Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses

Chen, Lin; Cohen, E. Suzanne; Livingston, Patricia M.; Botti, Mari

doi:10.1111/jan.13853

Cited by 21 publications

(49 citation statements)

References 35 publications

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“…An average of 3.6 studies/year was published on the topic over the last 11 years. Sixteen studies were published during the first half of the time period (2008–2013) (37–52), and twenty‐seven studies were published during the second half of the time period (2014–2018) (33, 34, 53–77), demonstrating an increase in publications on the topic. This research was mainly conducted in Europe (n = 26) (34, 37, 39–43, 45, 46, 48–50, 52, 55, 57, 62, 63, 65–72, 74); 69% (n = 18) of the European studies were conducted in Sweden (34, 37, 39, 41, 42, 45, 46, 48, 49, 52, 55, 57, 66, 67, 69–72).…”

Section: Resultsmentioning

confidence: 99%

“…This research was mainly conducted in Europe (n = 26) (34, 37, 39–43, 45, 46, 48–50, 52, 55, 57, 62, 63, 65–72, 74); 69% (n = 18) of the European studies were conducted in Sweden (34, 37, 39, 41, 42, 45, 46, 48, 49, 52, 55, 57, 66, 67, 69–72). The remaining studies were conducted in Australia (n = 8) (47, 51, 54, 58–60, 64, 75), North America (n = 5) (33, 38, 53, 61, 76), Asia (n = 3) (44, 73, 77) and the United Kingdom (n = 1) (56) (See Table 3). Samples consisted of patients (n = 17) (41, 45–47, 49, 51, 53, 55, 56, 61, 62, 64, 65, 67–69, 76), nurses (n = 15) (33, 34, 37, 39, 40, 43, 50, 52, 57, 60, 70–73, 75), or patients and nurses (n = 11) (38, 42, 44, 48, 54, 58, 59, 63, 66, 74, 77), and an ‘a theoretical’ approach was undertaken in 86% (n = 37) of studies (33, 34, 37–48, 51, 53–61, 63, 64, 66, 67, 69–77).…”

Section: Resultsmentioning

confidence: 99%

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Promoting patient engagement: a scoping review of actions that align with the interactive care model

Tobiano

Jerofke‐Owen

Marshall

2020

Scandinavian Caring Sciences

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Background Conceptual clarity for the term patient engagement is growing. However, there is variability in patient engagement in healthcare, which could be due to the absence of models to guide practice or a myriad of organisational, nurse and patient factors. The recently developed ‘Interactive Care Model’ provides guidance on how to genuinely promote individualised patient engagement. An understanding of how to action this model in nursing is required. Aims The aim of this scoping review was to examine actions in the published scientific literature that align with the Interactive Care Model, in the context of nursing care of hospitalised patients. Data sources In 2018, searches of CINAHL, Cochrane Library, MEDLINE and PsycInfo were undertaken, for literature published between 2008 and 2018. This was followed by citation tracking. Review methods Two researchers screened and selected studies using prespecified criteria. Data were charted into a pre‐established tool and collated and summarised using numerical summaries and deductive content analysis. For content analysis, categories were generated from the ‘Interactive Care Model’. Findings Forty‐three studies were included in the review, 33 noninterventional and 10 interventional studies. Publications on the topic are increasing in number over time, with most conducted in Europe with patient or nurse participants. Forty‐two actions were found in the literature that aligned with the ‘Interactive Care Model’. The actions uncovered differed between intervention and noninterventional studies; in interventional studies actions were formalised. Conclusions This review provides an overview of actions that promote patient engagement and could inform implementation of the Interactive Care Model and the design and testing of patient engagement interventions to support the model. There are opportunities to explore latter phases of the Interactive Care Model to foster patient engagement in self‐management and to motivate patients’ management of healthcare beyond hospitalisation. Further, there is a need to rigorously evaluate patient engagement interventions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Promoting patient engagement: a scoping review of actions that align with the interactive care model

Tobiano

Jerofke‐Owen

Marshall

2020

Scandinavian Caring Sciences

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“…Patients with considerably high adherence are likely to become healthier than those with poor adherence [6], and nonadherence may result in several serious financial, social, familial, individual, and psychological problems [7], such as low income due to an inability to work, high medical costs, and even health deterioration [2]. With the increasing proportion of chronic diseases [8, 9], patient self-management has become critical in treatments [10]. Thus, patient adherence is particularly important for health and rehabilitation.…”

Section: Introductionmentioning

confidence: 99%

Why do patients follow physicians’ advice? The influence of patients’ regulatory focus on adherence: an empirical study in China

