People Living with Inflammatory Bowel Disease Want Multidisciplinary Healthcare: A Qualitative Content Analysis

Feeney, Meg; Chur‐Hansen, Anna; Mikocka‐Walus, Antonina

doi:10.1007/s10880-021-09801-4

Cited by 10 publications

(6 citation statements)

References 36 publications

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“…Ongoing advocacy for psychological treatment in IBD, oftentimes overlooked in favor of a biomedical approach, is further supported by the perspectives of individuals in this study, who felt simply having their experience validated by the provisionally registered psychologist was enough to positively impact their psychological distress (Davis et al, 2020 ; Mikocka-Walus et al, 2020 ; Tarar et al, 2022 ). Perspectives shared by participants in the current study that an IBD-specific psychological intervention would be particularly valuable close to time of diagnosis was congruent with past research and may be useful in informing best practice models of care (Dober et al, 2021 ; Fawson et al, 2022 ; Feeney et al, 2022 ).…”

Section: Discussionsupporting

confidence: 72%

Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation

Wilkin,

Evans,

Van Niekerk

et al. 2024

J Clin Psychol Med Settings

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The current study explored perspectives of those with inflammatory bowel disease (IBD) and comorbid anxiety and/or depression on a hybrid acceptance and committment therapy (ACT) intervention, compared to an active control. This qualitative study was nested within a randomized controlled trial (RCT) where an experimental group received an 8-week blended delivery ACTforIBD intervention (four sessions telehealth, four sessions pre-recorded self-directed), while an active control group received a psychoeducation program of similar intensity. Semi-structured interviews were conducted post-intervention and at a 3-month follow-up. Themes were interpreted using reflexive thematic analysis. Twenty individuals participated; ten in each condition. Seven themes were constructed, including three shared themes between groups: I Am Worth Advocating For, Present Moment Is My Biggest Ally, and Ambivalence About Self-Directed Modules. Two themes were identified for the ACTforIBD group: Symptoms Are Going to Happen and Moving Toward Values while two themes identified from the ActiveControl group were: Reset and Refresh and It’s Ok to Say No. Acceptance and values modules from ACTforIBD were perceived as useful in reducing psychological distress for those with IBD, while the ActiveControl group felt their program affirmed existing effective coping strategies. Access to external resources for self-directed modules and networking may increase engagement with content long term.

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Section: Discussionsupporting

confidence: 72%

Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation

Wilkin,

Evans,

Van Niekerk

et al. 2024

J Clin Psychol Med Settings

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“…MDT care is preferred by patients and represents a key pillar in the holistic assessment and management of the biopsychosocial consequences that manifest as a result of the condition. [40][41][42] However, resource limitations are widespread throughout Australasian health care systems and represent a significant barrier to providing optimal care to adolescents with IBD both in terms of MDT accessibility as well as providing effective transition care, as stated by 88% of survey respondents in the current study.…”

Section: Discussionmentioning

confidence: 79%

Transitional care of adolescents with inflammatory bowel disease to adult services varies widely across Australia and New Zealand

Vernon‐Roberts,

Chan,

Christensen

et al. 2024

JGH Open

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Background and AimChildren and adolescents account for approximately 14% of inflammatory bowel disease (IBD) diagnoses. At an appropriate age and level of development adolescents with IBD have their care transferred from the pediatric to adult clinical team during a process termed “transition”. The study aim was to survey pediatric gastroenterologists throughout Australasia to identify commonality in the transition process to contribute to standardized guideline development.MethodsA descriptive survey captured key variables: transition clinic format, process and infrastructure, transition assessments, and guidelines. The survey was distributed electronically to 59 Pediatric Gastroenterologists throughout Australasia in January 2023.ResultsSeventeen (29%) clinicians completed the survey: Australia 13 (76%). New Zealand 4 (24%). Thirteen (76%) respondents had access to a dedicated IBD transition clinic. Adolescents attended transition clinics 1–7 times, and the main processes transferred were: prescription provision, biologic appointments, and adult team contacts. Transition was first discussed age 13–15 years (53%), or 16–18 years (47%), with the main discussion topics including: continuing adherence (88%), smoking (59%), alcohol use (59%), recreational drug use (59%). Transition readiness assessments were done infrequently (24%). The minority (24%) used formal guidelines to inform the transition process, but 15 (88%) considered the development of a standardized Australasian guideline as beneficial/extremely beneficial.ConclusionsThis survey highlighted that transition care for adolescents with IBD is variable across Australasia. Australasian guideline development may optimize the transition process for adolescents with IBD and improve their longitudinal outcomes.

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“…As it currently stands, usual IBD care heavily relies on the gastroenterologist and psychologists are heavily underutilized [ 30 ]. In contrast to this, patients do seem to want integrated care as outlined by a recent qualitative study [ 31 ]. Another study trialled an integrated care model and measured prevalence, patient participation, and potential benefits to mental health [ 32 ].…”

Section: Discussionmentioning

confidence: 99%

Self-Worth Beliefs Predict Willingness to Engage in Psychotherapy for Fatigue in Inflammatory Bowel Disease

et al. 2022

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Background Fatigue in inflammatory bowel disease (IBD) is poorly controlled, with few existing interventions. Psychotherapy interventions for IBD fatigue show promise; however, due to mixed findings in efficacy and attrition, current interventions need improvement. Some research shows beliefs about psychotherapy and stigma toward psychotherapy may impact engagement in psychotherapy interventions. Aims This study aimed to examine the effects of IBD activity, fatigue, mental health status, previous experience with psychotherapy, and stigma toward psychotherapy on willingness to use psychotherapy as a fatigue intervention. Methods An online cross-sectional survey was conducted, and linear regression models were used to examine willingness to engage in psychotherapy for fatigue. Results Overall, 834 participants completed the survey. Regression analysis examining demographics, mental health status, IBD activity, fatigue, pain, antidepressant use, psychotherapy experience, and self-worth intervention efficacy belief significantly explained 25% of variance in willingness to use psychotherapy for fatigue. Significant factors included antidepressant use ( b = .21, p < .01), pain ( b = − .05, p < .001), and self-worth intervention belief ( b = − .27, p < .001), which uniquely explained 18% of variance in the outcome. Conclusions Willingness to engage in psychotherapy for fatigue in IBD appears to be driven by expectations related to specific self-worth beliefs, rather than stigma, IBD activity, or any prior experience with psychotherapy. Clinicians should directly address these expectations with their patients.

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People Living with Inflammatory Bowel Disease Want Multidisciplinary Healthcare: A Qualitative Content Analysis

Cited by 10 publications

References 36 publications

Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation

Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation

Transitional care of adolescents with inflammatory bowel disease to adult services varies widely across Australia and New Zealand

Self-Worth Beliefs Predict Willingness to Engage in Psychotherapy for Fatigue in Inflammatory Bowel Disease

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