Peer support and shared decision making in Open Dialogue: Opportunities and recommendations

Chmielowska, Marta; Mannocci, Nell; Tansel, Alexander; Zisman‐Ilani, Yaara

doi:10.3389/fpsyg.2022.1059412

Cited by 5 publications

(6 citation statements)

References 39 publications

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“…Finally, OD meetings are characterised by the principles of dialogue, ensuring active participation and equal voice for all members involved. This OD approach bears remarkable similarities to mutual support groups, as highlighted by Chmielowska et al (2022) and Lorenz-Artz et al (2023). Its adoption extends beyond Spain, as evidenced by its use in several countries, as reported by Buus et al (2021) and Mosse et al (2023).…”

Section: Introductionmentioning

confidence: 84%

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Open Dialogue in Spain: an initial survey of knowledge and perspectives

Parrabera-García,

Oujo-Fernández,

Lirola

et al. 2023

Front. Psychol.

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In Spain, the introduction of the Open Dialogue framework is relatively recent. This study takes a closer look at Open Dialogue training, interest and research in this region. To this end, a survey has been conducted through a convenience sample of professionals, people with their own experiences in mental health, family members, relatives, university professors and students. The results showed that a significant number of participants had no training in OD, and their exposure to relevant literature and congress attendance was limited. Amongst the different profiles, professionals reported the highest level of training. These findings highlight the urgent need for further research and training initiatives to improve the understanding and application of the OD framework in Spain. Efforts should be directed towards broadening the knowledge base, increasing access to training programmes and fostering interest amongst different stakeholders. By addressing these gaps, the implementation and use of OD can be expanded to meet the growing demand and interest in this approach in the Spanish context.

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Section: Introductionmentioning

confidence: 84%

“…This OD approach bears remarkable similarities to mutual support groups, as highlighted by Chmielowska et al (2022) and Lorenz-Artz et al (2023) . Its adoption extends beyond Spain, as evidenced by its use in several countries, as reported by Buus et al (2021) and Mosse et al (2023) .…”

Section: Introductionmentioning

confidence: 91%

Open Dialogue in Spain: an initial survey of knowledge and perspectives

Parrabera-García,

Oujo-Fernández,

Lirola

et al. 2023

Front. Psychol.

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“…These principles have been developed out of discussions with peer practitioners working in Open Dialogue teams located in ODDESSI trial sites in England and are grounded in their practice experience. In their paper exploring peer support and shared decision making in Open Dialogue, Chmnielowska et al (2022) argue that “clarifying the core values and principles of the PSW [peer support worker] in OD [Open Dialogue] will ensure that, as peer support grows, it grows with integrity…” (p. 4). Here we offer a basis for the further exploration of a set of core principles.…”

Section: Discussionmentioning

confidence: 99%

“…However, concepts of heterarchy and “without rank” do not necessarily take account of how perceptions (and realities) of differential statuses within the room are likely to mean than power relations will be enacted, and some voices may potentially be privileged over others. From the perspective of professionals, it may be a challenge to give up positions of “knowing” and “power over” (see Chmnielowska et al, 2022 ; von Peter et al, 2023 ).…”

Section: Conceptual Starting Pointsmentioning

confidence: 99%

Conceptualizing the peer contribution in Open Dialogue practice

Hendy,

Tew,

Carr

2023

Front. Psychol.

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In English mental health services, people with their own experience of mental distress have trained as Open Dialogue practitioners and have been employed as peer practitioners, co-working as equals alongside workers with professional backgrounds in Network Meetings. The conceptual underpinnings of the peer practitioner role have been drawn from the principles and relational approach of Intentional Peer Support. These have significant similarities with Open Dialogue, in terms of philosophical and theoretical orientations, with a particular focus on what happens in the “between” of a relational encounter. However, there are also significant differences in how practice principles are conceptualized, particularly around areas such as mutuality and self-disclosure. This article offers an analysis of this conceptual territory drawing on the relevant literature. This is then taken forward with the teasing out of specific practice principles that capture the unique contribution that peer practitioners can bring to Open Dialogue practice. These are derived through discussions that took place in an Action Learning Set for peer practitioners who have been involved in delivering Open Dialogue services in mainstream mental health service settings. This was part of a wider research study entitled Open Dialogue: Development and Evaluation of a Social Network Intervention for Severe Mental Illness (ODDESSI). The principles address how peer practitioners may be particularly well-placed to offer attunement, validation, connection and mutuality, and self-disclosure – and hence how they may be able to contribute an additional dimension to dialogical practice.

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“…It is true that decisions about starting, stopping, and changing psychiatric medicine are best made directly with licensed medical professionals and that under no circumstances should nonmedical practitioners make such recommendations. However, PRPs and other like-minded professionals can help people prepare to participate in SDM about medication with their psychiatric care providers (Chmielowska et al, 2022; Zisman-Ilani & Byrne, 2023). This is particularly important because routine “medication management” appointments in the United States are typically 15–20 min (Torrey et al, 2017), and by some estimates, there are only 18 s before busy providers interrupt patient narratives with their pressing agenda (Hall & Roter, 2006).…”

Section: A Call To Actionmentioning

confidence: 99%

Awakening on antipsychotic medication: A call to action.

Deegan,

Stiles,

Rufo

et al. 2024

Psychiatric Rehabilitation Journal

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Objective: Explore a lived experience perspective on using antipsychotic medicine and call to action for psychiatric rehabilitation practitioners to get involved in preparing people diagnosed with serious mental illness (SMI) to have a voice and choice in antipsychotic medication treatment. Methods: A first-person account of awakening on an antipsychotic medication for the first time is used to understand the lived experience and challenges of using it. Lessons learned are amplified through de-identified queries of the CommonGround database capturing concerns about antipsychotic medication of people diagnosed with SMI in public sector mental health clinics in the United States. Results: Lived experience of "me-on-medicine" included embodied and perceptual changes to self when taking antipsychotic medications. Discordance between the team's goal and personal goals for medication treatment interfered with recovery. Analysis of more than 100,000 concerns about antipsychotic medications expressed by 57,370 CommonGround users showed the most frequent concerns are that medication is perceived as unhelpful (21%), side effects (13%), impact on health (12%), and concerns about feeling unmotivated to use medication (8%). Among CommonGround users below age 30, low motivation to take antipsychotics was the third most prevalent concern. Among CommonGround users over age 30, concerns about the impact on health were the third most dominant. Conclusions and Implications for Practice: Psychiatric rehabilitation practitioners can support people diagnosed with SMI getting prepared to participate in decision making about antipsychotic medications with psychiatric care providers by identifying concerns and building skills and strategies to negotiate the new "me-on-medicine." Impact and ImplicationsIt can be challenging to use antipsychotic medications, especially if they are experienced as interfering with our goals or changing us in ways we do not like. Psychiatric rehabilitation practitioners can support people in becoming empowered self-advocates with their psychiatric care providers in order to get the treatment that is right for them.

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Peer support and shared decision making in Open Dialogue: Opportunities and recommendations

Cited by 5 publications

References 39 publications

Open Dialogue in Spain: an initial survey of knowledge and perspectives

Open Dialogue in Spain: an initial survey of knowledge and perspectives

Conceptualizing the peer contribution in Open Dialogue practice

Awakening on antipsychotic medication: A call to action.

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