People with dementia in long-term care facilities: an exploratory study of their activities and participation

Rocha, Vânia; Marques, Alda; Pinto, Margarida; Sousa, Liliana; Figueiredo, Daniela

doi:10.3109/09638288.2012.742677

Cited by 24 publications

(17 citation statements)

References 58 publications

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“…approximately three points higher than controls. 15,16 In our retrospective cohort, we found that there was a statistically significant difference in WHODAS scores between women with and without SMM. 7 However, there are still many gaps in our understanding of such results, as there is no baseline score or threshold to determine the clinical significance of these findings.…”

Section: Discussionmentioning

confidence: 71%

The impact of hypertension, hemorrhage, and other maternal morbidities on functioning in the postpartum period as assessed by the WHODAS 2.0 36-item tool

Guida

Costa

Parpinelli

et al. 2018

Int J Gynecol Obstet

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ObjectiveTo assess the scores of postpartum women using the WHO Disability Assessment Schedule 2.0 36‐item tool (WHODAS‐36), considering different morbidities.MethodsSecondary analysis of a retrospective cohort of women who delivered at a referral maternity in Brazil and were classified with and without severe maternal morbidity (SMM). WHODAS‐36 was used to assess functioning in postpartum women. Percentile distribution of total WHODAS score was compared across three groups: Percentile (P)<10, 1090. Cases of SMM were categorized and WHODAS‐36 score was assessed according to hypertension, hemorrhage, or other conditions.ResultsA total of 638 women were enrolled: 64 had mean scores below P<10 (1.09) and 66 were above P>90 (41.3). Of women scoring above P>90, those with morbidity had a higher mean score than those without (44.6% vs 36.8%, P=0.879). Women with higher WHODAS‐36 scores presented more complications during pregnancy, especially hypertension (47.0% vs 37.5%, P=0.09). Mean scores among women with any complication were higher than those with no morbidity (19.0 vs 14.2, P=0.01). WHODAS‐36 scores were higher among women with hypertensive complications (19.9 vs 16.0, P=0.004), but lower among those with hemorrhagic complications (13.8 vs 17.7, P=0.09).ConclusionsComplications during pregnancy, childbirth, and the puerperium increase long‐term WHODAS‐36 scores, demonstrating a persistent impact on functioning among women, up to 5 years postpartum.

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Section: Discussionmentioning

confidence: 71%

The impact of hypertension, hemorrhage, and other maternal morbidities on functioning in the postpartum period as assessed by the WHODAS 2.0 36-item tool

Guida

Costa

Parpinelli

et al. 2018

Int J Gynecol Obstet

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“…Problems related to daily person transfer situations (e.g. sit-to-stand transfer, bedside transfer) are the most common precipitating factors for institutionalisation among people with dementia, [2,4,5] alongside behavioural problems [6].…”

Section: Introductionmentioning

confidence: 99%

Functional behaviour analysis guided interventions might improve transfer-related behaviour in dementia care dyads: a single case study

Thunborg

Söderlund

Wågert

2019

European Journal of Physiotherapy

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Background: Impaired mobility in people with severe dementia is well known. Physical therapists play a key role in guiding professional caregivers on how to handle mobility and transfer-related problems; however, it is unknown how to handle the complexity of dementia-related impaired endurance, joint dysfunction, balance, and gait dysfunction and at the same time, take into consideration the person's decreased cognition, communication deficits, and behaviour problems. Aims and methods: The aim was to explore the effectiveness and efficiency of functional behaviour analysis (FBA) guided interventions of dyadic transfer-related behaviour in dementia care dyads. An experimental single-case research design was used. Two care dyads participated. Different methods of assessment were performed to gather the dyadic transfer-related behavioural problems. Transfers were recorded by video uptakes and to generate a hypothesis about dyadic transfer-related behavioural problems, the Dyadic Interaction in Dementia Transfer Assessment Scale (DIDTAS) was used. Results: The problematic transfer-related behaviour in care dyad 1 changed positively, as reflected by a decrease in discomfort verbally expressed by the person with dementia. A trend towards increased cooperation was observed among caregivers assisting in the transfer situation. In care dyad 2, a trend towards increased caregiver self-efficacy (SE) was observed between the baseline and completed intervention phases. The decreased resistiveness to care (RTC) exhibited by the person with dementia paralleled the increase in caregiver SE. Conclusion: Considering the findings of this explorative study, physical therapists could consider the development of tailored interventions guided by an FBA for complex dyadic transfer-related behavioural problems in dementia care dyads. ARTICLE HISTORY

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“…This may affect their ability to relate to others, which thus contributes to reduced social participation (Sorensen, Waldorff and Waldemar 2008). People with cognitive problems experience increasing difficulties with participating in community activities (Rocha et al 2013). Social participation continues to decrease as cognitive problems progress (Barberger-Gateau et al 2002; Muo et al 2005).…”

Section: Introductionmentioning

confidence: 99%

Social participation perspectives of people with cognitive problems and their care-givers: a descriptive qualitative study

et al. 2018

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The aim of this study is to explore how community-dwelling older people with cognitive problems and their care-givers (dyads) perceive their own social participation, how care-givers evaluate the social participation of the people they care for and what factors they perceive as influential. In this qualitative study, we performed 13 semi-structured, in-depth interviews with dyads who participated in the Social Fitness Programme. We used content analysis to analyse the interviews thematically. Social participation perceptions include changes over time and a discrepancy in perspectives. All the people with cognitive problems and most care-givers perceived a decreased social participation. Most people with cognitive problems answered that they were satisfied, in contrast to most care-givers who were dissatisfied with the decreased social participation of the people they cared for. Analysing the influencing factors resulted in five themes: behavioural, physical, social environmental, physical environmental and activity-related. People with cognitive problems and their care-givers displayed a discrepancy in social participation perspectives. This becomes a major dilemma, especially for younger care-givers. A key element is a sometimes deliberate choice of people with cognitive problems to refrain from social participation to protect themselves from the consequences of cognitive problems and from encounters with others. This highlights the dynamics of social participation as an interaction between personal factors and the social and physical environment in which social participation occurs.

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People with dementia in long-term care facilities: an exploratory study of their activities and participation

Cited by 24 publications

References 58 publications

The impact of hypertension, hemorrhage, and other maternal morbidities on functioning in the postpartum period as assessed by the WHODAS 2.0 36-item tool

The impact of hypertension, hemorrhage, and other maternal morbidities on functioning in the postpartum period as assessed by the WHODAS 2.0 36-item tool

Functional behaviour analysis guided interventions might improve transfer-related behaviour in dementia care dyads: a single case study

Social participation perspectives of people with cognitive problems and their care-givers: a descriptive qualitative study

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