Abstract:The fact that every second resident with severe dementia and difficulties with verbal communication showed ELs and that this was noticed especially when care providers took outdoor walks with the residents imply that closer contact between care providers and residents with severe dementia could change the care providers' expectations and enhance communication between the parties.
“…46,47 In this study, caregivers decreased their instructions and instead continuously sang when providing morning care during MTC sessions; and consequently, the PWDs significantly increased their ability to use relevant communication and ask relevant questions. Based on these findings and other MTC study results, [16][17][18][19][20][21][22][23][24][25][26][27][28][29][30]48,49 we suggest that during MTC sessions, verbal communication and instructions that are normally referred to through speech can be excluded and instead use MTC in order to enhance communication in the encounters between the PWDs and their caregivers.…”
“…46,47 In this study, caregivers decreased their instructions and instead continuously sang when providing morning care during MTC sessions; and consequently, the PWDs significantly increased their ability to use relevant communication and ask relevant questions. Based on these findings and other MTC study results, [16][17][18][19][20][21][22][23][24][25][26][27][28][29][30]48,49 we suggest that during MTC sessions, verbal communication and instructions that are normally referred to through speech can be excluded and instead use MTC in order to enhance communication in the encounters between the PWDs and their caregivers.…”
“…A typical characteristic of dementia is that although the disease implies a degeneration of the cognitive functions, there are moments when a person with dementia functions well and can indicate their preferences for (end-of-life) care [22]. The resident with dementia should be able to express personal preferences and discuss them with a healthcare professional, who then has the responsibility to articulate their wishes and take them into account should the moment come to make a final decision about care or treatment and the resident no longer has the capacity for making choices.…”
Section: Rationale For 'We Decide -Discussing End-of-life Choices'mentioning
“…Indem sie den Blick auf denjenigen Bereich lenkt, in dem das Krankheitsgeschehen tatsächlich kaum anders denn als ein fortschreitender Verlust und Verfall von Fähigkeiten beschrieben werden kann, legt sie eine einseitig defizitorientierte Sicht der Demenz nahe, die ebenfalls mögliche positive Erfahrungen wie eine erhöh-te emotionale Sensitivität oder eine Annäherung in der Beziehung systematisch ausblendet und sich letztlich eben in der Gleichsetzung der Erkrankung mit Sterben und Tod manifestiert (Aquilina/Hughes 2006 (Kontos 2014;Kontos et al 2010). Darüber hinaus wird gerade in Fällen der Alzheimer-Demenz immer wieder von erstaunlichen luziden Episoden bis in die letzten Stadien der Krankheit berichtet, in denen die Betroffenen unvermittelt geistig sehr viel präsenter sind und mitunter sogar von ihrem Erleben der Krankheit berichten können (Normann et al 2006 (Ekman et al 1991;Hunter et al 2013). Entsprechend waren und sind Menschen mit Demenz in Pflegeeinrichtungen bis heute besonders gefährdet für Vernachlässigung und Missachtung (Kelly/Innes 2013).…”
Section: Gegen Die ‚Zombifizierung' Von Menschen Mit Demenzunclassified
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