Perceptions Community Residents Have about Partner Institutions and Clinical Research

Abstract

Introduction Engaging community residents to obtain their feedback in conducting clinical research, and including them as leaders in implementing applicable health advances is crucial for success and sustaining large center awards. Methods Forty-four adult men and women participated in one of four focus groups. Two groups each (one African American and one Caucasian) were conducted in Baton Rouge and in New Orleans. Results In an effort to determine the knowledge, attitudes, and beliefs Louisiana residents have about the Louisiana Clinical and Translational Science (LA CaTS) Center concept, four main themes emerged from focus group participants concerning the state’s research institutions, and what it means to have these institutions operating under one umbrella to improve the quality of health of its people: 1) academic/research institutions of the State are uniformly widely recognized and held in high regard; 2) increasing awareness of clinical research is a necessity; 3) establishing the LA CaTS Center is an excellent idea; and 4) effective communication including delivery style is crucial to partnerships and especially to the community. Conclusion Focus group discussions can provide insight into community residents’ perceptions, beliefs, motivations and patterns of behavior for strategically planning for large center awards.

Healthcare providers versus patients' understanding of health beliefs and values

“…43 The NGT focus group method had some limitations, such that the composition and representativeness of participants may limit the generalizability of the results, training and preparation is required, the discussion is restricted to a single question, and it does not allow further elaboration of other ideas. 44 Furthermore, focus group participants were limited to identifying what was easiest to implement directly from their initial responses to “what is your understanding of your patients’/doctors’ health beliefs and values.”…”