Perceptions of palliative care among patients with advanced cancer and their caregivers

Zimmermann, Camilla; Swami, Nadia; Krzyzanowska, Monika K.; Leighl, Natasha B.; Rydall, Anne; Rodin, Gary; Tannock, Ian F.; Hannon, Breffni

doi:10.1503/cmaj.151171

Cited by 300 publications

(286 citation statements)

References 33 publications

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“…Moreover, the ongoing definition of palliative care for patients and their caregivers is care provided at the end of life, although a worldwide change in this definition was made over a decade ago. 22 A name change can be taken into consideration, although it is essential that such change involves the way palliative care is Oncological homecare Oliveira MBP, Souza NR, Bushatsky M, Dâmaso BFR, Bezerra DM, Brito JA portrayed. Thus, it is clear that wide basic education is required to guarantee a greater understanding of what palliative care represents and involves.…”

Section: Family Members/caregivers' Understanding Of Palliative Carementioning

confidence: 99%

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Oncological homecare: family and caregiver perception of palliative care

Oliveira¹,

Souza²,

Bushatsky³

et al. 2017

Escola Anna Nery - Revista De Enfermagem

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Objective: To identify family and caregiver perception of palliative care for patients diagnosed with terminal cancer receiving in-home health services. Methods: A descriptive study with a qualitative approach was conducted with six family members and caregivers of patients receiving in-home palliative care services exclusively provided by the Palliative Care Unit of a referral resumen Objetivo: Conocer la percepción de la familia/cuidador de enfermos con diagnóstico de cáncer terminal en atención domiciliaria sobre cuidados paliativos. Métodos: Investigación descriptiva, cualitativa, realizada con seis cuidadores familiares de pacientes que reciben atendimiento domiciliario en cuidados paliativos exclusivos, prestados por la Unidad de Cuidados Paliativos de un hospital de referencia. Los datos fueron recolectados en el periodo de septiembre a octubre de 2015, através de entrevista semiestructurada que utilizó el Análisis de Contenido de Bardin. Resultados: Emergieron las siguientes temáticas: Rutina del familiar/cuidador frente a los cuidados paliativos; Equipo de cuidados paliativos: Apoyo al familiar/cuidador; Conciencia del familiar/cuidador sobre cuidados paliativos; Sentimientos del familiar/cuidador en cuidados paliativos; Vivencia del familiar/ cuidador sobre cuidados paliativos en el hogar. Conclusión: Se posibilitó rescatar la importancia de los cuidados paliativos en el hogar como posibilidad de minimizar el impacto del sufrimiento con la enfermedad y asegurar la dignidad en el morir.

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Section: Family Members/caregivers' Understanding Of Palliative Carementioning

confidence: 99%

“…Thus, it is clear that wide basic education is required to guarantee a greater understanding of what palliative care represents and involves. 22 …”

Section: Family Members/caregivers' Understanding Of Palliative Carementioning

confidence: 99%

Oncological homecare: family and caregiver perception of palliative care

Oliveira¹,

Souza²,

Bushatsky³

et al. 2017

Escola Anna Nery - Revista De Enfermagem

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“…In a recent survey, palliative care clinics were available at 59% of National Cancer Institute (NCI) centersand22%ofnon-NCIcenters [38].Evenatcenterswithaccess tosuchclinics,referralstendtooccurlateinthediseaseprocess [40], althoughoncologistswith palliativecaretrainingtendtoreferearlier in the course of illness [3]. One reason for late referrals is the faulty perception by those providing and receiving cancer care that palliative care is synonymous with "end-of-life" care [41][42][43][44]. This has led some services to change their name to "supportive care" [41] and has galvanized a broader interest in the education of both providers and the public about palliative care [45].…”

Section: P-347cmentioning

confidence: 99%

Early Palliative Care and Its Role in Oncology: A Qualitative Study

et al. 2016

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Introduction. Early integration of palliative care alongside oncology is being increasingly recommended, although the strategies and models for integration remain poorly defined. We solicited the opinions of patients and caregivers who participated in a randomized trial of early palliative care versus standard oncology care, regarding the respective roles of their oncologist (both groups) and palliative care physician (early palliative care group). Materials and Methods. The study was performed at a comprehensive cancer center. Forty-eight patients (26 intervention, 22 control) and 23 caregivers (14 intervention, 9 control) were recruited purposefully at trial end. One-on-one, semistructured qualitative interviews were conducted and analyzed using grounded theory. Results. The themes resulting from the analysis fell into three categories: the focus of care, the model of care delivery, and the complementarity between teams. The focus of care in

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“…Although that task is clearly part of the role of palliative care providers, it is but a subset of the scope of palliative medicine practice. In a recent study, Zimmermann et al 11 showed that cancer patients and caregivers associate the term "palliative care" with death and end of life, and they are therefore reluctant to be referred early. That stigmatization must be overcome if early integration of palliative care is to be successful.…”

Section: What Are the Barriers To Implementation?mentioning

confidence: 99%