People with cancer and their family caregivers’ personal experience of using supportive eHealth technology: A narrative review

Darley, Andrew; Coughlan, Barbara; Furlong, Eileen

doi:10.1016/j.ejon.2021.102030

Cited by 20 publications

(22 citation statements)

References 57 publications

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“…For many women, the ePRO pathway provided good connection/support, without the anxiety of attending hospital, and they were keen to continue. Similar themes have been evident in previous studies exploring nurse-led, telephone follow-up amongst gynaecological cancer patients [8, 9, 36] and ePRO use during active treatment [33]. The current study also showed a link between the practical logistics of ePRO pathway and the resulting personal impact.…”

Section: Discussionsupporting

confidence: 88%

“…This work illuminates the feasibility results presented in Kennedy et al 2022 [29] by highlighting factors that in uenced women's readiness for a remote-based pathway, and the importance of building an ePRO service that continues to support and reassure women. This maps onto previous evidence highlighting the importance of individual's experiences and preferences of technology use in cancer care and implementation approaches for PRO integration and sustainability in routine care [32,33].…”

Section: Discussionmentioning

confidence: 54%

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“It made me feel part of the team, having my homework to do” – Women and specialist nurse experiences of remote follow up after ovarian cancer treatment: a qualitative interview study.

Kennedy

Shearsmith

Holmes

et al. 2022

Preprint

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Purpose. This study aimed to explore ovarian cancer patients’ and specialist nurses’ experiences of participating in a feasibility study of an electronic patient reported outcome (ePRO) follow-up pathway. Women in the feasibility study completed an ePRO questionnaire, had a blood test and telephone consultation with their specialist nurse, instead of face-to-face hospital visits.Methods. All women and the nurses involved were invited to take part in nested semi-structured interviews exploring all aspects of the pathway. Interviews were recorded and transcripts analysed using framework analysis.Results. Twenty interviews were conducted (16 out of 24 feasibility participants, and all 4 nurses involved). Four themes were identified: 1) readiness and motivators (e.g. feeling well), 2) practicalities and logistics (e.g. value of core features), 3) personal impact (e.g. connection and safety) and 4) future role. An underlying theme highlighted how women strived to seek reassurance and gain confidence. Most women and nurses were positive about the ePRO pathway and would happily continue using it. Conclusion. This work provides invaluable insight into the experiences of women on remote ePRO follow-up post-treatment. Important logistic and implementation issues were identified, which will inform future large-scale work to introduce and evaluate remote ePRO methods during cancer follow-up. This work highlights the key factors influencing women’s readiness and acceptability of an ePRO pathway, and how services should be carefully designed to ensure patients feel reassured and confident post-treatment. Further, it highlights that flexibility and patient preference should be considered in remote service delivery.Trial registration: ClinicalTrials.gov ID: NCT02847715 (first registered 19/05/2016)

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 54%

“It made me feel part of the team, having my homework to do” – Women and specialist nurse experiences of remote follow up after ovarian cancer treatment: a qualitative interview study.

Kennedy

Shearsmith

Holmes

et al. 2022

Preprint

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“…Presently, the patients described the Interaktor app as providing extra support during the treatment period by having easy access to self-care advice, information, and contact with the nurse if the symptoms were severe. The results are in line with those of the recent reviews where patients with cancer experienced apps as supportive tools that complemented or extended existing health care [39,40].…”

Section: Principal Findingssupporting

confidence: 89%

Patients’ Experiences of Care With or Without the Support of an Interactive App During Neoadjuvant Chemotherapy for Breast Cancer: Interview Study

