Pediatric Palliative Care in Childhood Cancer Nursing: From Diagnosis to Cure or End of Life

Foster, Terrah L.; Lafond, Deborah; Reggio, Cheryl; Hinds, Pamela S.

doi:10.1016/j.soncn.2010.08.003

Cited by 76 publications

(103 citation statements)

References 65 publications

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“…Nursing research must also be a priority. ONS members have conducted a multitude of prospective descriptive studies, but now longitudinal and intervention research is needed to address deleterious symptoms, emotions, and grief and death-related fears at diagnosis and throughout the illness trajectory [5]; as it is essential for nurses to recognize patient and family experiences of illness, death and dying [4]. Now, as before, palliative care nurses have the obligation to provide meaningful service and play a pivotal role in the multidisciplinary care for cancer patients and their families.…”

Section: Resultsmentioning

confidence: 99%

“…Further, palliative care nurses aspire to give patients "a good death", in ways that respect dying patients' values, needs, and desires [3]. As relationships develop with each family, nurses must consequently determine how best to meet their needs in an individualized culturally and spiritually sensitive manner [4].…”

Section: Perspectives Of Oncology and Palliative Care Nursesmentioning

confidence: 99%

“…With that, part of the strategy of nursing care is to have the family identify the symptoms that are of most concern to them so that priority attention can be given to those [4].…”

Section: Perspectives Of Oncology and Palliative Care Nursesmentioning

confidence: 99%

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Perspectives on the Role of Nurses in Contemporary Palliative Care Practice: The Middle East as Example for the Developing World

Silbermann¹

2015

J Palliat Care Med

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Modern nursing ought to apply rigor and reliability to the human aspect of care. Basically, the goals of oncology and palliative care nursing have not changed; which are to alleviate suffering and comfort patients and their families deal with life-threatening illness. Yet, modern oncology and palliative care nursing should assume leadership roles in practice, education and research.Hence, the modern nurse faces the dilemma of how to keep up with the accumulating new knowledge, whereas the individual patient and his family are kept as the focus. Patient-centred care has been and should always remain as the motto for nursing, whether it be in the hospital, community or at home. Further, honesty should remain as the cornerstone for nursing practice at all stages of the disease trajectory. Now, as before, palliative care nurses have the obligation to provide meaningful service and play a pivotal role in the multidisciplinary care for cancer patients and their families.

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Section: Resultsmentioning

confidence: 99%

Section: Perspectives Of Oncology and Palliative Care Nursesmentioning

confidence: 99%

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Perspectives on the Role of Nurses in Contemporary Palliative Care Practice: The Middle East as Example for the Developing World

Silbermann¹

2015

J Palliat Care Med

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“…From the analysis of the contents of the articles reviewed, four thematic categories emerged: quality of life and the elements of spirituality (8,14,(19)(20) ; alternative and complementary therapies: spirituality as a therapeutic resource (6,9,13,16,23,25) ; spirituality as a coping strategy (5,7,11,17,18,22,24) and spirituality as an attribute of the existential transformations (10,12,15,21) . Use of alternative therapies for children with cancer (6) Friedman et al…”

Section: Resultsmentioning

confidence: 99%

“…Pediatric palliative care in childhood cancer nursing: from diagnosis to cure or end of life (21) Foster et al 2010 (USA)…”

Section: (Usa) Descriptive Qualitativementioning

confidence: 99%

Spiritual dimension of children and adolescents with cancer: an integrative review

Espinha¹,

Lima

2012

Acta paul. enferm.

