People Under 50 With Acquired Brain Injury Living in Residential Aged Care

Winkler, Di; Sloan, Sue; Callaway, Libby

doi:10.1375/brim.11.3.299

Cited by 25 publications

(62 citation statements)

References 52 publications

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“…This finding echoes experiences reported previously (O'Reilly & Pryor, 2002), and highlights the need for greater flexibility and responsiveness in individual care pathways to provide increased opportunity for movement between RAC, rehabilitation and community living. Many of the challenges and potential solutions for supporting people with neurological disability to live a lifestyle of choice have been highlighted by Winkler et al (2007), suggesting the need for a better integrated service system. Such a system would enable opportunities to better overcome issues around complexity of governance, policy and funding arrangements for health, aged care and disability support services that vary across levels of government, communication between responsible agencies, and eligibility and funding criteria which limit access for individuals whose support needs cut across several sectors.…”

Section: Discussionmentioning

confidence: 99%

“Time's Up”: The Experience of Entering Residential Aged Care for Young People with Acquired Neurological Disorders and Their Families

2018

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Background and aims: Previous research has highlighted that living in residential aged care (RAC) is associated with a range of negative outcomes for adults with acquired neurological disorders. This study sought to understand the lived experience of entering RAC for young people and their family members and characterise their needs during this process.Method: Data included 64 written and verbal submissions to the 2015 Senate Inquiry into the Adequacy of existing residential care arrangements available for young people with severe physical, mental or intellectual disabilities in Australia. In line with hermeneutic tradition, text was analysed using thematic analysis.Results: Entry to RAC was experienced as a complex process that coalesced around three key events: an unexpected health crisis, a directive that time's up and the individual is required to leave the healthcare setting, with a subsequent decision to move into RAC. This decision was made in the absence of time, knowledge of options or adequate support.Conclusions: Findings suggest that there are both immediate practice changes and longer term policy responses that can support the health and disability systems to uphold the rights of people with acquired disability to choose where and how they will live their lives.

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Section: Discussionmentioning

confidence: 99%

“Time's Up”: The Experience of Entering Residential Aged Care for Young People with Acquired Neurological Disorders and Their Families

2018

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“…As part of the planning and assessment process for the YPIRAC initiative, information was obtained about the characteristics, support needs and preferences of people under 50 years of age residing in RAC in Victoria (Winkler et al, 2007). The planning and assessment process found that most young people in RAC have a brain injury (58%) and the specific characteristics, support needs and preferences of this subgroup have been described previously (Winkler, Sloan, & Callaway, 2010). This study found that young people living in RAC with ABI are a diverse group with a complex range of health and support needs that are not adequately met within RAC.…”

mentioning

confidence: 58%

“…Many people with ABI (44%) required the highest level of support, indicating they could not be left alone, while 26% could be left for part of the day and overnight. Eighty-one per cent of people with ABI and people from their primary support networks indicated that they would like to explore alternative accommodation and support options, while 19% people indicated that they would prefer to remain living in the current RAC facility (Winkler et al, 2010).…”

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confidence: 99%

Comparison of People With ABI Living in Two Accommodation Settings: Shared Supported Accommodation and Residential Aged Care

Winkler¹,

Farnworth

Sloan

et al. 2010

Brain Impairment

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B ackground: People with severe acquired brain injury (ABI) often require high and ongoing levels of paid support, which is sometimes provided within a shared supported accommodation service (SSA). In Victoria there are more than 140 people with severe ABI living in shared supported accommodation services who have a similar level of disability as young people with ABI in residential aged care (RAC). Objectives: The aims of this article are twofold: (1) to describe the characteristics, support needs and level of community inclusion of people with an ABI living in shared SSA in Victoria and (2) to compare the characteristics, support needs, social contact, community integration and leisure participation of this group with a group of people with ABI under 50 years old living in RAC reported in a previous study. Participants: Information was obtained from SSA managers on 128 residents with an ABI, aged under 60 years, who were living in shared supported accommodation. Measures: Questionnaires were used to obtain information about the characteristics, support needs and occupational participation of participants. Support needs were measured utilising the Care and Needs Scale (CANS). Method: Questionnaires were sent to and completed by SSA managers. Results: Of the 39 SSA managers contacted, 32 provided information about the characteristics of 128 residents with ABI living in their facilities. While 72% of SSA residents accessed the community almost everyday or more often, 40% of this sample received a visit from a friend less often than once per year. Results of the CANS indicated that the SSA group required a similar level of support to the comparison group of people with ABI living in RAC, but went outside, participated in community based leisure activities, and visited friends significantly more often. There was no significant difference between the two groups in the frequency of visits to the facility from relatives or friends. Conclusion: Although the relationship between client outcomes and accommodation is a complex one, this study suggests that the type of accommodation and support has a significant impact on the frequency of community participation experienced people with ABI and high care needs.

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“…The Community Integration Questionnaire (CIQ) (Willer et al, 1994) has become a widely used and comprehensive measure of community integration following ABI (Ritchie, Wright-St Clair, Keogh & Gray, 2014;Sander et al, 1999;Seale et al, 2002). The CIQ has been used extensively in occupational therapy research and practice (Burleigh et al, 1998;Huebner et al, 2003;Kim & Colantonio, 2010;Parveneh & Cocks, 2012;Sloan, Callaway, Winkler, McKinley & Ziino, 2012;Sloan, Winkler & Anson, 2007;Sloan et al, 2004Sloan et al, , 2009bWinkler, Farnworth, Sloan, Brown & Callaway, 2010a;Winkler, Sloan & Callaway, 2010b). The use of the CIQ has also expanded to other population groups including people with physical disability (Hirsh, Braden, Craggs & Jensen, 2011), spinal cord injury (Gontovsky et al, 2009;Kratz, Chadd, Jensen, Kehn & Kroll, 2015), aphasia (Dalemans, de Witte, Beurskens, van den Heuvel & Wade, 2010), brain tumours (Kaplan, 2000), neurodegenerative conditions including Multiple Sclerosis (Negahban, Fattahizadeh, Salehi, Majdinasab & Mazaheri, 2013) and burn injuries (Esselman et al, 2001).…”

Section: Introductionmentioning

confidence: 99%

The Community Integration Questionnaire – Revised: Australian normative data and measurement of electronic social networking

Callaway

Winkler²,

Tippett³

et al. 2016

Aus Occup Therapy J

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People Under 50 With Acquired Brain Injury Living in Residential Aged Care

Cited by 25 publications

References 52 publications

“Time's Up”: The Experience of Entering Residential Aged Care for Young People with Acquired Neurological Disorders and Their Families

“Time's Up”: The Experience of Entering Residential Aged Care for Young People with Acquired Neurological Disorders and Their Families

Comparison of People With ABI Living in Two Accommodation Settings: Shared Supported Accommodation and Residential Aged Care

The Community Integration Questionnaire – Revised: Australian normative data and measurement of electronic social networking

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