Peer support for people with severe mental illness versus usual care in high-, middle- and low-income countries: study protocol for a pragmatic, multicentre, randomised controlled trial (UPSIDES-RCT)

Moran, Galia S.; Kalha, Jasmine; Mueller-Stierlin, Annabel Sandra; Kilian, Reinhold; Krumm, Silvia; Slade, Mike; Charles, Ashleigh; Mahlke, Candelaria; Nixdorf, Rebecca; Basangwa, David; Nakku, Juliet; Mpango, Richard; Ryan, Grace; Shamba, Donat; Ramesh, M.; Ngakongwa, Fileuka; Grayzman, Alina; Pathare, Soumitra; Mayer, Benjamin; Puschner, Bernd

doi:10.1186/s13063-020-4177-7

Cited by 47 publications

(41 citation statements)

References 52 publications

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“…Some recovery research groups take different approaches, for example prioritising hermeneutic and idiographic research primarily using qualitative methods in order to reflect the importance attached to lived experience. In contrast, the Recovery Research Team is intentionally mixed-methods, and our expertise includes randomised controlled trial leadership [ 14 , 46 , 47 ] and collaboration [ 48 , 49 , 50 ], as well as systematic reviews [ 51 , 52 , 53 ] and meta-analyses [ 54 , 55 ]. Whilst very aware of the limitations of the evidence-based medicine hierarchy [ 56 , 57 ], this orientation maximises the impact of the Recovery Research Team and has contributed to the ability to win large research awards and hence increased the sustainability of the group.…”

Section: Discussionmentioning

confidence: 99%

Management of a High-Performing Mental Health Recovery Research Group

Slade

2021

IJERPH

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A personal perspective is given on the processes involved in managing and sustaining a high-performing mental health recovery research group. The broader context of scholarship in the United Kingdom is outlined, in which academic productivity is commodified specifically in relation to peer-reviewed journal papers. Four leadership choices in developing a high-performing research group are discussed: optimal group size; sharing the workload; maintaining a programmatic focus; and performance expectations. Approaches to maximising innovation are identified, including emotional and intellectual engagement of team members, working with diverse stakeholders and convening communities of practice. We use a highly managed approach to publications from inception to acceptance, which is described in detail. The use of these approaches is illustrated in relation to the Recovery Research Team which was formed in 2009. Specific recovery-related issues covered include demonstrating the ability to develop a significant recovery research portfolio (our four current large [>UK£2 m] studies relate to recovery narratives, global mental health peer support work, digital interventions and Recovery Colleges); the positive implications of actively recruiting researchers with mental health lived experience; how performance issues are managed; our approach to involving lived experience co-authors in papers; and our decision to conduct mixed-methods rather than solely qualitative studies.

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Section: Discussionmentioning

confidence: 99%

Management of a High-Performing Mental Health Recovery Research Group

Slade

2021

IJERPH

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“…An increasing proportion of countries engage PSW in their public mental health and addiction services (Moran et al, 2020). How PSW are integrated in the services and participate in co-production and cocreation processes will in uence both the content and quality of services for service-users as for the effectiveness and bottom line of organizations, and the services ability to innovation and change.…”

Section: Aims Of the Studymentioning

confidence: 99%

“…Existing research in the eld is largely focused on demonstrating why we should implement it (Borg et al, 2017). Research demonstrate that PSW in the services lead to increased service user participation (Gagne et al, 2016), and that actively involving and empowering service users will make the services more democratic and lead to the realization of mental health as a human right (Moran, Kalha, Mueller-Stierlin, Kilian, Krumm, Slade, Ashleigh, C, et.al., 2020).…”

Section: Introductionmentioning

confidence: 99%

The influence of peer support worker integration on co-production and co-creation in public mental health and addiction services: Protocol for a scoping review

