People with Intellectual Disabilities Negotiate Autonomy, Gender and Sexuality

Björnsdóttir, Kristín; Stefánsdóttir, Ástríður; Stefánsdóttir, Guðrún V.

doi:10.1007/s11195-017-9492-x

Cited by 44 publications

(46 citation statements)

References 44 publications

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“…Most of the perceptions the healthcare professionals had about patients with ID and their network have also been demonstrated in previous studies Björnsdóttir, Stefánsdóttir, and Stefánsdóttir (2017). showed that people with ID have limited opportunities to make decisions in everyday life and are missing opportunities to develop their gender and sexual identities.…”

mentioning

confidence: 56%

A deviation too many? Healthcare professionals’ knowledge and attitudes concerning patients with intellectual disability disrupting norms regarding sexual orientation and/or gender identity

Sommarö

Andersson

Skagerström

2020

Research Intellect Disabil

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Intellectual disability (ID) is characterized by a reduction in general mental abilities such as reasoning, problem-solving, planning, abstract thinking, judgement, academic learning and learning from experience (American Psychiatric Association, 2013). In the literature on this subject, people with ID are described as socializing mainly with the primary family and are thus separated from the rest of the population. Many are reliant on family or society services, and they have limited access to information and opportunities for communication (Wilson & Frawley, 2016). Thus, they have fewer role models in the areas of sexual expression and behaviour than people without ID. Attitudes of family members and service providers are therefore assumed to be highly prescriptive (McConkey & Ryan, 2001; Swango-Wilson, 2010). Historically, two perspectives have characterized how sexuality in people with ID is viewed: they are either seen as eternal children without sexual feelings and needs, or seen as sexually promiscuous, potentially dangerous people who need to be supervised because they are unable to control themselves (McCarthy, 1999;

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mentioning

confidence: 56%

A deviation too many? Healthcare professionals’ knowledge and attitudes concerning patients with intellectual disability disrupting norms regarding sexual orientation and/or gender identity

Sommarö

Andersson

Skagerström

2020

Research Intellect Disabil

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“…Some people with ID may experience challenges in forming and expressing their sexual identity [ 29 ]. Significant barriers to this include societal perceptions of people with ID and the impact of multiple disadvantages with regard to gender, sexuality and disability [ 58 ]. The removal of barriers through the provision of training and education can play a vital role in supporting young people and adults with ID to express their sexual identity and develop fulfilling relationships [ 24 ].…”

Section: Discussionmentioning

confidence: 99%

The Design, Content and Delivery of Relationship and Sexuality Education Programmes for People with Intellectual Disabilities: A Systematic Review of the International Evidence

Brown

McCann

Truesdale

et al. 2020

IJERPH

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There is growing empirical evidence regarding the relationship and sexuality experiences and needs of children, young people and adults with intellectual disabilities. A total of twelve papers met the inclusion criteria regarding relationship and sexuality education (RSE) programmes specific to the needs of this population. The preferred reporting items for systematic reviews and meta-analyses (PRISMA) guidelines were followed and quality appraisal undertaken. The four themes identified were principles informing RSE programme development, design and content of RSE programmes, delivery of RSE programmes and evaluation of RSE programmes. The discussion presents areas that need to be addressed to ensure that people with intellectual disabilities, their families, carers and professionals are fully involved in the design and delivery of RSE programmes. Further research is required to identify the impact of the programmes and the sustained outcomes achieved. Recommendations are made regarding the activities required to enable the development of evidence-based and person-centred approaches to relationship and sexuality programmes.

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“…Innan jag går in på Sverige bör några korta rader skrivas om de andra nordiska länderna. 10 Från Sveriges grannländer Finland, Norge och Island finns studier baserade på livsberättelser från hbtq-personer med normbrytande funktionalitet (Haualand och Grønningsaeter 2013) och studier om levnadsvillkoren kring frågor om sexualitet och genus för personer med omfattande funktionsnedsättning (Vehmas 2019;Björnsdóttir et al 2017). Ett exempel på forskning om Danmark är Don Kulick och Jens Rydströms (2015) bok Loneliness and its opposite som jämför hur sexualitet och normbrytande funktionalitet behandlas på policynivå i Sverige och Danmark.…”

Section: "Väck Inte Den Björn Som Sover" Tidigare Forskning I Nordenunclassified

"Gå eller rulla – alla vill knulla!": Funktionsrättsaktivism i nyliberala landskap

Karlsson¹

2020

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People with Intellectual Disabilities Negotiate Autonomy, Gender and Sexuality

Cited by 44 publications

References 44 publications

A deviation too many? Healthcare professionals’ knowledge and attitudes concerning patients with intellectual disability disrupting norms regarding sexual orientation and/or gender identity

A deviation too many? Healthcare professionals’ knowledge and attitudes concerning patients with intellectual disability disrupting norms regarding sexual orientation and/or gender identity

The Design, Content and Delivery of Relationship and Sexuality Education Programmes for People with Intellectual Disabilities: A Systematic Review of the International Evidence

"Gå eller rulla – alla vill knulla!": Funktionsrättsaktivism i nyliberala landskap

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