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Background: Research has highlighted a relationship between autistic motherhood and autistic burnout, though autistic mothers' experiences of autistic burnout have not been explored in depth. Method:To address this research gap, we used a participatory approach, and a qualitative methodology with the aim of understanding: (1) how autistic mothers experience autistic burnout in relation to their parenting role, and ( 2) what support they need to prevent and recover from this. We recruited thirteen autistic mothers via social media to participate in an online semi-structured interview. We analysed these interviews using inductive reflexive thematic analysis. Results:We developed four main themes. Theme one, "Depletion", focuses on the contributory factors to autistic burnout. Theme two, "You have to just get up and keep going", demonstrates how autistic mothers continued to care for and maintain their relationships with their children whilst experiencing autistic burnout. Theme three, "New realisations", reveals how autistic burnout impacted on autistic mothers' selfunderstanding and self-awareness. Theme four, "We need support too", discusses the availability and accessibility of support for autistic mothers and their subsequent experiences of this. Findings highlight that autistic mothers' difficulties associated with their autistic burnout are compounded by a lack of autism acceptance and understanding from others, though they felt that burnout did not impact their parenting capacity. Conclusions:We provide several recommendations to improve outcomes for autistic mothers, including a need for increased autistic-led training for professionals, and for the development of formal, autistic-led peer support services and community groups.
Background: Research has highlighted a relationship between autistic motherhood and autistic burnout, though autistic mothers' experiences of autistic burnout have not been explored in depth. Method:To address this research gap, we used a participatory approach, and a qualitative methodology with the aim of understanding: (1) how autistic mothers experience autistic burnout in relation to their parenting role, and ( 2) what support they need to prevent and recover from this. We recruited thirteen autistic mothers via social media to participate in an online semi-structured interview. We analysed these interviews using inductive reflexive thematic analysis. Results:We developed four main themes. Theme one, "Depletion", focuses on the contributory factors to autistic burnout. Theme two, "You have to just get up and keep going", demonstrates how autistic mothers continued to care for and maintain their relationships with their children whilst experiencing autistic burnout. Theme three, "New realisations", reveals how autistic burnout impacted on autistic mothers' selfunderstanding and self-awareness. Theme four, "We need support too", discusses the availability and accessibility of support for autistic mothers and their subsequent experiences of this. Findings highlight that autistic mothers' difficulties associated with their autistic burnout are compounded by a lack of autism acceptance and understanding from others, though they felt that burnout did not impact their parenting capacity. Conclusions:We provide several recommendations to improve outcomes for autistic mothers, including a need for increased autistic-led training for professionals, and for the development of formal, autistic-led peer support services and community groups.
Purpose Distinguishing between autism characteristics and trauma-related symptoms may be clinically challenging, particularly in individuals who have experienced early traumatisation. Previous studies have described a risk that trauma-related symptoms are misinterpreted and/or misattributed to autism. This study aims to describe and explore assessment strategies to distinguish autism and early traumatisation in the case of a young woman with mild intellectual disability. Design/methodology/approach A clinical case study outlining assessment strategies, diagnostic decision-making and initial intervention. Findings A multi-informant interdisciplinary assessment using multiple assessment tools, together with a comprehensive review of records from previous assessments and contacts with various services, was helpful in distinguishing between autism and trauma. This included specific assessment tools for autism and trauma. Autism characteristics and trauma-related symptoms appeared to interact, not merely co-occur. Originality/value The current case demonstrates that diagnostic overshadowing may occur for autism in the context of early trauma. The case further highlights the importance of not ascribing trauma-related symptoms to autism, as service provision and treatment need to take account of both. Overlooking autism in individuals who have experienced early traumatisation may result in a risk that intervention and care are not appropriately adapted, which may involve a risk of exacerbating trauma symptoms.
Autistic people and those with attention deficit hyperactivity disorder are at a high risk of developing an eating disorder. While there is limited evidence on the relationship between other forms of neurodivergence and eating disorders, research suggests associations between giftedness, intellectual disability, obsessive–compulsive disorder, psychosis, Tourette’s syndrome, and disordered eating. Factors underlying disordered eating and/or eating disorder risk for neurodivergent people are multifaceted and complex, encompassing a wide range of intertwined psychosocial, environmental, and biological processes. Moreover, research shows that neurodivergent individuals experience poorer treatment outcomes compared to neurotypical individuals. However, there is a paucity of research in this area overall. More specifically, lived experience-led research remains rare, despite its critical role for improving individualised eating disorder care, as well as mental healthcare more broadly. Indeed, the importance of eating disorder care individuation is increasingly being recognised, particularly within the context of neurodivergence, given the heterogeneous experiences and support needs of neurodivergent people affected by disordered eating and/or eating disorders. Furthermore, despite documented overlaps between various forms of neurodivergence (e.g., co-occurring autism and attention deficit hyperactivity disorder), research looking at eating disorders in the context of neurodivergence through a transdiagnostic perspective is scarce. This lived experience-led narrative review aims to shed light on the intersectional factors underlying elevated disordered eating and/or eating disorder risk for neurodivergent individuals. First, an overview of prevalence data is provided, followed by a thematic framework identifying factors underlying disordered eating and/or eating disorder risk in relation to neurodivergence. A critical appraisal of current eating disorder research and care is then offered before suggestions for neurodiversity-affirming eating disorder care are made. In this view, this paper offers a foundation for future empirical work in this nascent field of inquiry by providing a lived experience-led, transdiagnostic, and intersectional account of eating disorders in the context of neurodivergence.
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