Pediatric Emergency Research Canada (<scp>PERC</scp>): Patient/Family‐informed Research Priorities for Pediatric Emergency Medicine

Bialy, Liza; Plint, Amy C.; Freedman, Stephen B.; Johnson, David W.; Curran, Janet; Stang, Antonia

doi:10.1111/acem.13493

Cited by 24 publications

(27 citation statements)

References 17 publications

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“…We carried out an online survey in a modified three-stage Delphi study (figure 1). 12 Other research networks have conducted similar studies to systematically determine research priorities using consensus methodology 2 3 7 10. Eligible participants were invited from the REPEM network, consisting of 69 members.…”

Section: Methodsmentioning

confidence: 99%

“…Following worldwide initiatives,2 3 6 7 the Research in European Paediatric Emergency Medicine (REPEM) network was founded in 2006 to improve emergency care for children in Europe,4 8 9 consisting of 69 partners from 20 European countries. The UK and Ireland have founded their own research network6 but collaborate with REPEM in some research projects.…”

Section: Introductionmentioning

confidence: 99%

“…Compared with existing (multi)national networks of English-speaking countries, REPEM is faced with unique challenges related to its high diversity in ED populations, cultures and diversity in delivered health and healthcare systems. Similar to other research networks,2 3 7 10 11 we need to establish our research agenda relevant to PEM in Europe to guide the development of future research projects, which should not be exclusively based on members’ interests and prior work in a specific research field.…”

Section: Introductionmentioning

confidence: 99%

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Research priorities for European paediatric emergency medicine

et al. 2019

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ObjectiveResearch in European Paediatric Emergency Medicine (REPEM) network is a collaborative group of 69 paediatric emergency medicine (PEM) physicians from 20 countries in Europe, initiated in 2006. To further improve paediatric emergency care in Europe, the aim of this study was to define research priorities for PEM in Europe to guide the development of future research projects.Design and SettingWe carried out an online survey in a modified three-stage Delphi study. Eligible participants were members of the REPEM network. In stage 1, the REPEM steering committee prepared a list of research topics. In stage 2, REPEM members rated on a 6-point scale research topics and they could add research topics and comment on the list for further refinement. Stage 3 included further prioritisation using the Hanlon Process of Prioritisation (HPP) to give more emphasis to the feasibility of a research topic.ResultsBased on 52 respondents (response rates per stage varying from 41% to 57%), we identified the conditions ‘fever’, ‘sepsis’ and ‘respiratory infections’, and the processes/interventions ‘biomarkers’, ‘risk stratification’ and ‘practice variation’ as common themes of research interest. The HPP identified highest priority for 4 of the 5 highest prioritised items by the Delphi process, incorporating prevalence and severity of each condition and feasibility of undertaking such research.ConclusionsWhile the high diversity in emergency department (ED) populations, cultures, healthcare systems and healthcare delivery in European PEM prompts to focus on practice variation of ED conditions, our defined research priority list will help guide further collaborative research efforts within the REPEM network to improve PEM care in Europe.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Research priorities for European paediatric emergency medicine

et al. 2019

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“…There is a major gap in the evidence base on effective recruitment strategies for research studies (8). In a recent research prioritization exercise, parents identi ed emergency department communication as a priority for pediatric emergency research and that community engagement in health services research should be a guiding principle for all pediatric emergency research (9). Parents are gatekeepers to their children's access to study information, and it is crucial to understand their communication preferences (10) in order to improve recruitment and retention strategies.…”

Section: Introductionmentioning

confidence: 99%

An Online Survey to Assess Parents’ Preferences for Learning About Child Health Research 

