Pediatric Traumatic Brain Injury

Conoley, Jane Close; Sheridan, Susan M.

doi:10.1177/002221949602900610

Cited by 32 publications

(2 citation statements)

References 47 publications

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“…Videoconferencing may be beneficial as parents would not require transport or childcare and could potentially avoid time taken from work to attend face-to-face therapy sessions [28]. Paediatric TBI causes a considerable degree of financial strain for families [29], and any method for alleviating this strain is worth investigating. Furthermore, the risk of sustaining a paediatric TBI is increased for those who live in remote areas [30], highlighting the need to increase access to interventions for those who live far from rehabilitative services.…”

Section: Introductionmentioning

confidence: 99%

Managing challenging behaviour in preschool children post-traumatic brain injury with online clinician support: protocol for a pilot study

Taylor

Catroppa

Godfrey

et al. 2017

Pilot Feasibility Stud

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BackgroundTraumatic brain injury (TBI) in children is associated with a range of poor long-term outcomes, including behavioural disturbances. Parents can experience high levels of stress and injury-related burden, and evidence suggests that distressed parents are less likely to adopt positive parenting styles to manage their child’s behaviour. The ‘Signposts for Building Better Behaviour’ program is a parenting programme that was originally developed to assist parents of children with an intellectual disability in managing their child’s behaviour. More recently, it has been adapted to include a TBI module, to assist parents in managing post-TBI behaviour. However, geographical and financial barriers remain, preventing many parents from accessing the programme in the standard face-to-face modality. This project aims to investigate the feasibility and acceptability of the programme when delivered with clinician support via videoconferencing.Methods/designThe sample for this feasibility study will be recruited from the Royal Children’s Hospital, Melbourne, and the Victorian Paediatric Rehabilitation Service. Participants will be the parents of a child who sustained a TBI between the ages of 2.0 and 6.11, within the previous 2 years. The parents of 15 children will complete the programme, with clinician support via videoconferencing, while the parents of a further 15 children will form a treatment as usual wait-list control group. Parents complete questionnaires assessing their child’s behaviour, as well as assessing their own mental health, sense of parenting competency, disciplinary style, and family functioning. These will be completed upon enrolment in the study regarding their child’s pre-injury behaviour and then again pre-intervention, immediately post-intervention, and 4 months post-intervention. Parents who complete the intervention will also complete questionnaires assessing their satisfaction with the programme and its delivery. Information will be collected on the feasibility, clinical practicality, and acceptability of the programme when delivered through this medium.DiscussionThis study is the first to investigate the feasibility of delivering post-child TBI behavioural intervention via videoconferencing in Australia. Preliminary findings from this study may support the development of a larger randomised controlled trial. It is hoped that programme delivery through this medium would facilitate better access to the programme, enabling improved long-term outcomes for families.Trial registrationANZCTR, ACTRN12616001574437

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Section: Introductionmentioning

confidence: 99%

Managing challenging behaviour in preschool children post-traumatic brain injury with online clinician support: protocol for a pilot study

Taylor

Catroppa

Godfrey

et al. 2017

Pilot Feasibility Stud

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“…For instance, Taylor et al (2001) found that child behavior problems 6 months postinjury predicted higher family burden and parent psychological distress at 12 months. Clinical observations indicate that families of children with TBI are more likely to experience strain in family roles, lack of social support outside of the family, and low levels of support or communication within the family (Brooks, 1991; Conoley & Sheridan, 1996; Waaland & Kreutzer, 1988). In addition, the transition from the hospital to the child’s home can become even more stressful if the family experiences challenges beyond the TBI (Semrud-Clikeman, 2010).…”

mentioning

confidence: 99%

Mothers report more child-rearing disagreements following early brain injury than do fathers.

Bendikas

Wade²,

Cassedy³

et al. 2011

Rehabilitation Psychology

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Objective To investigate differences between mother’s and father’s perceptions of marital relationship quality, child rearing disagreements, and family functioning over the initial 18 months following traumatic brain injury (TBI) in early childhood relative to an orthopedic-injury comparison group. Methods Participants included 147 parent-dyads of children with TBI (n = 53) and orthopedic injuries (OI; n = 94) who were between the ages of 3 and 7 years at injury. Family functioning, marital quality, and child-rearing disagreements were assessed shortly after injury and at 6, 12, and 18-month follow-ups, with ratings at the initial assessment completed to reflect preinjury functioning. Mixed model analyses were used to examine mother and father’s reports of family functioning, marital quality, and child-rearing disagreements over time as a function of injury severity and parent gender. Results We found a significant Group x Gender interaction for ratings of love and parenting disagreements. As hypothesized, mothers of children with severe TBI rated the relationship as significantly less loving than did their partners, and mothers of children with both moderate and severe TBI endorsed more parenting disagreements than did their partners. However, fathers reported higher levels of family dysfunction than their partners, regardless of injury type or severity. Conclusions Implications for treatment based on differences in mothers’ and fathers’ perceptions of family and marital functioning, and future directions for research, are discussed.

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A review of family intervention guidelines for pediatric acquired brain injuries

Cole

Paulos

Cole

et al. 2009

Dev Disabil Res Revs

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Pediatric acquired brain injury (BI) not only affects the child with the injury, but also greatly impacts their family. Studies suggest there are higher rates of caregiver and sibling psychological distress after a child in the family has sustained a BI. Also, family functioning after BI impacts the child's recovery. In reviewing the literature, we identified seven theoretical clinical guidelines for working with families of children and adolescents with BI. These clinical guidelines are as follows: (1) select developmentally appropriate interventions, (2) match the intervention to the family, (3) provide advocacy, (4) provide injury education, (5) focus on family realignment, (6) appropriately adjust the child's environment, and (7) provide skills training to the family and child. The existing research on family interventions for BI is reviewed within the context of these theoretical guidelines, and the empirical support for each guideline is subsequently evaluated using specific criteria for empirically supported treatments. Unfortunately, very few randomized controlled studies exist, and continued research is needed to classify all clinical guidelines as "efficacious." In addition, continued research will aid in informing professionals of specific approaches to utilize when working with a family of a child with BI. Currently, clinicians and researchers can turn to the existing clinical guidelines to help address the numerous barriers posed by implementing and studying family interventions for pediatric BI.

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Pediatric Traumatic Brain Injury

Cited by 32 publications

References 47 publications

Managing challenging behaviour in preschool children post-traumatic brain injury with online clinician support: protocol for a pilot study

Managing challenging behaviour in preschool children post-traumatic brain injury with online clinician support: protocol for a pilot study

Mothers report more child-rearing disagreements following early brain injury than do fathers.

A review of family intervention guidelines for pediatric acquired brain injuries

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