Perception toward the disease of the people affected by leprosy

Govindharaj, Pitchaimani; Srinivasan, Sampathkumar; Darlong, Joydeepa

doi:10.4103/ijmy.ijmy_66_18

Cited by 18 publications

(22 citation statements)

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“…A maior parte dos entrevistados relataram problemas de cunho psicológico (Xiong et al, 2019). Já o estudo 6 identificou que 60% dos estudados eram homens, com até 45 anos, 55% eram trabalhadores braçais com renda familiar mensal menor que 5000 mil reais (Govindharaj et al, 2018).…”

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“…O artigo 6 identifica que mais da metade da população da pesquisa possui deficiência física (Govindharaj et al, 2018).…”

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“…A percepção dos sentimentos e emoções vivenciados pelos portadores de hanseníase descrito no artigo 6 são em sua maioria de medo, vergonha, tristeza e ansiedade (Govindharaj et al, 2018). O estudo de número 5 também aborda o impacto psicológico que a hanseníase traz, o estigma que a doença acarreta leva ao ocultamento da mesma por parte dos portadores.…”

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Análise dos impactos biopsicossociais da hanseníase em adultos

Cruz

Barreto

Silva

et al. 2021

RSD

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Objetivo: Descrever o impacto da hanseníase na qualidade de vida dos portadores. Métodos: Trata-se de uma revisão bibliográfica integrativa realizada nas bases de dados Scientific Electronic Library Online (SciELO) e Banco de Dados em Enfermagem (BDENF). Como critérios de inclusão: artigos que abordem a temática, nos últimos dez anos. Como critérios de exclusão: artigos que não contemplavam o tema. Foram encontrados 85 estudos nas bases selecionadas e após aplicar os critérios de inclusão e exclusão, foram selecionados 11 estudos para compor a revisão. Resultados: A hanseníase é uma doença transmissível, que afeta os nervos periféricos e a pele, podendo causar sérios prejuízos sensoriais, motores e autônomos. É decorrente da suscetibilidade dos indivíduos, predisposição genética ou contato prolongado com portadores da hanseníase sem tratamento. Sabe-se que a hanseníase atualmente tem cura e seu tratamento é ofertado através do Sistema Único de Saúde (SUS), no entanto fatores como o estigma, preconceito e a falta de informação retardam o processo de cura da doença e traz consequências desafiadoras no âmbito da saúde pública. Considerações Finais: Portanto, torna-se pertinente à discussão do problema, com intuito de identificar estratégias que melhor minimizem o impacto da hanseníase na vida de portadores e os efeitos colaterais para coletividade.

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“…O artigo 6 identifica que mais da metade da população da pesquisa possui deficiência física (Govindharaj et al, 2018).…”

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Análise dos impactos biopsicossociais da hanseníase em adultos

Cruz

Barreto

Silva

et al. 2021

RSD

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“…Patients with leprosy suffer several biological and psychosocial consequences (4)(5)(6) . In spite of the disease been characterized by skin problems and sensorimotor disorders, studies point to a larger range of involvement (7)(8)(9) . Recent publications showed that patients with leprosy have limitations in performing activities of daily living (ADL), and a great susceptibility to physical disabilities and morbidities (10)(11)(12) .…”

Section: Introductionmentioning

confidence: 99%

Activity limitations in leprosy and their association to cognition and neuropsychiatric symptoms

et al. 2021

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Objectives: to analyze activity limitations in patients with leprosy and their association to cognition and neuropsychiatric symptoms. Methods: this cross-sectional design study included sixty patients with multibacillary leprosy assisted at a reference center. Participants were divided according to their physical disability and submitted to instruments assessing daily activities (basic and instrumental), cognitive functions, and neuropsychiatric symptoms. The order of the instruments was random to avoid any interference of test sequence on the results. Results: fifty-five percent of the participants presented physical disabilities. All patients were independent in performing basic activities but sixty-six percent presented difficulties in performing instrumental activities. Cognitive decline and neuropsychiatric symptoms were seen in advanced stages of the disease, but they were more associated to patient age than to leprosy. Conclusions: leprosy patients presented physical disabilities and difficulties in performing instrumental daily activities. Cognitive decline and neuropsychiatric symptoms were more associated to aging than to leprosy itself.

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“…Peters et al (2014) observed that the women who had concealed their illnesses were the ones who most frequently reported feelings of fear, sadness, shame, low self-esteem and depression, and that these feelings often resulted in self-isolation. Besides, women affected by leprosy experience more fear of the disease than the men affected by leprosy (Govindharaj et al, 2018). Out of fear of infecting family members, affected women keep themselves aloof and are constantly worried about their marriage prospects or, if married, about divorce and separation.…”

Section: Introductionmentioning

confidence: 99%

Disclosure of Disease among Women affected by Leprosy: A Qualitative Study

Ramasamy

Govindharaj

Kumar³

et al. 2020

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Purpose: Although leprosy is completely curable with multidrug therapy, it is unfortunate that the stigma attached to leprosy persists even today. Fear of social exclusion prevents disclosure of the disease to the family and community. This study aimed to evaluate the extent of disclosure of disease among women affected by leprosy in a tertiary referral hospital in Chhattisgarh State, India.Method: A qualitative study was conducted with 57 women affected by leprosy who reported at a tertiary referral hospital in Champa, Chhattisgarh State. The respondents were 18 years of age or older, and had completed multidrug therapy for leprosy. They were asked whether the disclosure of disease had affected their interactions with family, neighbours and community members.Results: Of the 57 women, 48 (84%) had disclosed their disease to their family, 17 (30%) to their neighbours and 13 (23%) to the community members. Thirty women (53%) reported that they experienced problems after revealing the ailment to their family, friends and neighbours. The qualitative analysis found that negative behaviour towards people affected by leprosy still persists in the community. Consequently, women affected by leprosy try to hide their disease due to fear of negative community reactions. Conclusion:This study emphasises the need to spread awareness about the disease and its transmission, by educating the people affected by leprosy, their families and the community. This should be a continuous process in order to reduce or remove the stigma and discrimination against women affected by leprosy, in particular.

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Perception toward the disease of the people affected by leprosy

Abstract: The present study emphasizes the need for continuous counseling and health education for persons affected with leprosy to avoid or minimize the psychological problems. Periodical screening and counseling will improve their psychosocial well-being and quality of life.

Cited by 18 publications

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Análise dos impactos biopsicossociais da hanseníase em adultos

Análise dos impactos biopsicossociais da hanseníase em adultos

Activity limitations in leprosy and their association to cognition and neuropsychiatric symptoms

Disclosure of Disease among Women affected by Leprosy: A Qualitative Study

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