Perception of Child Vulnerability Among Mothers of Former Premature Infants

Allen, Elizabeth C; Manuel, Janeen; Legault, Claudine; Naughton, Michelle J.; Pivor, Carol; O’Shea, T. Michael

doi:10.1542/peds.113.2.267

Cited by 147 publications

(139 citation statements)

References 29 publications

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“…Parents of preterm infants have been noted to perceive their infants as medically vulnerable, even in the absence of indicators of medical vulnerabilities. [34][35][36] High parental perception of child vulnerability is associated with high health-care utilization along with an increased risk of behavior problems and altered parent-child interaction. [37][38][39][40] One recent study of preterm infants suggested that higher parental perception of child vulnerability is correlated with worse developmental outcomes at 1 year adjusted age.…”

Section: Discussionmentioning

confidence: 99%

“…[37][38][39][40] One recent study of preterm infants suggested that higher parental perception of child vulnerability is correlated with worse developmental outcomes at 1 year adjusted age. 34 Pediatricians need to be alert to parental anxiety and provide support and reassurance to these families. Understanding more about how to optimize care and lessen anxiety through the transition from the NICU to the home may diminish the risk of the vulnerable child syndrome.…”

Section: Discussionmentioning

confidence: 99%

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Pediatric care for preterm infants after NICU discharge: high number of office visits and prescription medications

et al. 2008

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Objective: To determine the frequency and risk factors for clinic and pharmacy use in preterm infants during the first year after neonatal intensive care unit (NICU) discharge.Study Design: We analyzed clinic visits and prescriptions in a cohort of 23 to 32 weeks infants. We constructed multivariable regression models to determine risk factors for high use.Result: The 892 preterm infants experienced 18 346 pediatric visits (mean 20 visits per infant per year) and filled 2100 prescriptions (mean 5.5 prescriptions per year among infants taking medications). Most visits were non-well child care visits to pediatric primary care providers. Prematurity and bronchopulmonary dysplasia (BPD) are important risk factors: infants at 23 to 26 weeks gestation or infants with BPD had an average 29 visits per year and 9 prescriptions per year among infants taking medication. However, half of the highest using infants were relatively healthy infants at 27 to 32 weeks gestation who escaped BPD, NEC or grade 3 to 4 intraventricular hemorrhage.Conclusion: Premature infants had frequent pediatric visits and prescription medications. Extreme prematurity and neonatal morbidities are important risk factors; however, half of the highest using infants are moderately preterm without neonatal morbidities.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Pediatric care for preterm infants after NICU discharge: high number of office visits and prescription medications

et al. 2008

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“…28 En la población de niños con antecedentes de prematurez, varias publicaciones alertan acerca de la importancia de la detección temprana de este síndrome. 29,30 A través de las representaciones sociales analizadas en torno al cuerpo y la escolaridad, observamos la capacidad de los pacientes para resignificar los estigmas generados por la prematurez. En este sentido, una fortaleza de la metodología utilizada es que generó un espacio de diálogo e identificación donde se expresaron angustias personales, se intercambiaron consejos, se problematizó lo que se consideraba anormal socialmente y se destacaron las fortalezas propias y de los otros.…”

Section: Discussionunclassified

Representaciones sociales de la prematurez desde la perspectiva de personas nacidas prematuras en la década de los noventa

et al. 2015

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“…8,12 Factors such as high level of family stress, low maternal responsiveness, and impaired parental competence, seem to play a direct role in children s development. 13 There are two types of support to parents of risk newborns in the NICU: formal support, provided by some healthcare workers, and informal support, provided by the family and friends. 14 The literature highlights the role of healthcare workers in mobilizing and strengthening family resources by implementing support groups, as a way to organize the work in the NICU, meeting the needs of newborn infants, and giving parents the opportunity to deal with the birth of their child and to cope with his/her hospitalization.…”

Section: Birth and Nicu Admission After Hospital Dischargementioning

confidence: 99%

O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

Buarque¹,

Lima²,

Scott³

et al. 2006

J. Pediatr. (Rio J.)

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Objective: To investigate the influence of support groups on the family of risk newborn infants and on neonatal unit workers. Methods:We used a qualitative approach, and as theoretical basis, family-centered care. The study was conducted in the neonatal unit of Hospital Prontolinda, in Pernambuco, Brazil. From January to June 2004, 25 meetings were held by the family support group. Data were collected through the observations of participants and through tape-recorded interviews with 13 mothers, six fathers, two grandmothers and 16 healthcare workers. The interviews were submitted to speech content analysis (thematic modality).Results: The analysis revealed that the support group to the family of risk newborns provided parents and family members with information, emotional support and strengthening so that they could come to terms with the birth of their child and his/her admission to the neonatal unit, in addition to enabling parents to take care of the newborn infant. There was interpersonal growth in the interaction between parents, family members, and healthcare workers. Conclusions:The support group to the family of risk newborns uses an approach that is based on familycentered care. These principles allow restoring parental competence, helping healthcare workers to respect values and feelings of family members, and establishing a collaborative work between parents and healthcare workers in the neonatal unit. ORIGINAL ARTICLE

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Perception of Child Vulnerability Among Mothers of Former Premature Infants

Cited by 147 publications

References 29 publications

Pediatric care for preterm infants after NICU discharge: high number of office visits and prescription medications

Pediatric care for preterm infants after NICU discharge: high number of office visits and prescription medications

Representaciones sociales de la prematurez desde la perspectiva de personas nacidas prematuras en la década de los noventa

O significado do grupo de apoio para a família de recém-nascidos de risco e equipe de profissionais na unidade neonatal

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