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Objective: To review scientific literature relating to the spiritual dimension of children and adolescents with cancer. Methods: We conducted an integrative literature review in the LILACS, SciELO, PsycINFO and MEDLINE databases in the period between 1990 to 2011. Results: Twenty-one studies were analyzed and grouped into thematic categories: quality of life and elements of spirituality; alternative and complementary therapies: spirituality as a therapeutic resource; spirituality as a coping strategy and spirituality as an attribute of existential transformations. It was found that spirituality is present at different stages of the disease experience and that its forms of expression may vary, according to age and cognitive development. Conclusion: There is a scarcity of specific scales for this age range and a need for scientific production relating to the spiritual dimension of children and adolescents with cancer. Descriptors: Neoplasms; Children; Adolescents; SpiritualityKeywords: Neoplasms; Child; Adolescent; Spirituality reSumo Objetivo: Analisar a produção científica relativa à dimensão espiritual de crianças e adolescentes com câncer. Métodos Realizou-se uma revisão integrativa da literatura nas bases de dados LILACS, SciELO, PsycINFO e MEDLINE no período entre 1990 a 2011. Resultados: Vinte e um estudos foram analisados e agrupados nas categorias temáticas: qualidade de vida e os elementos da espiritualidade; terapias alternativas e complementares: a espiritualidade como recurso terapêutico; a espiritualidade como estratégia de enfrentamento e a espiritualidade como atributo das transformações existenciais. Identificou-se que a espiritualidade está presente nas diversas fases da experiência da doença e que suas formas de expressão podem variar, de acordo com a idade e desenvolvimento cognitivo. Conclusão: Observou-se escassez de escalas específicas à faixa etária e necessidade de produção científica relativa à dimensão espiritual de crianças e adolescentes com câncer. Descritores: Neoplasias; Criança; Adolescente; Espiritualidade reSumen Objetivo: Analizar la producción científica relativa a la dimensión espiritual de niños y adolescentes con cáncer. Métodos: Se realizó una revisión integrativa de la literatura en las bases de datos LILACS, SciELO, PsycINFO y MEDLINE en el período comprendido entre 1990 al 2011. Resultados: Fueron analizados veintiún estudios y agrupados en las categorías temáticas: calidad de vida y los elementos de la espiritualidad; terapias alternativas y complementarias: la espiritualidad como recurso terapéutico; la espiritualidad como estrategia de enfrentamiento y la espiritualidad como atributo de las transformaciones existenciales. Se identificó que la espiritualidad está presente en las diversas fases de la experiencia de la enfermedad y que sus formas de expresión pueden variar, de acuerdo con la edad y el desarrollo cognitivo. Conclusión: Se observó escasez de escalas específicas al grupo etáreo y necesidad de producción científica relativa a la dimensión espiritual ...

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Barriers to accessing palliative care for pediatric patients with cancer: A review of the literature

Haines

Frost

Kane

et al. 2018

Cancer

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Although many of the 16,000 children in the United States diagnosed who are with cancer each year could benefit from pediatric palliative care, these services remain underused. Evidence regarding the barriers impeding access to comprehensive palliative care is dispersed in the literature, and evidence specific to pediatric oncology remains particularly sparse. The purpose of the current review was to synthesize the existing literature regarding these barriers and the strategies offered to address them. The authors completed a literature search using the PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL), and Web of Science databases. In total, 71 articles were reviewed. Barriers to accessing pediatric palliative care were categorized according to the 4 levels of a modified socioecological model (ie, barriers related to policy/payment, health systems, organizations, and individuals). Major themes identified at each level included: 1) the lack of consistent and adequate funding mechanisms at the policy/payment level, 2) the lack of pediatric palliative care programs and workforce at the health systems level, 3) difficulties integrating palliative care into existing pediatric oncology care models at the organizational level, and 4) the lack of knowledge about pediatric palliative care, discomfort with talking about death, and cultural differences between providers and patients and their families at the individual level. Recommendations to address each of the barriers identified in the literature are included. Cancer 2018;124:2278-88. © 2018 American Cancer Society.

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Pediatric Palliative Care in Childhood Cancer Nursing: From Diagnosis to Cure or End of Life

Cited by 76 publications

References 65 publications

Perspectives on the Role of Nurses in Contemporary Palliative Care Practice: The Middle East as Example for the Developing World

Perspectives on the Role of Nurses in Contemporary Palliative Care Practice: The Middle East as Example for the Developing World

Spiritual dimension of children and adolescents with cancer: an integrative review

Barriers to accessing palliative care for pediatric patients with cancer: A review of the literature

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