Perceived changes in well-being of parents with a child in a therapeutic toddler class☆

Hendriks, A.H.C.; Moor, J.M.H. de; Oud, Johan H. L.; Savelberg, M.M.H.W.

doi:10.1016/s0891-4222(00)00058-5

Cited by 16 publications

(11 citation statements)

References 16 publications

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“…After the intervention, their perceived knowledge had increased and their stress due to incompetence had decreased. Also Hendriks et al (2000) found positive effects among fathers, related to their having gained more insights about their child's ability, and feeling less all on their own in their life‐situation. In the present study, the fathers experienced lower support from their spouse after 6 months and poorer health after intervention.…”

Section: Discussionmentioning

confidence: 96%

“…It is possible that the mothers would benefit more from other kinds of interventions, for example, by longer time for supportive reflection and time to relax. Hendriks et al (2000) found that a longer time of support directed towards the children, providing time for the mothers’ relaxation as well as for social and physical activities, decreased the mothers’ strain (Hendriks et al. 2000).…”

Section: Discussionmentioning

confidence: 99%

“…After the intervention, their perceived knowledge had increased and their stress due to incompetence had decreased. Also Hendriks et al (2000) found positive effects among Table 5 Multivariate stepwise linear regression analyses of the influence of stress and supportive factor predictors on overall life satisfaction among mothers and fathers of a child with rare disease before (T1) and after (T2) intervention. Factors with P < 0AE05 kept in the model T1 T2 T1 T2 Betacoefficient…”

Section: Stress and Well-being Among Fathersmentioning

confidence: 99%

See 2 more Smart Citations

Stress and well‐being among parents of children with rare diseases: a prospective intervention study

Dellve¹,

Samuelsson²,

Tallborn³

et al. 2006

Journal of Advanced Nursing

207

149

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Section: Discussionmentioning

confidence: 96%

Section: Discussionmentioning

confidence: 99%

Section: Stress and Well-being Among Fathersmentioning

confidence: 99%

See 1 more Smart Citation

Stress and well‐being among parents of children with rare diseases: a prospective intervention study

Dellve¹,

Samuelsson²,

Tallborn³

et al. 2006

Journal of Advanced Nursing

207

149

View full text Add to dashboard Cite

show abstract

“…For example, given the positive influence of support-seeking on social relationship in the sample, interventions aimed at enhancing the family’s potential for social development can be provided. Previous studies found that a program combining parent education to build competence about aspects of the child’s condition with a children’s program [31], or a longer time of support directed toward the sick children [42] improved mothers’ well-being by providing time for relaxation as well as for social and physical activities. The findings also suggest that clinicians should pay more attention to the manner in which information is provided because certain groups (e.g.…”

Section: Discussionmentioning

confidence: 99%

The report of coping strategies and psychosocial adjustment in Korean mothers of children with cancer

et al. 2008

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“…While multiple studies have documented elevated stress among parents of children with disabilities [19][20][21][22][23][24], parents also report a high level of satisfaction with their role [25] and when asked, focus more on the benefits of caregiving [26].…”

Section: Literature Reviewmentioning

confidence: 99%

Rewards of Parenting a Child with a Fetal Alcohol Spectrum Disorder

Brown¹,

Rodger²,

George³

et al. 2008

TOFAMSJ

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There is a considerable amount of research on the challenges associated with parenting children who have disabilities, and little that focuses on positive aspects. The purpose of the study was to describe the rewards of parents of children with a fetal alcohol spectrum disorder (FASD). Nineteen birth, foster or adoptive parents were asked to answer the following question: "What are the rewards of parenting a child with a FASD?" The data were analyzed using multidimensional scaling and cluster analysis. Four clusters resulted. Parents indicated that they saw the children's effort, growth, and accomplishment in a variety of domains as encouraging. Parents also reported feeling appreciated by the children. Results suggest that rewarding parenting experiences with children who have alcohol-related disabilities are multiple, diverse and, when compared to the literature, largely consistent. The results lend credibility to the existing literature on the rewards of parenting children with developmental disabilities, and FASD in particular.Keywords: Fetal alcohol spectrum disorder, parenting, rewards.Prenatal alcohol exposure on the developing fetus can result in multiple lifelong effects [1]. These effects vary with amount, duration and timing of alcohol consumption, the general health of the mother, as well as genetic factors [2][3]. Fetal alcohol syndrome (FAS) is characterized by craniofacial abnormalities, prenatal and/or postnatal growth restriction, and central nervous system impairment [4]. Fetal alcohol spectrum disorder (FASD) is an umbrella term that encompasses the complete spectrum of effects resulting from alcohol use during pregnancy [2,5,6]. FASD includes a range of diagnostic terms from FAS, to categories that include some of the features such as fetal alcohol effects, prenatal alcohol effects, partial fetal alcohol syndrome, alcohol related birth defects (ARBD) and alcohol related neurodevelopmental disorder [7][8][9].A range of factors influences the ascertainment and diagnosis of FASD, and therefore its frequency has been difficult to determine [10]. Estimated prevalence of FAS in the United States ranges between 0.5 -2 per 1000 live births and the rate of FASD between 9-10 per 1000 live births [10,11]. It has been estimated that the total of people with FASD in the United States exceeds 2.6 million [12]. Although Canadian studies have estimated the prevalence of FASD in small populations, there are currently no national data [5].Children with an FASD diagnosis may experience medical complications related to hearing, speech and vision [3]. In addition, neurodevelopmental delays, most commonly in the forms of intellectual and attention-related disabilities [13][14][15], are present. In addition to these primary disabilities, children with FASD are also at high risk for the development of secondary disabilities. Secondary disabilities are those that a person is not born with and could potentially be ameliorated through intervention [16]. Streissguth and colleagues *Address correspondence to th...

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Perceived changes in well-being of parents with a child in a therapeutic toddler class☆

Cited by 16 publications

References 16 publications

Stress and well‐being among parents of children with rare diseases: a prospective intervention study

Stress and well‐being among parents of children with rare diseases: a prospective intervention study

The report of coping strategies and psychosocial adjustment in Korean mothers of children with cancer

Rewards of Parenting a Child with a Fetal Alcohol Spectrum Disorder

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