Perceived control and recovery from functional limitations: Preliminary evaluation of a workbook‐based intervention for discharged stroke patients

Frank, Gisela; Johnston, Marie; Morrison, Val; Pollard, Beth; MacWalter, Ron

doi:10.1348/135910700169017

Cited by 30 publications

(37 citation statements)

References 13 publications

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“…Providing patients, and their families and caregivers, with accurate and suitable information is an important component of direct care. Actively involving patients and their families by ensuring they receive and understand information about their condition including treatment has been shown to improve quality of life significantly when compared with patients who did not actively receive this information [14][15][16][17]. The Royal Children's Hospital (Melbourne, Australia) developed a policy that defines patient and family-centered care, including sharing of information, involving the patient and family in decision making, and sharing the provision of care.…”

Section: Direct Carementioning

confidence: 99%

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Prior¹,

Campbell²

2018

J Participat Med

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The involvement of patients and their families in the redesign of healthcare services is an important option in providing a service that addresses the patients' needs and improves health outcomes. However, it is a resource-intensive approach, and it is currently not clear when it should be used, and what should be the reasoning behind this decision. Some health systems of international standing have created a patient engagement program as a selling point. This paper discusses how co-led redesign can be beneficial in improving health service and more effectively engaging patients. Potential barriers for patient involvement are discussed. Patient involvement can be integrated into the health system at three main levels of engagement: direct care, organizational design and governance, and policy-making. The aim of this paper is to describe how co-led redesign is compatible with different levels of patient involvement and to address the challenges in delivering a co-led redesign in healthcare. Co-led redesign not only involves the collection of quantitative data for assessing the current systems but also the collection of qualitative data through patient, family, and staff interviews to determine the barriers to patient satisfaction. Co-led redesign is a resource-rich process that requires expertise in data collection and a clinical group that is devoted to implementing recommended changes. Currently, a number of countries have utilized co-led redesign for many different types of healthcare services. Resource availability and cost, process time, and lack of outcome measures are three major limiting factors.

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Section: Direct Carementioning

confidence: 99%

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Prior¹,

Campbell²

2018

J Participat Med

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“…The most common theoretical rationale for interventions was self-efficacy theory which was cited in nine studies [53,54,[57][58][59][60]66,68,69,71,74]. Other theoretical rationales included control cognitions theory (two studies) [62,67], Wagner's chronic care model (two studies) [55,56] and the psychosocial model (one study) [63]. Eight studies did not state any theoretical rationale for their intervention [64,65,70,73,75,[77][78][79].…”

Section: Intervention Characteristicsmentioning

confidence: 99%

“…The majority of studies (14 out of 24) delivered general self-management interventions which focused upon teaching stroke survivors multiple skills such as coping, planning and goalsetting to improve general quality of life [57,[60][61][62][63][66][67][68][69][70][71]74,77,79]. Five of the 24 selfmanagement interventions identified were occupational therapy-based interventions which focused upon stroke survivors regaining the skills to perform activities of daily living [58,59,64,65,72,75,76].…”

Section: Intervention Characteristicsmentioning

confidence: 99%

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Post-stroke self-management interventions: a systematic review of effectiveness and investigation of the inclusion of stroke survivors with aphasia

Wray

Clarke

Forster

2017

Disability and Rehabilitation

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Robust conclusions regarding the effectiveness of poststroke self-management approaches could not be drawn. Further trials are needed, these should clearly report the population included. Implications for rehabilitation There is a lack of evidence to demonstrate the effectiveness of self-management approaches for stroke survivors. It is unclear whether self-management approaches are suitable for stroke survivors with aphasia, particularly those with moderate or severe aphasia. Further research is needed to understand the optimal timing for self-management in the stroke pathway and the format in which self-management support should be offered.

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“…21,28 This suggests that information sessions should be conducted, where possible, with both the client and carer together or in small groups, but one-on-one sessions with the health professional should be offered as appropriate for the content being discussed or to accommodate variation in clients' and carers' preferences. 29,30 Studies of educational interventions for people living in the community after stroke have evaluated the effectiveness of providing the information in participants' homes, 31,32 at community-based centres, [33][34][35][36] and over the telephone. 37 Even though there can be some restrictions to providing information via the telephone (such as limited use of nonverbal cues), clients with stroke and their carers have reported a desire to receive 29 and satisfaction with receiving 38 telephone support when it is a supplement to or follow-up component of face-to-face information provision.…”

Section: Format Of Information Provisionmentioning

confidence: 99%

Community-Based Stroke Information for Clients with Stroke and Their Carers: Is There Congruency Between Actual and Recommended Practice?

Eames

Hoffmann

McKenna

et al. 2008

Topics in Stroke Rehabilitation

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Stroke is a leading cause of death and disability in the Western world, 1-3 with up to two thirds of stroke survivors living with some level of disability. 1,4 The provision of information is recognised as a key feature of poststroke management for clients with stroke, their carers, and their families, [5][6][7] and it can improve client and carer knowledge, reduce client depression, and increase some aspects of client satisfaction. 8 However, details of postdischarge information provision for community-dwelling stroke clients and their carers have received little attention in the literature. This article begins with a discussion of the recommendations from the literature regarding the content, format, delivery style, and timing components of information provision about stroke. Where stroke-specific recommendations do not exist in the literature, general health education recommendations are provided. A study that explored the way in which services provide information to community-based clients with stroke and/or their carers is then described and the literature recommendations are subsequently compared to the results of the study.Purpose: Information provision is an integral part of poststroke care, and there is a need to identify how to provide it most effectively. Intervention details, such as content, delivery style, format, and timing, are infrequently reported in the literature. This project describes in detail the provision of information to clients with stroke and their carers by community services in Brisbane, Australia, and compares these to current recommendations in the literature. Method: Fifty-seven metropolitan-based community services were surveyed regarding the content, delivery style, format, and timing of information available to clients with stroke and their carers, using a telephone-administered questionnaire designed for this study. Results: Services provided information using a range of formats and delivery styles. The most frequently provided topics were information on services and benefits available and practical management strategies. Less than 75% of services provided written information to most of their clients and/or carers. Less than 40% of services considered client and carer input when designing written information materials. Conclusion: Community services surveyed in this study demonstrated congruency with some, but not all, of the current content, format, and delivery style recommendations in the literature. Areas for improvement are discussed. Key words: cerebrovascular accident, consumer health information, health education, patient education, stroke, teaching Content of Information ProvisionAs clients with stroke transition from inpatient care to the early post hospital-discharge phase, their need, and that of their carers, for clinical 15-18 A fear of recurrence of stroke and the subsequent need for information regarding secondary prevention is particularly strong for community-based clients with stroke and their carers. 10,11,14,15,17,18 Therefore, information about a wide r...

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Perceived control and recovery from functional limitations: Preliminary evaluation of a workbook‐based intervention for discharged stroke patients

Cited by 30 publications

References 13 publications

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Patient and Family Involvement: A Discussion of Co-Led Redesign of Healthcare Services

Post-stroke self-management interventions: a systematic review of effectiveness and investigation of the inclusion of stroke survivors with aphasia

Community-Based Stroke Information for Clients with Stroke and Their Carers: Is There Congruency Between Actual and Recommended Practice?

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