Perceived stigma in functional somatic syndromes and comparable medical conditions

Looper, Karl; Kirmayer, Laurence J.

doi:10.1016/j.jpsychores.2004.03.005

Cited by 71 publications

(65 citation statements)

References 115 publications

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“…Looper and Kirmayer [36] clearly showed DDPRQ-10 scores were dichotomized, identifying the 20 % with the highest scores as having the most frustration in consultations as cases (frustrated group). Using forced entry methods, models were made for each one of the independent variables after we input the control variables.…”

Section: Physicians' Frustration In Fm Consultationmentioning

confidence: 99%

Association of physicians’ illness perception of fibromyalgia with frustration and resistance to accepting patients: a cross-sectional study

2014

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The aim of this study was to elucidate whether physicians' illness perceptions correlate with their frustration or resistance to accepting patients with fibromyalgia (FM). In this cross-sectional postal survey, questionnaires were sent to member physicians of the Japan College of Rheumatology and Japan Rheumatism Foundation. Measures collected included the Brief Illness Perception Questionnaire with Causal Attribution, the Illness Invalidation Inventory, and the Difficult Doctor-Patient Relationship Questionnaire (DDPRQ-10). Multiple logistic regression was performed to examine associations between the DDPRQ-10 and resistance to accepting patients with FM for treatment. We analyzed data from 233 physicians who had experience in consulting with patients with FM. Only 44.2 % answered that they wanted to accept additional patients with FM. Physicians' frustration was associated with difficulty controlling symptoms, patients' emotional responses, and causal attribution of FM to patient internal factors. Conversely, lower levels of frustration were associated with causal attributions to biological factors and uncontrollable external factors. However, the "difficult patient" perception did not correlate with resistance to accepting patients with FM. Difficulty controlling symptoms with treatment was the one factor common to both physicians' frustration and resistance to accepting patients with FM. Physicians may hesitate to accept patients with FM not because of the stigmatic image of the "difficult patient," but instead because of the difficulty in controlling the symptoms of FM. Thus, to improve the quality of consultation, physicians must continuously receive new information about the treatments and causes of FM.

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Section: Physicians' Frustration In Fm Consultationmentioning

confidence: 99%

Association of physicians’ illness perception of fibromyalgia with frustration and resistance to accepting patients: a cross-sectional study

2014

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“…Epilepsy patients may perceive stigma due to increased burden on others due to symptoms T e.g., inability to drive) [12]. Patients with diseases of a functional etiology, such as fibromyalgia and chronic fatigue syndrome, may experience stigma related to others' belief in the legitimacy of the disease [13,14]. In one study, comparing stigma perception in a small sample of patients with IBS and IBD disease-matched controls, no differences were found between groups [14].…”

mentioning

confidence: 99%

“…Patients with diseases of a functional etiology, such as fibromyalgia and chronic fatigue syndrome, may experience stigma related to others' belief in the legitimacy of the disease [13,14]. In one study, comparing stigma perception in a small sample of patients with IBS and IBD disease-matched controls, no differences were found between groups [14]. However, perceived stigma levels in the digestive disease groups were comparable to those with fibromyalgia and rheumatoid arthritis, but lower than both chronic fatigue syndrome and multiple sclerosis, suggesting that stigmatization is related to not only functional qualities but other disease characteristics.…”

mentioning

confidence: 99%

“…Based on these findings, we sought to do a systematic comparison of the pooled data obtained for IBS and IBD patients in our previous studies. To our knowledge, only one small study to date has compared the perception of stigma between IBS and IBD patients, and this was within the broader context of contrasting functional somatic syndromes to comparable medical conditions [14]. A specific, more thorough comparison is important as we seek to refine our clinical approach to each of these patient groups independently, advocate for reduced stigma among gastrointestinal conditions as a whole, and target interventions aimed at reducing perceived stigma to maximize clinical outcomes.…”

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confidence: 99%

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Perceptions of illness stigma in patients with inflammatory bowel disease and irritable bowel syndrome

et al. 2011

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“…CFS and JIA thus seem to have a very different relation to the self-experience of adolescent patients. Patients with CFS often report to feel stigmatized by others who tend to doubt their somatic symptoms as part of a medical condition [7,30]. The unknown etiology of CFS may have influenced the self-experience of the adolescents, resulting in more negative experiences and worse functioning compared to the adolescents with JIA.…”

Section: Discussionmentioning

confidence: 99%

The Self beyond Somatic Symptoms: A Narrative Approach to Self-Experience in Adolescent Chronic Fatigue Syndrome

Geelen

Fuchs²,

Geel³

et al. 2015

Psychopathology

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Background: The self and self-experience are often assumed to play an important role in adolescent patients presenting with severe somatic symptoms and bodily distress. Nonetheless, most empirical work on this subject is confined to studies of personality and patients' experience of negative emotionality. This study aims to move beyond mere descriptions of symptoms, traits and distress, and consequently adopts a narrative approach to self-experience in adolescent chronic fatigue syndrome (CFS). Sampling and Methods: The self-confrontation method (SCM) is a well-validated instrument to systematically analyze narrative self-experience. The SCM was used to study 42 adolescents with CFS, compared to 36 adolescents with juvenile idiopathic arthritis (JIA) and 25 matched healthy controls. The Child Health Questionnaire (CHQ-CF87) was used to assess mental health, self-esteem, and physical and psychosocial functioning. Results: Both patient groups reported significantly less positive self-experience of autonomy and success compared to healthy controls. Furthermore, patients with CFS described significantly more negative self-experience of powerlessness, isolation and unfulfilled longing. In the CHQ-CF87, both patient groups scored significantly lower on physical functioning than controls. Adolescents with CFS also scored significantly lower on mental health and self-esteem. Conclusions: Adolescent CFS entails a serious threat to the self, which might be inherent to the condition. Not only are patients more impaired in mental health, self-esteem, and physical and psychosocial functioning than patients with JIA, they also suffer from a distinct combination of high negative and low positive self-experience. These findings stress the need for strategies that empower patients towards a ‘management of the self'.

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Perceived stigma in functional somatic syndromes and comparable medical conditions

Cited by 71 publications

References 115 publications

Association of physicians’ illness perception of fibromyalgia with frustration and resistance to accepting patients: a cross-sectional study

Association of physicians’ illness perception of fibromyalgia with frustration and resistance to accepting patients: a cross-sectional study

Perceptions of illness stigma in patients with inflammatory bowel disease and irritable bowel syndrome

The Self beyond Somatic Symptoms: A Narrative Approach to Self-Experience in Adolescent Chronic Fatigue Syndrome

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