Perceived Impact of the Namaste Care Family Program on People with Advanced Dementia, Nursing Staff, and Family Caregivers: A Qualitative Study

Smaling, Hanneke J A; Joling, Karlijn J.; Doncker, Sarah M M M; Achterberg, Wilco P.; Steen, Jenny van der

doi:10.1016/j.jamda.2019.01.109

Cited by 4 publications

(3 citation statements)

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“…In Fig. 1 Cost-effectiveness planes and cost-effectiveness acceptability curves the current study the burden on family caregivers was not increased [38].…”

Section: Interpretation Of Findings and Comparison With Literaturementioning

confidence: 56%

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Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial

Alili

Smaling

Joling

et al. 2020

BMC Health Serv Res

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Background: Dementia is a progressive disease that decreases quality of life of persons with dementia and is associated with high societal costs. The burden of caring for persons with dementia also decreases the quality of life of family caregivers. The objective of this study was to assess the societal cost-effectiveness of Namaste Care Family program in comparison with usual care in nursing home residents with advanced dementia. Methods: Nursing homes were randomized to either Namaste Care Family program or usual care. Outcome measures of the cluster-randomized trial in 231 residents included Quality of Life in Late-Stage Dementia (QUALID) and the Gain in Alzheimer Care Instrument (GAIN) for family caregivers over 12 months of follow-up. Health states were measured using the EQ-5D-3L questionnaire which were translated into utilities. QALYs were calculated by multiplying the amount of time a participant spent in a specific health state with the utility score associated with that health state. Healthcare utilization costs were estimated using standard unit costs, while intervention costs were estimated using a bottom-up approach. Missing cost and effect data were imputed using multiple imputation. Bootstrapped multilevel models were used after multiple imputation. Cost-effectiveness acceptability curves were estimated.

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“…In Fig. 1 Cost-effectiveness planes and cost-effectiveness acceptability curves the current study the burden on family caregivers was not increased [38].…”

Section: Interpretation Of Findings and Comparison With Literaturementioning

confidence: 56%

“…However, it can also decrease burden and provide positive experiences for family caregivers. In the current study the burden on family caregivers was not increased [ 38 ].…”

Section: Discussionmentioning

confidence: 96%

Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial

Alili

Smaling

Joling

et al. 2020

BMC Health Serv Res

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“…There is an increasing body of research into the positive effects of Namaste Care on nursing home residents with dementia, nursing staff, and family carers, [13][14][15][16] its costs, [16][17][18] and the mechanisms of the programme. [19][20][21] Initial realist explanatory theories investigating if, how and under which circumstances Namaste Care works in the home setting suggest that the programme may also have positive effects on people with dementia and their carers living in the community.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Evaluating the feasibility, experiences, facilitators of and barriers to carers and volunteers delivering Namaste Care to people with dementia in their own home: a qualitative interview study in the UK and the Netherlands

et al. 2022

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ObjectivesTo evaluate the feasibility, facilitators of and barriers to delivering Namaste Care by volunteers and family carers to community-dwelling people with dementia, and to map family carers and volunteers’ experiences with the programme.DesignQualitative interview study with two phases: (1) preparation phase; (2) pilot phase.SettingPrivate residences of community-dwelling people with dementia in the UK and the Netherlands.ParticipantsFamily carers and volunteers of community-dwelling people with dementia (phase 1: 36 Dutch interviews, phase 2: 9 Dutch and 16 UK interviews).InterventionNamaste Care is a multicomponent psychosocial programme, originally developed for people with dementia residing in long-term care facilities. Meaningful activities were offered by carers and volunteers. Each person with dementia was offered 10 one-hour sessions.ResultsPhase 1: Namaste Care was deemed feasible for community-dwelling people with dementia and no major adaptations to the programme were considered necessary. Phase 2: perceived effects of Namaste Care on people with dementia included improved mood and increased interaction. The programme appeared enriching for both family carers and volunteers, providing joy, respite from care and new insights for coping with challenging behaviour. A flexible attitude of the Namaste provider facilitated its delivery. High caregiver burden and a strained relationship between the family carer and person with dementia were considered barriers. Experiences of family carers and volunteers with Namaste Care were very positive (mean satisfaction rating: 8.7 out of 10, SD=0.9, range 7–10).ConclusionWe recommend offering Namaste Care delivered by volunteers, preferably multiple sessions per week of 1.5–2 hours to optimise quality of life of community-dwelling people with dementia. Working with well-matched, flexible Namaste providers is pivotal. Family involvement should be encouraged, although the extent should be adapted depending on preference, caregiver burden and the relationship between the family carer and the person with dementia.Trial registration numberNL5570

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Family involvement in the Namaste care family program for dementia: A qualitative study on experiences of family, nursing home staff, and volunteers

Tasseron-Dries¹,

Smaling²,

Doncker³

et al. 2021

International Journal of Nursing Studies

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Perceived Impact of the Namaste Care Family Program on People with Advanced Dementia, Nursing Staff, and Family Caregivers: A Qualitative Study

Cited by 4 publications

References 0 publications

Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial

Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial

Evaluating the feasibility, experiences, facilitators of and barriers to carers and volunteers delivering Namaste Care to people with dementia in their own home: a qualitative interview study in the UK and the Netherlands

Family involvement in the Namaste care family program for dementia: A qualitative study on experiences of family, nursing home staff, and volunteers

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