Perceptions of people living with Parkinson's disease: a qualitative study in Iran

Soleimani, Mohammad Ali; Bastani, Farideh; Negarandeh, Reza; Greysen, Ryan

doi:10.12968/bjcn.2016.21.4.188

Cited by 25 publications

(18 citation statements)

References 36 publications

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“…59 Soleimani et al revealed that people living with Parkinson's were concerned about losing social connectedness because of their disease (preventing them from leaving the house or increasing their desire to remain isolated to conceal symptoms). 60 Reduced social outings were found to greatly influence QoL and functioning in other relationships (eg, couple and family). 23,61 Fleming et al reported a divide in how friendships changed with PD.…”

Section: Friendship Rolementioning

confidence: 99%

“…4,54,59,60 Rubenstein et al noted that although the number of visits friends made to people living with Parkinson's remained the same, people living with Parkinson's were less likely to initiate social outings with friends. 60 Reduced social outings were found to greatly influence QoL and functioning in other relationships (eg, couple and family). 60 Reduced social outings were found to greatly influence QoL and functioning in other relationships (eg, couple and family).…”

Section: Friendship Rolementioning

confidence: 99%

“…38 Most people living with Parkinson's reported the number of social contacts they had remained stable after diagnosis and following some treatments for PD (eg, DBS surgery). 4,54,59,60 Rubenstein et al noted that although the number of visits friends made to people living with Parkinson's remained the same, people living with Parkinson's were less likely to initiate social outings with friends. 59 Soleimani et al revealed that people living with Parkinson's were concerned about losing social connectedness because of their disease (preventing them from leaving the house or increasing their desire to remain isolated to conceal symptoms).…”

Section: Friendship Rolementioning

confidence: 99%

“…39 Qualitative studies also revealed that leaving the workforce impacted other social roles and overall QoL due to perceived loss of societal contribution and social contacts from work. 23,51,60 Two papers described the impact of DBS and levodopa on work roles. There was no evidence that levodopa led people to rejoin the workforce.…”

Section: Work Rolementioning

confidence: 99%

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Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Perepezko

Hinkle

Shepard

et al. 2019

Int J Geriat Psychiatry

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Objectives Parkinson's disease (PD) is a progressive neurodegenerative disease that often impedes activities of daily living (ADL) and social functioning. Impairment in these areas can alter social roles by interfering with employment status, household management, friendships, and other relationships. Understanding how PD affects social functioning can help clinicians choose management strategies that mitigate these changes. Methods We conducted a mixed‐methods systematic review of existing literature on social roles and social functioning in PD. A tailored search strategy in five databases identified 51 full‐text reports that fulfilled the inclusion criteria and passed the quality appraisal. We aggregated and analyzed the results from these studies and then created a narrative summary. Results Our review demonstrates how PD causes many people to withdraw from their accustomed social roles and experience deficits in corresponding activities. We describe how PD symptoms (eg, tremor, facial masking, and neuropsychiatric symptoms) interfere with relationships (eg, couple, friends, and family) and precipitate earlier departure from the workforce. Additionally, several studies demonstrated that conventional PD therapy has little positive effect on social role functioning. Conclusions Our report presents critical insight into how PD affects social functioning and gives direction to future studies and interventions (eg, couple counseling and recreational activities).

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Section: Friendship Rolementioning

confidence: 99%

Section: Friendship Rolementioning

confidence: 99%

Section: Friendship Rolementioning

confidence: 99%

Section: Work Rolementioning

confidence: 99%

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Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Perepezko

Hinkle

Shepard

et al. 2019

Int J Geriat Psychiatry

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“…Changing identity, self-worth and purpose falls into the life experience of PD patients, forming the basis of their decisions and behaviours (Bramley and Eatough, 2005; Gibson and Kierans, 2017; Olsson and Nilsson, 2015;Sheehy et al, 2016;Simpson et al, 2015;Sunvisson, 2006). In a chronic disease such as PD, perceptions and attitudes of individuals toward themselves are considered to have an important influence on the quality of self-care behaviours (Soleimani et al, 2016). In this study, patients with negative self-concepts became more passive in their self-care over time.…”

Section: Discussionmentioning

confidence: 72%

Real-life experiences of patients with Parkinson's disease

Tomagová¹,

Lepiešová²,

Bóriková³

et al. 2019

Kontakt

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Parkinson's disease (PD) has a major impact on patients' real-life experience. Up to now, there has been a lack of literature reviews, including comprehensive systematic ones oriented on the real life experience of PD patients. The aim was to identify, analyse, summarise and synthesise findings from qualitative studies focused on real-life experiences of PD patients. A qualitative literature review was adopted. Using EBSCOhost interface, the following research databases were searched in January 2018: Academic Search Complete; Health Source: Nursing/Academic Edition and MEDLINE. To appraise the methodological quality of selected studies, the CASP -Qualitative Research Checklist was used. Thematic synthesis was adopted to synthesise qualitative findings. From the 241 records retrieved, 16 studies were relevant to the aim of our review. Six main themes were generated by thematic synthesis: Changing body; Range of emotional responses; Changing identity, self-worth and purpose; Social life limitations and challenges; Life control; and Future perspectives. The review presents a broader perspective on how PD patients experience their life with the disease. The findings may be helpful for healthcare professionals in order to better understand the need to implement individualized patient-centred care. Our findings may be useful to guide further qualitative research on the issue of the life experience of PD patients as well as to conduct systematic review.

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A Qualitative Study: the Experience of Geriatricians with Active Ageing of Older Adults with Parkinson’s Disease

Galea¹,

Vella²

2022

SN Compr. Clin. Med.

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Perceptions of people living with Parkinson's disease: a qualitative study in Iran

Abstract: The study results showed that older adults with PD face a number of challenges in self-care. In addition, the 'fear of becoming disabled' was the main concern of patients with PD, particularly in late stages of the disease.

Cited by 25 publications

References 36 publications

Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Real-life experiences of patients with Parkinson's disease

A Qualitative Study: the Experience of Geriatricians with Active Ageing of Older Adults with Parkinson’s Disease

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