Åkerblom

Ness

2020

Preprint

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An increasing proportion of countries engage peer support workers (PSW) in their public mental health and addiction services. How PSW are integrated in the services and participate in co-production and co-creation processes will influence both the content and quality of services for service-users related to effectiveness, and the services ability to innovation and change. However, little is known about how PSW contribute in, and to, co-production and co-creation processes in the services, and the described outcomes of such processes. Knowledge from existing research literature about the types, objectives, conditions and outcomes of co-production and co-creation processes with PSW is key knowledge for understanding and developing these processes which in the next step will increase service user participation and ensure better adaptation of services to the target group.A scoping review are chosen to provide an overview of existing evidence base to address questions beyond those related to effectiveness and efficiency and can be useful for bringing together literature in disciplines with emerging evidence. This aim of this scoping review is to achieve an overview of the research status of co-production and co-creation related to or involving PSW in the public mental health and addiction field of studies. The search of the studies will be between August 31 to December 15, 2020. The studies reviewed will be the ones that provide a description of how PSW engage in or contribute in these public services, particularly in collaborative processes as co-production and co-creation in the services. All studies describing PSW roles and activities that PSW might have within the public mental health and addiction services and across organizational or institutional boundaries will be included. Intended database sources for the review are Medline, PsycINFO, Embase, Oria, WorldCat, Google Scholar, Scopus, Academic Search Elite, Cinahl. This scoping review explore how the integration of peer support in public mental health and addiction services influences forms of collaboration in these services, described in the literature both through the process of co-production and co-creation. Research question for this scoping review is: How do peer support workers integration influence co-production and co-creation in public mental health and addiction services and what are the described outcomes?

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“…In public mental health and addiction services, an increasing number of individuals with lived experience of mental health problems enter the workplace as peer support workers (PSW´s). There is a growing range of research on PSW´s [ 1 ]. Existing research seems to be primarily focused on the normative side and demonstrates why we should implement PSW´s.…”

Section: Introductionmentioning

confidence: 99%

“…The research literature indicates that deployment of PSW´s leads to increased service user participation [ 2 ], active involvement and empowers service users. This makes the services more democratic and lead to realizing mental health as a human right [ 1 ].…”

Section: Introductionmentioning

confidence: 99%

Peer support workers in co-production and co-creation in public mental health and addiction services: Protocol for a scoping review

Åkerblom

Ness

2021

PLoS ONE

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Worldwide, there is a growing interest to employ people with lived experiences in health and social services. Particularly in mental health and addiction services, individuals with lived experience of mental health problems enter the workplace as peer support workers (PSW´s). Their aim in the services is to bring in the perspective of service users in interactive processes at the micro and macro levels. The services´ ability to exploit the knowledge from PSW´s lived experiences will influence both the content and quality of the services, its effectiveness and its capacity to innovate and change. The concepts of co-production and co-creation are used to describe these interactive processes in the services in the literature. While co-production is aimed at improving individual services, co-creation seeks to develop service systems. This scoping review aims to provide an overview of the research status of PSW´s different involvement, in co-production and co-creation, in public mental health and addiction services. Studies describing PSW´s involvement in co-production and co-creation will be contrasted and compared. Knowledge about PSW´s involvement in co-production and co-creation is vital for understanding and further developing these interactive processes with PSW´s. The studies reviewed will describe PSW´s different types of involvement in co-production and co-creation in public mental health and addiction services or across organizational and institutional boundaries. The research question is: How are peer support workers involved in co-production and co-creation in public mental health and addiction services, and what are the described outcomes? Literature searches are conducted in Medline, PsycINFO, Embase, Oria, WorldCat, Google Scholar, Scopus, Academic Search Elite, Cinahl, and Web of Science, from the inception of each database to January 4, 2021. Expected results are that PSW´s are often described as a frontline worker who spends most of their working hours in a joint effort to co-produce with service users. Fewer studies describe PSW´s involved in interactive processes to re-design or transform public services systems. It is anticipated that this scoping review will increase the knowledge of the services’ abilities to exploit PSW´s expertise and inform policy and research.

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Peer support for people with severe mental illness versus usual care in high-, middle- and low-income countries: study protocol for a pragmatic, multicentre, randomised controlled trial (UPSIDES-RCT)

Cited by 47 publications

References 52 publications

Management of a High-Performing Mental Health Recovery Research Group

Management of a High-Performing Mental Health Recovery Research Group

The influence of peer support worker integration on co-production and co-creation in public mental health and addiction services: Protocol for a scoping review

Peer support workers in co-production and co-creation in public mental health and addiction services: Protocol for a scoping review

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