Perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt

Mohamed, Magda Aly; Ibrahim, Ateya Megahed; Ibrahim, Hanaa Mohamed; Abdella, Nabila Hassan Ali; El-Mowafy, Reda Ibrahim

doi:10.1017/s1478951521001668

Cited by 1 publication

(1 citation statement)

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“…This result was supported by Mohamed et al, (2022), who showed that d sufficient knowledge, 78.6% had a positive attitude, while 76.8% of them had inappropriate practices towards palliative care. Also, Yoo et al, (2018) showed that significant numbers of patients with advanced cancer and family caregivers showed positive attitudes toward early palliative care.…”

Section: Discussionmentioning

confidence: 69%

Palliative and Supportive Care for Patients with End-Stage Hepatocellular Carcinoma: Perspectives of Egyptian Domestic Caregivers

Ibrahim,

Abdelmeged,

El-Sakhawy

et al. 2023

Asian Pac J Cancer Prev

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Objectives: Palliative care is a holistic, patient-centered approach to improving the quality of life for those with terminal diseases and their families. The main objective of the current study was to evaluate the Egyptian domestic caregivers' knowledge, attitudes, and competencies related to palliative and supportive care. Methods: Three hundred and thirty-five family caregivers in total were recruited. A descriptive research design was used. Four tools were used to collect data; structured interview questionnaire to collect demographic questions, palliative care knowledge questionnaire, Palliative Attitude Scale, and Competence Scale. The study was conducted in oncology outpatient and pain clinics located at the Damietta Cancer Institute in Damietta Governorate, Egypt. Results: Nearly two-thirds of the informal family caregivers are aged between 30-40 years old; 54% are female, and 83% are married. Also, sixty-seven point eight of the informal family caregivers were working (part-time). Furthermore, 65 % of them had insufficient knowledge, 68 % had a positive attitude, and 58% of the informal family caregivers had non-competency skills regarding palliative and supportive care. Conclusion: Approximately two-thirds of informal care providers had insufficient total knowledge scores, more than half possessed a positive attitude, and more than half reported non-competency skills regarding palliative care of hepatocellular patients. Recommendation: It is highly advisable to launch extensive health education programs and campaigns aimed at all of the unpaid informal family careers of patients with serious terminal illnesses, including hepatocellular carcinoma, at various governments with greater sample sizes.

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Section: Discussionmentioning

confidence: 69%