Vandekerckhove¹,

Mul²,

Bramer³

et al. 2020

J Med Internet Res

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Background Generative participatory design (PD) may help in developing electronic health (eHealth) interventions. PD is characterized by the involvement of all stakeholders in creative activities. This is different from the traditional user-centered design, where users are less involved. When looking at PD from a research through design perspective, it is important to summarize the reasons for choosing a certain form of generative PD to further develop its methodology. However, the scientific literature is currently unclear about which forms of PD are used to develop eHealth and which arguments are used to substantiate the decision to use a certain form of generative PD. Objective This study aimed to explore the reporting and substantiation of generative PD methodologies in empirical eHealth studies published in scientific journals to further develop PD methodology in the field of eHealth. Methods A systematic literature review following the Cochrane guidelines was conducted in several databases (EMBASE, MEDLINE Ovid, Web of Science, and CINAHL EBSCOhost). Data were extracted on the recruitment and management of stakeholders, the use of tools, and the use of outcome measures. Results Of the 3131 studies initially identified, 69 were selected for qualitative synthesis. The reporting was very variable, depending to a large extent on whether the study stated that reporting on the PD process was a major aim. The different levels of reporting and substantiation of the choices of a recruitment strategy, stakeholder management, and tools and outcome measures are presented. Only a few authors explicitly used arguments directly related to PD guiding principles such as democratic, mutual learning, tacit and latent knowledge, and collective creativity. Even though PD principles were not always explicitly discussed in the method descriptions of the studies, they were implicitly present, mostly in the descriptions of the use of PD tools. The arguments used to substantiate the choices made in stakeholder management, PD tools, and the type of outcome measures adopted point to the involvement of PD principles. Conclusions Studies that have used a PD research methodology to develop eHealth primarily substantiate the choice of tools made and much less the use of stakeholders and outcome measures.

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“…Design thinking aims to identify and solve problems in a systematic and collaborative way [12,13]. Collaborative design methods are widely used to improve electronic health (eHealth) [14], including the development of eHealth to assist heart patients with self-management [15][16][17][18][19]. However, design thinking research focusing on video communication software with heart patients is lacking.…”

Section: Design Thinkingmentioning

confidence: 99%

Leveraging User Experience to Improve Video Consultations in a Cardiology Practice During the COVID-19 Pandemic: Initial Insights

Vandekerckhove¹,

Vandekerckhove²,

Tavernier³

et al. 2020

J Med Internet Res

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During the coronavirus disease (COVID-19) pandemic, cardiologists have attempted to minimize risks to their patients by using telehealth to provide continuing care. Rapid implementation of video consultations in outpatient clinics for patients with heart disease can be challenging. We employed a design thinking tool called a customer journey to explore challenges and opportunities when using video communication software in the cardiology department of a regional hospital. Interviews were conducted with 5 patients with implanted devices, a nurse, an information technology manager and two cardiologists. Three lessons were identified based on these challenges and opportunities. Attention should be given to the ease of use of the technology, the meeting features, and the establishment of the connection between the cardiologist and the patient. Further, facilitating the role of an assistant (or virtual assistant) with the video consultation software who can manage the telehealth process may improve the success of video consultations. Employing design thinking to implement video consultations in cardiology and to further implement telehealth is crucial to build a resilient health care system that can address urgent needs beyond the COVID-19 pandemic.

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Patients with heart failure as co-designers of an educational website: implications for medical education

Cited by 17 publications

References 33 publications

Designing internet-enabled patient education for self-management of T2D diabetes—The case of the Razavi-Khorasan province in Iran

Designing internet-enabled patient education for self-management of T2D diabetes—The case of the Razavi-Khorasan province in Iran

Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review

Leveraging User Experience to Improve Video Consultations in a Cardiology Practice During the COVID-19 Pandemic: Initial Insights

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