Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach

West, Patricia; Jensen, Emily; Douglas, Sarah; Wyatt, Gwen; Robbins, Lorraine B.; Given, Charles W.

doi:10.1016/j.pedn.2023.04.014

Cited by 3 publications

(1 citation statement)

References 32 publications

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“…As per Vessoyan et al, eye-tracking technology can assist people with Rett syndrome in meeting their communication objectives and enhancing their psychosocial functioning when used in conjunction with AAC therapists [17]. Additionally, the favorable impacts of assistive technology-including microswitches-on the adaptive capabilities and quality of life of children and adolescents with Rett syndrome were noted by Stasolla et al and Ciarmoli et al [25,26]. These results suggest that communication technology can be extremely important in improving the educational experience for individuals diagnosed with Rett syndrome.…”

Section: Educational Toolsmentioning

confidence: 90%

Assistive Communication Devices in Rett Syndrome: A Case Report and Narrative Review

Lee,

Abu-Daoud

et al. 2024

BioMed

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Rett syndrome (RTT) is a severe neurodevelopmental disorder primarily affecting females, characterized by developmental regression and significant communication impairments. Despite the critical role of communication in maintaining quality of life, the long-term efficacy and optimal utilization of augmentative and assistive communication (AAC) devices in RTT remain underexplored. This study evaluates the impact of AAC devices on communication outcomes and quality of life in individuals with RTT through a case report and narrative review. We conducted a comprehensive literature review and thematic analysis categorizing technologies into communication aids, mobility aids, educational tools, and daily living aids, assessing their effectiveness and challenges. The results show that AAC technologies, including eye-tracking devices, speech-generating devices, and adapted computers, enhance communication, cognitive development, and quality of life for individuals with RTT. The case report of Patient E, utilizing the Tobii Dynavox device, highlights the transformative impact of AAC devices despite challenges in device complexity and therapist training. AAC devices are indispensable for supporting individuals with RTT, though challenges persist related to accessibility, device complexity, and therapist training. Future research should focus on longitudinal studies to assess the sustained impact of AAC technologies and explore family-centered approaches to AAC integration.

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Section: Educational Toolsmentioning

confidence: 90%

Assistive Communication Devices in Rett Syndrome: A Case Report and Narrative Review

Lee,

Abu-Daoud

et al. 2024

BioMed

View full text Add to dashboard Cite

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Application of Augmentative and Alternative Communication to stimulate communicative intention and cognition in patients with Autism Spectrum Disorder

Mendonça,

Marques,

Lione

et al. 2023

Rev. CEFAC

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Purpose: to assess the advancement in communicative intention and cognition in children with autism spectrum disorder after applying a personalized alternative communication method. Methods: patients had their communicative intention and cognition (Vineland-3) assessed before and after the intervention with 10 structured alternative communication sessions. The “Demystifying Alternative Communication” podcast was developed as supplementary material to this study. Student’s t-test was used, setting the significance level at p < 0.05. Results: patients improved their communicative intention, with higher scores after the intervention, and no changes were found in relation to cognition. Conclusion: even though the patients’ equivalent age was inferior to their real age in the communication subdomain assessment, they progressed in expressive communication, language, and writing.

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A aplicação da Comunicação Suplementar e Alternativa para a estimulação da intenção comunicativa e da cognição em pacientes com Transtorno do Espectro Autista

Mendonça,

Marques,

Lione

et al. 2023

Rev. CEFAC

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RESUMO Objetivo: avaliar o avanço da intenção comunicativa e da cognição em crianças com Transtorno do Espectro Autista após a aplicação de metodologia personalizada de comunicação alternativa. Métodos: foram realizadas dez sessões estruturadas de comunicação alternativa e os pacientes foram avaliados antes e após a intervenção quanto a intenção comunicativa e cognição (Vineland-3). Como material suplementar deste trabalho, foi elaborado o podcast “Desmistificando a Comunicação Alternativa”. Foi utilizado teste t-Student com o p <0,05 onsiderado significante. Resultados: os pacientes apresentaram melhoras quanto à intenção comunicativa, demonstrando maiores escores após a realização da intervenção. Conclusão: apesar de os pacientes apresentarem uma idade equivalente inferior à idade real na avaliação do subdomínio da comunicação, estes demonstraram avanços quanto às variáveis de comunicação expressiva, linguagem e escrita.

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Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach

Cited by 3 publications

References 32 publications

Assistive Communication Devices in Rett Syndrome: A Case Report and Narrative Review

Assistive Communication Devices in Rett Syndrome: A Case Report and Narrative Review

Application of Augmentative and Alternative Communication to stimulate communicative intention and cognition in patients with Autism Spectrum Disorder

A aplicação da Comunicação Suplementar e Alternativa para a estimulação da intenção comunicativa e da cognição em pacientes com Transtorno do Espectro Autista

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