2020
DOI: 10.1177/2374373520956538
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People With Lived Experience at the Centre of Canadian Stroke Best Practice Recommendations: A Model for Guideline Developers

Abstract: Actively engaging people with lived experience (PWLE) in stroke-related clinical practice guideline development has not been effectively implemented. This pilot project evaluated the feasibility, perceived value, and effectiveness of the Community Consultation and Review Panel (CCRP), a new model to engage PWLE in the writing and review of Canadian Stroke Best Practice Recommendations. Responses to a standardized evaluation tool indicated that participants perceived the CCRP as valued, impactful, effective, an… Show more

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Cited by 10 publications
(5 citation statements)
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“…A broad interdisciplinary group of experts was convened and participated in reviewing, drafting, and revising all recommendation statements, and a panel of people with lived experience participated in a parallel review process. 6 Evidence levels were assigned based on the quality of available evidence and expert opinion. These guidelines have undergone extensive internal and objective external review and consensus was achieved for all content.…”
Section: Guideline Development Methodologymentioning
confidence: 99%
“…A broad interdisciplinary group of experts was convened and participated in reviewing, drafting, and revising all recommendation statements, and a panel of people with lived experience participated in a parallel review process. 6 Evidence levels were assigned based on the quality of available evidence and expert opinion. These guidelines have undergone extensive internal and objective external review and consensus was achieved for all content.…”
Section: Guideline Development Methodologymentioning
confidence: 99%
“…78 Involving individuals with lived experience in guideline development ensures that recommendations are supported by their experiences and areas that are important to them are prioritised. 79 This also aligns with the World Health Organization's vision of centring people and communities in health services and empowering and engaging individuals and families, communities, and disadvantaged populations. 78…”
Section: Discussionmentioning
confidence: 68%
“…were not been sought. During the development of CPGs, patients and a variety of stakeholders, such as clinicians of all types, insurance payers and funders, health policy decision makers, and experts should be involved in the development of CPGs to set priorities, ensure feasibility, and promote distribution and compliance ( 6 , 40 , 41 ).…”
Section: Discussionmentioning
confidence: 99%