Perceived burden among spouse, adult child, and parent caregivers

Juntunen, Kristiina; Salminen, Airi; Törmäkangas, Timo; Tillman, Päivi; Leinonen, Kirsi; Nikander, Riku

doi:10.1111/jan.13733

Cited by 32 publications

(33 citation statements)

References 46 publications

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“…Both Ransmayr et al's [46] and Lethin et al's [45] longitudinal studies and Laporte Uribe et al's cross-sectional studies [43] incorporated patient's behavioural problems such as agitation and aggression in their research, and this proved to be positively related to caregiver burden. These factors Besides behaviour, three articles, both longitudinal and cross-sectional, reported on care recipients' cognitive capacity [45,48,55]. From the research in these articles, it becomes apparent that the patient's cognitive status indeed has predictive value for caregiver burden; reduced cognitive function in the recipient leads to higher burden.…”

Section: General Stressorsmentioning

confidence: 99%

“…Five studies, both longitudinal and cross-sectional, included social support in their research [43,44,50,51,55]. It was found that a higher quality of support, both formal and informal, for the caregiver is associated with lower burden, whereas unmet needs for health and social services contribute to caregiver burden [55]. Moreover, Hsu et al's cross-sectional research [50] referred to the importance of social support aimed at the patient leading to lower caregiver burden.…”

Section: Social Support As Moderatormentioning

confidence: 99%

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Determinants of overburdening among informal carers: a systematic review

2020

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Background: The world's population is ageing, resulting in rising care demands and healthcare costs, which in turn lead to a shift from formal to informal care. However, not only is the number of potential informal carers fast decreasing, but also informal caregivers are experiencing a higher caregiver burden. This literature review aims to synthesize the literature on the common determinants of caregiver burden in Western countries, to help ensure future continuation of informal care in the home context, and to improve or sustain the quality of life of caregivers and patients alike. Method: A systematic review of peer-reviewed articles included in PubMed, Scopus, and/or PsychInfo was conducted. Results: Seventeen articles were included. The most important predictors were the duration of caregiving and the patient's dependency level, in terms of both physical and mental dependency stemming from decreased cognitive capacity or behavioural problems. Some specific illnesses and role conflicts or captivity also increased caregiver burden, whereas social support lowered it. Being a female caregiver or having an adultchild relationship led to a higher burden. Conclusions: The most important predictors of caregiver burden are the duration of caregiving and the patient's dependency level. In addition, the patient's behavioural problems and cognitive capacity determine dependency level, and thus care burden. Interventions to relieve burden need to be adapted to the illness trajectory of specific diseases and corresponding needs for social support for both the recipient and the caregiver. Changing role expectations, leading to men being more involved, could reduce the disproportionately high burden for women.

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Section: General Stressorsmentioning

confidence: 99%

Section: Social Support As Moderatormentioning

confidence: 99%

Determinants of overburdening among informal carers: a systematic review

2020

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“…76 Despite the many benefits of older adults living at home, the caregivers often feel burdened by their many responsibilities and the added stress of taking care of a loved one. [77][78][79][80] A recent systematic review indicated that when older, community-dwelling adults present with swallowing difficulties, caregivers share this burden. 81 More specifically, spouses of older adults with dysphagia tend to suffer from emotional burden, while adult, child caregivers of aging parents have cited feeling both emotional and physical burden.…”

Section: Clinical Swallow Examinationmentioning

confidence: 99%

Presbyphagia to Dysphagia: Multiple Perspectives and Strategies for Quality Care of Older Adults

Namasivayam-MacDonald

Riquelme

2019

Semin Speech Lang

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The aging population is rapidly growing, requiring speech–language pathologists to better manage a caseload that includes older adults who have a variety of needs. The purpose of this review is to summarize and discuss the current available evidence that will allow speech–language pathologists to make informed clinical decisions when working with older adults. To facilitate this, this article first establishes an understanding of both normal and disordered swallowing physiology in older adults, including how to differentiate between functional changes to swallowing (presbyphagia) and dysphagia. Other important factors to consider, such as caregiver burden, are also discussed so that clinicians can learn how to best support aging in place. Best practices for screening both community-dwelling older adults and residents of long-term care are identified as part of a framework introduced to guide decision making. The critical components of clinical swallow assessments are reviewed, including the adoption of an ethnographic approach and why nutritional status, urinary tract infections, and delirium are important considerations when working with older adults. Factors contributing to, and associated with, aspiration and aspiration pneumonia are also discussed so that clinicians better understand how to take a comprehensive approach to care, as well as consider the impact and influence of a temporary dysphagia versus a more chronic presentation. Finally, the evidence for management of dysphagia in this specialized population is reviewed, highlighting the importance of identifying physiological deficits, feedback, and taking a multidisciplinary approach to care.

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“…One of the factors that influence the caregiving burden is stress (12). Another factor associated with the caregiving burden was the quality of social support (13). The higher quality of social support received the result in the lower caregiving burden (13).…”

Section: Caregiving Burdenmentioning

confidence: 99%

“…Another factor associated with the caregiving burden was the quality of social support (13). The higher quality of social support received the result in the lower caregiving burden (13). Another factor associated with the caregiving burden is the spirituality of caregivers.…”

Section: Caregiving Burdenmentioning

confidence: 99%

The Relationship Between Social Support, Spirituality With Stress Towards the Burden of Family Caregivers of Cancer Patients: A Literature Review

Rahayu

Yona

2019

IJNHS

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Cancer is a non-communicable disease that causes the second-highest death in the world. The study aimed to examine the relationship between social supports, spirituality with stress towards the burden of family caregivers of cancer patients. We searched literature from various relevant sources such as Ebsco, Science Direct, PubMed, and BMC Medicine, which published from 2012 to 2018. The results showed that social support reduced the stress of family caregivers. Spirituality could be as the coping for the family caregivers in dealing with stress. The factors associated with the high burden of family caregivers of cancer patients included age, cognitive as well as the family caregivers characteristics’. Further studies need to conduct spiritual and social support intervention to examine the effect of the intervention on health outcomes. Keyword: social support, spirituality, stress, caregiving burden, family caregivers of cancer patients. .

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Perceived burden among spouse, adult child, and parent caregivers

Cited by 32 publications

References 46 publications

Determinants of overburdening among informal carers: a systematic review

Determinants of overburdening among informal carers: a systematic review

Presbyphagia to Dysphagia: Multiple Perspectives and Strategies for Quality Care of Older Adults

The Relationship Between Social Support, Spirituality With Stress Towards the Burden of Family Caregivers of Cancer Patients: A Literature Review

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