Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder

Hamama, Liat

doi:10.1007/s10803-022-05857-9

Cited by 4 publications

(4 citation statements)

References 89 publications

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“…One-sample t -tests revealed that, when compared to Israeli mothers of children with autism spectrum disorder (ages 3–17; M = 10.98, SD = 4.28), parents in the current sample perceived significantly lower social support from friends. However, there were no differences in PSS from family members or significant others ( Hamama, 2023 ). Conversely, parents in the current sample reported significantly higher levels of satisfaction with life than did Israeli mothers of children with neurodevelopmental disorders (ages 3–17; M = 12.08, SD = 3.39) ( Hamama, 2022 ).…”

Section: Resultsmentioning

confidence: 85%

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Hamama,

Hamama-Raz,

Lebowitz-Sokolover

et al. 2024

Front. Psychol.

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BackgroundIn 2021, the annual rate of pediatric-onset multiple sclerosis (POMS) in Israel among children was 1.5, and 4.5% among youth aged 14–18, out of a total of 5,000 multiple sclerosis cases nationwide. Children diagnosed with POMS often display various deficiencies across psychological, cognitive, sensory, and physical areas. As such, POMS poses significant challenges for parents’ well-being, with heightened emotional, financial, and physical strains linked to both the immediate and long-term care requirements of their children. In this preliminary study, we examined changes over three time-points in two measures of well-being: satisfaction with life and psychological distress. In addition, the role of perceived social support (PSS) and coping flexibility was examined through a multilevel causal mediation model which suggested that PSS 1 month post-diagnosis would predict coping flexibility at 6 months post-diagnosis, which in turn would predict parents’ life satisfaction and psychological distress at 12 months post-diagnosis.MethodsThe research was conducted at a tertiary university-affiliated children’s hospital in central Israel. Preliminary data were obtained from 36 parents at three times-points. Participants provided demographic information and filled out the following standardized self-report questionnaires: the Diener’s Satisfaction with Life Scale, Kessler’s inventory for measuring psychological distress (K6), the Multidimensional Scale of Perceived Social Support (MSPSS), and the Perceived Ability to Cope with Trauma Scale (PACT) for measuring coping flexibility.ResultsOver time (12 months), parents reported stable levels of PSS, coping flexibility, satisfaction with life, and psychological distress. In addition, mothers reported significantly greater PSS from friends than did fathers. Regarding the causal mediation model, greater PSS from friends at T1 was significantly associated with an increase in coping flexibility from T1 to T2. In turn, an increase in coping flexibility was associated with a decrease in psychological distress from T1 to T3 (after controlling for PSS). Yet the causal mediation path via coping flexibility to satisfaction with life was not significant.ConclusionThis preliminary study emphasizes the important role of both PSS and coping flexibility for the well-being of parents whose children are affected by POMS, a subject that merits heightened consideration among healthcare professionals dealing with long-term chronic diseases.

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Section: Resultsmentioning

confidence: 85%

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Hamama,

Hamama-Raz,

Lebowitz-Sokolover

et al. 2024

Front. Psychol.

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“…Social support utilization was found to be a positive predictor of the importance of FQoL, which, to our knowledge, has not been previously reported. This can be explained by the rational use of social support by parents of children with ASD, contributing to their life satisfaction (Hamama, 2023). While previous studies have reported the presence of government and organizational support for ASD, parents often hesitate to utilize these resources due to stigma and other reasons (Ng & Ng, 2022).…”

Section: Discussionmentioning

confidence: 99%

“…Social support is a crucial external resource that has been linked to positive psychological outcomes for parents (Hamama, 2023), including informal and formal social support. Informal support comprises emotional support and social companionship from family members, close friends, colleagues, and neighbors, and formal support refers to medical, informational, advocacy, and other forms of support provided by the community, hospitals, schools, government, and regulatory bodies (Wills, 1991).…”

Section: Introductionmentioning

confidence: 99%

“…Increased social support has been associated with improved FQoL in families of children with ASD (Balcells‐Balcells et al, 2019), and it has been reported that social support indirectly affected FQoL through family cohesion in Chinese families of children with ASD (Lei & Kantor, 2022). Meanwhile, a study from Spain showed that perceived social support may improve satisfaction with life through adopting normal family life as a coping strategy (Hamama, 2023). However, it is not clear how the correlation between social support and FQoL during the time of children newly diagnosed with ASD, indicates a need for further research.…”

Section: Introductionmentioning

confidence: 99%

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The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

Dai,

Chen,

Deng

et al. 2023

Autism Research

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Improving the quality of family life (FQoL) is one of the ultimate goals for autism spectrum disorder (ASD) intervention, and parenting self‐efficacy and social support are critical for the well‐being of families. However, longitudinal studies focusing on FQoL and its predictors for families of children with ASD are scarce. This study aims to describe the characteristics of FQoL among parents of children newly diagnosed with ASD at two waves (newly diagnosed and diagnosed after one year) and to explore the predictors of FQoL at two waves. It was conducted at a tertiary hospital in Guangzhou, China. A total of 156 parents and their children were included in Wave 1, followed up with 110 in Wave 2 after 1 year. The overall satisfaction of FQoL improved (t = −2.128, p < 0.05), while satisfaction with physical/material well‐being decreased (t = 5.972, p < 0.01). Additionally, the overall importance rating of FQoL improved but did not have statistical significance (p > 0.05). Parents with higher parenting self‐efficacy (β = 0.716, P < 0.01), and more subjective social support (β = 1.127, p < 0.001) reported higher satisfaction with FQoL, and those with better social support utilization (β = 1.066, p < 0.05) reported higher importance for FQoL. FQoL needs to be improved in the early stage of ASD diagnosis, and parental self‐efficacy and social support can serve as the intervention targets.

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The perceived social support and its relationship between occupational balance and family functioning in rehabilitation among Turkish parents of pre-school children with autism

Kars,

Tansarıkaya,

Abaoğlu

et al. 2024

International Journal of Developmental Disabilities

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Perceived Social Support, Normalization, and Subjective Well-Being Among Family Members of a Child with Autism Spectrum Disorder

Cited by 4 publications

References 89 publications

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

The importance of parenting self‐efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one‐year follow‐up study

The perceived social support and its relationship between occupational balance and family functioning in rehabilitation among Turkish parents of pre-school children with autism

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