Perceived stress, resilience, and health‐related quality of life among Parkinson's disease caregivers in Mexico

Abstract

The stress process model of caregiving posits that caregivers' internal psychosocial resources may serve as buffers between the stress associated with caregiving and well‐being. Empirical support for the stress process model exists for several caregiving contexts, but little research has investigated the Parkinson's disease caregiving experience in Mexico. Using a cross‐sectional, correlational design, the objective of this study was to examine whether resilience moderates the relation between perceived stress and health‐related quality of life (HRQOL) among Parkinson's disease caregivers in Mexico. Data were collected from April 2015 to February 2016 during outpatient neurology appointments in Mexico City, Mexico. Participants included informal caregivers (N = 95) for a family member with Parkinson's disease. Participants completed a battery of questionnaires assessing their level of perceived stress, resilience, and HRQOL. Regression analyses indicated that resilience moderated the inverse relation between perceived stress and mental HRQOL. However, contrary to hypotheses, resilience did not moderate the relation between stress and physical HRQOL. Findings shed light on resilience as a potential protective factor for mental HRQOL among Parkinson's disease caregivers in Mexico and indicate that resilience may be beneficial to target in mental health promotion interventions.

Positive effects of resilience and self‐efficacy on World Health Organization Quality of Life Instrument score among caregivers of stroke inpatients in China

“…Resilience is thought to be a positive protective factor that enables caregivers of patients with chronic disease to maintain stability when confronted with care‐related distress. Also, resilience has a positive impact on mental well‐being outcomes, 45 as confirmed with the results of the present study. Therefore, caregivers with a high level of resilience are more likely to accept and deal with serious psychological harm.…”

Resilience in In-Home Caregivers of Older Adults during the COVID-19 Pandemic

“…A severe dependence level due to the care receiver's pathologies, the heavy physical, psychological, and emotional demands of the act of caring, and any changes in the caregiver's dimensions cause anguish. However, this condition significantly reduces when promoting resilience (32)(33)(34). Literature focuses on informal or family caregivers' resilience, especially when taking care of people with dementia ( 35) and Alzheimer's disease (36)(37), and their high depression, anxiety, hopelessness, emotional burden, stress, and anguish levels.…”

A dyadic study of psychological well-being of individuals with Parkinson’s disease and their caregivers

“…The prevalence of suicidal ideation in PD patients ranged from 10.2% ~ 14.4% 20 , 21 . Furthermore, few studies that have detected fatigue 15 , 24 , resilience 25 , 26 , and suicidal ideation 27 among caregivers of PD patients. One study demonstrated that caregivers of PD patients experienced daily physical health problems including: muscle strain, headaches, and fatigue (17%) 24 .…”

“…One study demonstrated that caregivers of PD patients experienced daily physical health problems including: muscle strain, headaches, and fatigue (17%) 24 . One study found that resilience modulated the inverse relation between perceived stress and QOL 25 . Furthermore, resilience partially influenced the effects of social support on the mitigation of mental health symptoms 26 .…”