Knisley

Scott

2020

Preprint

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Background: Child health research is crucial to finding safe and effective treatments for children. However, child health research can be challenging in that it can require significant resources. Additionally, parents may need to make the decision to participate in a study during a stressful situation, such as an emergency department visit. Although innovative study design and methodology are being used to try and address these challenges, a key component of conducting more efficient, relevant and successful child health research is finding better ways to engage and involve parents in the research process from study conception to dissemination of results. Methods: We employed a cross-sectional, survey design to seek feedback from parents on 1) how they would like to learn about potential child health research studies that their child could participate in; 2) whether they would like to learn more about the research studies they are participating in; and 3) how they would like to receive information about studies they are participating in. Results: The survey findings demonstrate that parents are interested in hearing about opportunities to participate in child health research, particularly during visits to their general practitioner/pediatrician or walk-in clinics. Most parents would like to receive updates on the progress, results, and researchers involved in studies their child has participated in. Parents would also like to be provided with support to participate in research studies (i.e., travel or child care). Conclusion: This study is part of a larger initiative that is re-examining recruitment and retention methods to inform research teams in planning child health studies. In order to involve a wider range of parents and children in current and future studies, there must be strong engagement strategies in place, developed with parents, to effectively and respectively share research opportunities, progress and results, and demonstrate that their participation matters.

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“…The 2018 Academic Emergency Medicine ( AEM ) Consensus Conference on “Aligning the Pediatric Emergency Medicine Research Agenda to Reduce Health Outcome Gaps” provided a unique opportunity to bring together representatives from individual pediatric emergency care research networks and to obtain input from patient representatives to develop consensus‐driven global research priorities . Research agendas have been developed independently among many of the pediatric emergency care networks, but here we strive to bring together many networks . In this article, we describe the development process and the finalized research priorities list.…”

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confidence: 99%

Pediatric Emergency Care Research Networks: A Research Agenda

Stoner

Mahajan

Bressan

et al. 2018

Academic Emergency Medicine

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Background: Pediatric emergency care research networks have evolved substantially over the past two decades. Some networks are specialized in specific areas (e.g., sedation, simulation) while others study a variety of medical and traumatic conditions. Given the increased collaboration between pediatric emergency research networks, the logical next step is the development of a research priorities agenda to guide global research in emergency medical services for children (EMSC).Objectives: An international group of pediatric emergency network research leaders was assembled to develop a list of research priorities for future collaborative endeavors within and between pediatric emergency research networks.Methods: Before an in-person meeting, we used a modified Delphi approach to achieve consensus around pediatric emergency research network topic priorities. Further discussions took place on May 15, 2018, in Indianapolis, Indiana, at the Academic Emergency Medicine (AEM) consensus conference "Aligning the Pediatric Emergency Medicine Research Agenda to Reduce Health Outcome Gaps." Here, a group of 40 organizers and participants met in a 90-minute "breakout" session to review and further develop the initial priorities.Results: We reached consensus on five clinical research priorities that would benefit from collaboration among the existing and future emergency networks focused on EMSC: sepsis, trauma, respiratory conditions, pharmacology of emergency conditions, and mental health emergencies. Furthermore, we identified nonclinical research priorities categorized under the domains of technology, knowledge translation, and organization/ administration of pediatric emergency care.

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Pediatric Emergency Research Canada (PERC): Patient/Family‐informed Research Priorities for Pediatric Emergency Medicine

Cited by 24 publications

References 17 publications

Research priorities for European paediatric emergency medicine

Research priorities for European paediatric emergency medicine

An Online Survey to Assess Parents’ Preferences for Learning About Child Health Research

Pediatric Emergency Care Research Networks: A Research Agenda

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Pediatric Emergency Research Canada (PERC): Patient/Family‐informed Research Priorities for Pediatric Emergency Medicine

Cited by 24 publications

References 17 publications

Research priorities for European paediatric emergency medicine

Research priorities for European paediatric emergency medicine

An Online Survey to Assess Parents’ Preferences for Learning About Child Health Research&nbsp;

Pediatric Emergency Care Research Networks: A Research Agenda

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Product

Resources

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An Online Survey to Assess Parents’ Preferences for Learning About Child Health Research