Zhang

et al. 2019

BMC Health Serv Res

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Background In general, medical regimens and treatments are more likely to be effective if patients follow their physicians’ advice. However, limited studies have focused on the relationship between regulatory focus and patient adherence. This study explores the antecedents of patient adherence employing regulatory focus theory. Methods This study established a research model consisting of two independent variables, two mediators, one dependent variable, two moderators, three control variables, and six hypotheses. An online survey involving 336 valid responses was conducted to collect data in China. We used structural equation modelling and confirmatory factor analysis to test the hypotheses and to develop the research model. Results The reliability and validity of the measures were accepted. In terms of control variables, age had a positive effect on conservative treatment-related health information seeking behaviour, and patients with different resident statuses held different attitudes towards seeking conservative treatment-related health information. However, educational level did not have any effect on the variables of the research model. The hypothesis testing results corroborate that promotion focus had a positive impact on patients’ emerging treatment-related health information seeking behaviour; prevention focus had a positive impact on patients’ conservative treatment-related health information seeking behaviour, which had a positive impact on patient adherence. In addition, media campaigns had a positive impact on the relationship between promotion focus and emerging treatment-related health information seeking behaviour, and website reputation had a positive impact on the relationship between prevention focus and conservative treatment-related health information seeking behaviour. Conclusions Individuals can be encouraged to seek health information and share health-related knowledge through mass media, such as the Internet, when the quality of information, especially information from online sources, is guaranteed. In addition, physicians need to improve their professionalism and expand their knowledge of conservative healthcare. As a further application of our work, an Internet information recommendation system can be designed to recommend different types of health information for users according to their regulatory focus. Electronic supplementary material The online version of this article (10.1186/s12913-019-4127-9) contains supplementary material, which is available to authorized users.

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“…The high proportion of patients with passive preference in China might be explained by the paternalistic style of interactions in Chinese healthcare settings 37. In this care environment, patients may not fully perceive the participatory roles in cancer care, especially in treatment decision-making 38…”

Section: Discussionmentioning

confidence: 99%

Achievement of patients’ preferences for participation in oncological symptom management and its association with perceived quality of care

Chen¹,

Cohen²,

Livingston³

et al. 2018

PPA

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PurposeThe subjectivity of symptom experience and the recognized role of patients in symptom management highlight the need to understand cancer patients’ participation in symptom management and to identify the associations between patient participation and quality of care. However, research on patient participation has focused mostly on general healthcare activities, rather than symptom management, especially in cancer-care settings. This study aimed to compare the congruence between cancer patients’ preference for and actual perceived experience of participation in symptom management and identify the relationships between preferred and actual patient participation and perceived quality of care.MethodsThis was a cross-sectional study. Patient preference and actual experience of participation in symptom management were evaluated with the modified Control Preference Scale among patients recruited from a specialized cancer hospital in China. Patients’ perception of quality of care was assessed with the short-form Quality from the Patient’s Perspective questionnaire.ResultsA total of 162 patients were recruited. Their mean age was 47.5±12.2 years, and 51.9% were females. Patients’ perceived actual level of participation in symptom management substantially agreed with their preference (weighted κ-coefficient 0.61, 95% CI 0.45–0.77). There was no significant difference between patients’ perception of care quality and level of preference for participation (F=0.35, P=0.722) or actual experience of participation (F=0.76, P=0.519). Higher perceptions of quality of care were found among patients whose preferred roles were achieved (P=0.007) or surpassed (P=0.045).ConclusionThis study identified substantial agreement between patients’ preferred and actual participation, given the generally passive preference. The findings indicated that supporting patients to achieve their preferred level of participation may be more important than focusing activities on encouraging increased desire to participate for the purpose of care-quality improvement.

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Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses

Cited by 21 publications

References 35 publications

Promoting patient engagement: a scoping review of actions that align with the interactive care model

Promoting patient engagement: a scoping review of actions that align with the interactive care model

Why do patients follow physicians’ advice? The influence of patients’ regulatory focus on adherence: an empirical study in China

Achievement of patients’ preferences for participation in oncological symptom management and its association with perceived quality of care

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Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses

Cited by 21 publications

References 35 publications

Promoting patient engagement: a scoping review of actions that align with the interactive care model

Promoting patient engagement: a scoping review of actions that align with the interactive care model

Why do patients follow physicians’ advice? The influence of patients’ regulatory focus on adherence: an empirical study in China

Achievement of patients&rsquo; preferences for participation in oncological symptom management and its association with perceived quality of care

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Achievement of patients’ preferences for participation in oncological symptom management and its association with perceived quality of care