Perceived needs of women diagnosed with breast cancer: rural versus urban location

Girgis, Afaf; Boyes, Allison; Sanson‐Fisher, Rob; Burrows, Sally

doi:10.1111/j.1467-842x.2000.tb00137.x

Cited by 193 publications

(201 citation statements)

References 26 publications

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“…The Supportive Care Needs Survey Short Form (SCNS-SF34) assessed supportive care needs across five domains: physical/daily living (5 items), psychological (5 items), patient care and support (10 items), sexuality (3 items) and health system and information needs (11 items). The SCNS-SF34 is a validated assessment of supportive care needs and has been used extensively to assess supportive care needs in cancer populations [3] and has been shown to be psychometrically sound [1,8]. In the present study, Cronbach's alpha demonstrated good internal consistency for all five domains ranging from a 5 0.87 to a 5 0.96.…”

Section: Predictor Variablesmentioning

confidence: 49%

“…To date, younger age [7][8][9][10][11], living in rural areas [8,12], later stage disease [7,12,13], type of cancer treatment [8,9,12], time since diagnosis [11,14] and physical or mental quality of life [13,15] have been associated with greater unmet needs. However, while these predictors provide some insight into the patients at risk of higher unmet supportive care needs, many of these factors are not amenable to change and so cannot be targeted by support interventions.…”

mentioning

confidence: 99%

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Predictors of change in unmet supportive care needs in cancer

et al. 2010

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Objective: Patient Reported Outcome (PRO) assessments can assist health professionals to tailor their health practices to the individual needs of patients and improve patient care over time. The present study assessed prospective predictors of unmet supportive care needs in cancer patients over a six-month period.Methods: Participants were recruited from a regional cancer treatment centre in Australia and completed the Supportive Care Needs Survey (SCNS) at recruitment (n 5 439; 61.4% response rate) and six months follow-up (n 5 396). Hierarchical logistic regression was used to identify predictors of change in unmet needs across each supportive care domain. Predictor variables were socio-demographic, treatment and psychosocial factors including depression, anxiety, social support, and patient satisfaction.Results: Unmet needs were reported by approximately two-thirds of patients at baseline and half of patients at six months follow-up. Having unmet needs at baseline was the strongest predictor of unmet needs at six months. Longer time since diagnosis was a consistent predictor of greater unmet needs, associated with change in physical/daily living, psychological and health system and information unmet needs over time. By contrast, a complex relationship was found in that patient satisfaction, psychosocial and treatment characteristics predicted higher needs in some domains and lower needs in others.Conclusions: Unmet supportive care needs persist over time and psychological needs may emerge later in the illness continuum. Interventions to meet the needs of longer term cancer survivors are needed and should closely articulate with reported supportive care needs.

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Section: Predictor Variablesmentioning

confidence: 49%

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confidence: 99%

Predictors of change in unmet supportive care needs in cancer

et al. 2010

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“…There were 11 quantitative studies with a control group [15][16][17][18][19][20][21][22][23][24][25]. Three addressed emotional issues, one travel issues and the remainder the general needs and quality of life of cancer survivors.…”

Section: Quantitative Studies With Control Groupsmentioning

confidence: 99%

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

Butow

Phillips

Schweder

et al. 2011

Support Care Cancer

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PurposeTo describe what is known about levels of morbidity and the experience and needs of people with cancer, and their carers, living in rural areas. MethodsA search of online databases for English language papers describing or assessing the prevalence of psychosocial morbidity or needs in a population of rural or regional cancer patients. Excluded: intervention studies, discussion of service delivery, effectiveness of support groups or support via videoconferencing, concentrated on medical outcomes or survival rates, reported differences in the uptake of cancer screening, or concentrated on health attitudes or treatment decision making. ResultsThere were 37 studies included in the review, including 25 quantitative studies (all surveys), 11 of which included a control group of urban patients, and 12 qualitative studies. Until recently, most studies had methodological short-comings. Only two prospective studies were identified, most studies focused on breast cancer and few addressed psychological morbidity. The majority of controlled studies reported worse 3 outcomes for rural patients, who appear to have higher needs in the domains of physical/daily living. This may reflect more limited access to resources, a more selfsufficient lifestyle and personal characteristics, for example, being more stoical and less likely to ask for help. The need to travel for treatment caused many practical, emotional and financial problems for patients and burdened them with additional worry concerning family and work commitments. Some patients reported benefits in sharing experiences with others also forced to stay away from home, but most agreed that staying at home was preferable. ConclusionThis review highlights that whilst we are beginning to get some insight into the needs of people with cancer in rural areas, much is still unknown. Population-based, prospective studies including people with heterogenous cancers from rural and urban settings are needed.

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“…In a sample of 223 women who were treated for early-stage breast cancer within the prior year, 34 the most frequent concerns were fear of cancer recurrence, pain, death, harm from adjuvant treatment, and medical bills. In a sample of 231 breast cancer survivors 35 (note that most had been diagnosed 3-5 yrs earlier), 48% reported moderate-to-high unmet needs for information on dealing with fears about cancer recurrence, the most frequently endorsed unmet need among 52 rated information needs. Younger patients with breast cancer reported greater information needs in the psychological arena than older women.…”

Section: Table 1 Myths Of Treatment Completionmentioning

confidence: 99%

Promoting adjustment after treatment for cancer

Stanton

Ganz

Rowland

et al. 2005

Cancer

183

157

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The transition from the period of diagnosis and medical treatment of cancer to survivorship (i.e., the reentry phase) is an understudied phase in the cancer trajectory. The objectives of this report were 1) to illustrate several adaptive tasks of the reentry phase, 2) to provide examples of research on factors that predict positive adjustment during this phase, and 3) to discuss interventions that address the adaptive tasks of early cancer survivorship. Although the pertinent empirical literature is scarce, accounts from cancer survivors, healthcare professionals, and qualitative researchers converge to suggest several themes in adaptive tasks during reentry. Drawing from the authors' work and that of others, the authors have described common expectancies held by many individuals approaching reentry (e.g., "I shouldn't need support"), typical concerns during this phase (e.g., concern over cancer recurrence), and personal and contextual factors that can facilitate and

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Perceived needs of women diagnosed with breast cancer: rural versus urban location

Cited by 193 publications

References 26 publications

Predictors of change in unmet supportive care needs in cancer

Predictors of change in unmet supportive care needs in cancer

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

Promoting adjustment after treatment for cancer

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