Perceived Uncertainty, Spiritual Well-Being, and Psychosocial Adaptation in Individuals With Multiple Sclerosis.

McNulty, Kristy; Livneh, Hanoch; Wilson, Lisa

doi:10.1037/0090-5550.49.2.91

Cited by 101 publications

(84 citation statements)

References 51 publications

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“…According to the results of the present study, level of spiritual health among MS patients was average, which is consistent with previous studies in this regard (12,13,21). Patients with chronic diseases, such as MS, are frequently faced with social and psychological stressors, such as existential conflicts associated with the induced pain, which challenges their perception towards the meaning of life (22).…”

Section: Discussionsupporting

confidence: 93%

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Relationship between spiritual well-being and quality of life in multiple sclerosis patients

Nasiry

Bagheri-Nesami

Shafaroudi

2016

J Nurs Midwifery Sci

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Background and Purpose: Spiritual health is one of the most critical health dimensions with remarkable influence on the life of individuals. Religion and spirituality play a pivotal role incoping with stressful events in life. This study aimed to evaluate the relationship between spiritual health and quality of life in patients with multiple sclerosis (MS). Pearson's correlation-coefficient. Methods Results:In this study, the majority of MS patients (71.7%, n=160) had average spiritual health, and mean score of quality of life was 50.2±12. Moreover, significant correlationswere observed between the total score of quality of life with dimensions of existential health (P<0.0001, r=0.97), religious health (P<0.0001, r=0.95), and total score ofspiritual health (P<0.0001, r=0.97). Conclusion:According to the results of this study, spiritual health and religious beliefs could improve the quality of life in MS patients.Spiritual health is inherent to the quality of life of patients suffering from chronic diseases, such as MS. In Iran, ideational and religious doctrines remarkably influence people's lives. Therefore, provision of culture-based and meaning-orientated care and adopting a wholesome attitude towards different aspects of MS could help medical professionals to offer the required services for these patients.

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Section: Discussionsupporting

confidence: 93%

“…For instance, in Mcnulty et al study (13) in this regard reported spiritual beliefs and faith to be significant predictors of coping with the disease and improvement of the quality of life in MS patients.…”

Section: Introductionmentioning

confidence: 96%

Relationship between spiritual well-being and quality of life in multiple sclerosis patients

Nasiry

Bagheri-Nesami

Shafaroudi

2016

J Nurs Midwifery Sci

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“…The literature consistently indicates a positive association between spiritual well-being and overall adjustment, hopefulness and quality of life in individuals with chronic illnesses, including MS (Makros & McCabe 2003;McNulty, Livneh & Wilson 2004). More specifically, religion has been shown to play an important role in the lives of individuals with chronic medical conditions and to provide emotional support, purpose and meaning in their lives (Arzouman et al 1991;Hall 1998;Twork et al 2007).…”

Section: Discussionmentioning

confidence: 99%

The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa

Pretorius

Joubert

2014

Health SA Gesondheid

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Background: Multiple Sclerosis (MS) is a debilitating and degenerative lifelong neurological disease that seems to be growing increasingly more prevalent in South Africa.Objectives: The aim of this qualitative study was to explore the personal experiences of individuals with MS in the South African context. The focus of this study was on the challenges faced by individuals with MS, as well as the resources that help them to cope with this debilitating, neurological condition.Method: Thematic analysis was used to explore the semi-structured interviews that were conducted with ten individuals with MS.Results: Several themes emerged that related to the participants’ experiences of living with MS. These themes included several challenges faced by the participants on a daily basis, such as the process of being diagnosed, daily life, invisible illness and medical aid schemes. Numerous resources that help these individuals to cope with MS also emerged from the data analysis and consisted of social support, mobility aids, religion and knowledge about MS.Conclusion: It is evident from the findings of this study that although individuals living with MS, which is a debilitating neurological condition, face several challenges on a daily basis, they often have several resources that help them to cope effectively with this condition. The findings of this study regarding knowledge of the challenges faced and the resources utilised by individuals with MS will hopefully create awareness of the disease and contribute to and inform the design and implementation of interventions for such individuals. Agtergrond: Veelvuldige Sklerose (VS) is ‘n aftakelende en degerenatiewe lewenslange neurologiese toestand wat blyk of dit toenemend meer algemeen in Suid-Afrika voorkom.Objektief: Die doel van hierdie kwalitatiewe studie was om die persoonlike ervarings van individue met VS binne die Suid-Afrikaanse konteks te ondersoek.Die fokus van hierdie studie was op die uitdagings wat individue met VS in die gesig staar, sowel as die hulpbronne wat hulle help met die hantering van hierdie ernstige neurologiese toestand.Metode: Tematiese analise is gebruik om die semi-gestruktureerde onderhoude te ondersoek, wat gevoer is met tien individue met VS.Resultate: Verskeie temas wat verband hou met die deelnemers se ervarings van ‘n lewe met VS het na vore gekom. Hierdie temas het verskeie uitdagingsingesluit wat die deelnemers op ‘n daaglikse basis in die gesig staar, soos die proses om korrek gediagnoseer te word, daaglikse lewe, onsigbare siekte en mediese fonds skemas. ‘n Aantal hulpbronne wat hierdie individue help om VS te hanteer het ook na vore gekom en bestaan uit sosiale ondersteuning, mobiliteit hulpmiddels, geloof en kennis oor VS.Gevolgtrekking: Dit is duidelik uit die bevindinge dat alhoewel individue wat lewe met VS, wat ‘n ernstige neurologiese toestand is, verskeie uitdaging op ‘n daaglikse basis in die gesig staar, hulle beskik oor verskeie hulpbronne wat hulle help om hierdie toestand effektief te hanteer. Die bevindinge van hierdiestudie rakende kennis van die uitdagings wat hierdie individue in die gesig staar en die hulpbronne wat individue met VS gebruik sal hopelik ‘n bewustheid skep en bydra tot die ontwerp en implimentering van intervensies vir sulke individue.