Fjell¹,

Langius‐Eklöf²,

Nilsson³

et al. 2022

JMIR Nursing

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Background Neoadjuvant chemotherapy (NACT) is often recommended for patients with breast cancer with more aggressive tumor characteristics. As with all chemotherapies, they can cause substantially disturbing symptoms. Most patients receive their treatment as outpatients, which means that they must take responsibility for self-care and management of symptoms at home for a long period. Patients with breast cancer undergoing chemotherapy may not receive sufficient support for management of treatment-related symptoms. For patients undergoing NACT, it has been concluded that information and supportive needs are not always met. In our previous study, the use of mobile health to support patients with breast cancer undergoing NACT reduced symptoms during treatment with the support of an interactive app. Therefore, it is important to investigate how patients experience their care and explore any specific contribution that the app may have brought in care. Objective This study aims to explore patients’ experiences of care with or without the support of an interactive app during NACT for breast cancer. Methods This qualitative study was part of a larger randomized controlled trial and included 40 individual face-to-face interviews conducted with patients in both intervention and control groups after the end of NACT. The interviews were audio recorded, and the data were analyzed inductively using thematic analysis. Results No major differences in experience of care were observed between the groups. A total of 4 overarching themes emerged. In the first theme, The health care context, patients described care as assessible, although sometimes there was a lack of time and continuity with nurses. In the second theme, Being a recipient of care, it emerged that the patients experienced a warm and positive atmosphere at the clinics. In the third theme, Taking an active role as a patient, patients described being active in searching for information and various ways of participation in their own care. In the fourth theme, The value of the app, patients who had used the app experienced it as a complementary source of information, creating a sense of security. Using the app provided patients with the support of being contacted by a nurse if needed, enabled self-care, and facilitated the planning of daily activities. Conclusions Overall, patients’ experiences of care were similar and mostly positive. However, for patients using the app, it provided additional support for information and self-care and enhanced participation in their own care. The easy access to a nurse gave patients a sense of security. The findings suggest integrating an interactive app as a complement to standard care to support patients with breast cancer during treatment. International Registered Report Identifier (IRRID) RR2-DOI: 10.1186/s12885-017-3450-y

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“…18 Mobile technologies can minimize the risk of exposure to COVID-19 and serve as alternative ways to communicate with the care recipient and LTC staff. 101,102 Family caregivers observe the advantages of technologies to support their roles, 99,[103][104][105][106] such as reducing caregiver stress by providing information, 99 supporting the mental and physical health of care recipients, and reducing and promoting interaction with LTC staff. 107 The demand for effective technologies to support caregivers will become more prominent.…”

Section: Accepted Manuscriptmentioning

confidence: 99%

Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility

et al. 2022

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Background: Family caregivers are unpaid individuals who provide care to people with chronic conditions or disabilities. Family caregivers generally do not have formal care-related training. However, they are an essential source of care. Mobile technologies can benefit family caregivers by strengthening communication with care staff and supporting the monitoring of care recipients. Objective: We conducted a mixed-method study to evaluate the acceptance and usability of mobile technology called the Smart Care System. Methods: Using convenience sampling, we recruited 27 family caregivers to evaluate the mobile Smart Care System. In the quantitative phase, we administered initial and exit questionnaires based on the Unified Theory of Acceptance and Use of Technology model. In the qualitative phase, we conducted focus groups to explore family caregivers’ perspectives and opinions on the usability of the mobile Smart Care System. With the quantitative data, we employed univariate, bivariate, and partial least squares analyses, and we used content analysis with the qualitative data. Results: We observed a high level of comfort using digital technologies among participants. On average, participants were caregivers for an average of 6.08 years (SD = 6.63), and their mean age was 56.65 years (SD = 11.62). We observed a high level of technology acceptance among family caregivers (7.69, SD = 2.11). Behavioral intention (β = 0.509, p-value = 0.004) and facilitating conditions (β = 0.310, p-value = 0.049) were statistically significant and related to usage behavior. In terms of qualitative results, participants reported that the mobile application supported care coordination and communication with staff and provided peace of mind to family caregivers. Conclusion: The technology showed a high technology acceptance and intention to use among family caregivers in a long-term care setting. Facilitating conditions influenced acceptance. Therefore, it would be important to identify and optimize these conditions to ensure technology uptake.

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People with cancer and their family caregivers’ personal experience of using supportive eHealth technology: A narrative review

Cited by 20 publications

References 57 publications

“It made me feel part of the team, having my homework to do” – Women and specialist nurse experiences of remote follow up after ovarian cancer treatment: a qualitative interview study.

“It made me feel part of the team, having my homework to do” – Women and specialist nurse experiences of remote follow up after ovarian cancer treatment: a qualitative interview study.

Patients’ Experiences of Care With or Without the Support of an Interactive App During Neoadjuvant Chemotherapy for Breast Cancer: Interview Study

Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility

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