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“…SWB has been shown to assist in coping with stressful life events (Bekelman et al 2009). Previous studies conducted on spirituality in patients with chronic diseases such as multiple sclerosis (McNulty et al, 2004), and AIDS (Litwinczuk & Groh, 2007) shows that it has a significant relationship with health and is useful in adjusting with the disease.…”

mentioning

confidence: 99%

Spiritual wellbeing of Iranian patients with acute coronary syndromes: a cross-sectional descriptive study

Jahani

Rejeh

Heravi‐Karimooi

et al. 2014

Journal of Research in Nursing

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Abstract:Spiritual well-being harmonizes several dimensions of human life and is essential for coping with diseases. Acute coronary syndromes (ACS) cause crisis in physical, psychological aspects and spiritual dimensions of patients' lives. The purpose of this study was to determine the level of spiritual well-being and its dimensions in patients with ACS. A crosssectional descriptive study was conducted. For data collection, Paloutzian and Ellison's Spiritual Well-being self-report questionnaire was filled in by 364 patients with ACS. Patients referred to cardiac wards of five teaching hospitals in Tehran between August 2011 and April 2012 were recruited using the convenient sampling method. The data were analyzed using descriptive and inferential statistics. The findings revealed that the majority of patients (97.9%) benefited from moderate spiritual well-being, although religious well-being was higher than existential well-being in the patients. It is concluded that nurses are required to improve their cultural and contextual knowledge of patients' spiritual well-being to meet patients' needs in nursing care. Spiritual beliefs can influence coping with diseases, help patients to find meaning and purpose in life to deal with problems resulting from physical and mental illnesses. These findings can be used to suggest the incorporation of religious aspects of spirituality into care programs designed to improve the quality of life of patients with ACS.http://mc.manuscriptcentral.com/jrn Journal of Research in Nursing The findings revealed that the majority of patients (97.9%) benefited from moderate spiritual well-being, although religious well-being was higher than existential well-being in the patients. It is concluded that nurses are required to improve their cultural and contextual knowledge of patients' spiritual well-being to meet patients' needs in nursing care. Spiritual beliefs can influence coping with diseases, help patients to find meaning and purpose in life to deal with problems resulting from physical and mental illnesses. These findings can be used to suggest the incorporation of religious aspects of spirituality into care programs designed to improve the quality of life of patients with ACS.Keywords: acute coronary syndrome, existential well-being, heart disease, religious well-being, spiritual well-being, spirituality. Key points• Tendency to spirituality increases with age;• Creating spiritual meaning in life plays an important role in coping with stressful situations caused by diseases;• It is required to incorporate religion and spirituality into nursing education curricula to prepare nurses to develop care plans designed to improve the quality of life of patients.• Future studies with a qualitative design are suggested to improve our understanding on how spirituality interventions can be incorporated into nurses' care planning from both nurses and patients' perspectives.

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Perceived Uncertainty, Spiritual Well-Being, and Psychosocial Adaptation in Individuals With Multiple Sclerosis.

Cited by 101 publications

References 51 publications

Relationship between spiritual well-being and quality of life in multiple sclerosis patients

Relationship between spiritual well-being and quality of life in multiple sclerosis patients

The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa

Spiritual wellbeing of Iranian patients with acute coronary syndromes: a cross-sectional descriptive study

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