Perceptions of Survivorship Care among Latina Women with Breast Cancer in Los Angeles County

Tisnado, Diana M.; Mendez-Luck, Carolyn A.; Metz, J. M.; Peirce, Katelynn; Montaño, Brian

doi:10.1111/phn.12299

Cited by 10 publications

(8 citation statements)

References 28 publications

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“…This perceived responsibility, in addition to the stress of managing their diagnosis, treatment, and symptoms and side effects, led women to feel overwhelmed and unable to effectively manage their health. Similar findings have been observed in previous studies 31,32 that found that patients reporting confusion and anxiety regarding the continuity of care, and had unmet information needs with respect to SCPs are common. This study’s findings may be the result of the minimal involvement in the development and communication about their SCPs in the study sample.…”

Section: Discussionsupporting

confidence: 91%

Perspectives of Survivorship Care Plans Among Older Breast Cancer Survivors: A Pilot Study

et al. 2020

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The Commission on Cancer’s standard 3.3 represents a paradigm shift in the care of cancer survivors, recommending that survivors receive a treatment summary and survivorship care plan (SCPs). A focus on older breast cancer survivors is needed, as they are the majority of the breast cancer population and their experiences and perspectives of SCPs is limited in the literature. This pilot study utilized a mixed methods approach (focus groups and self-report questionnaire data) to gather information on older (≥65 years) breast cancer survivors’ perspectives of their SCPs, cancer survivorship, and communication with their health-care providers. The questionnaire was completed individually by the participants prior to the focus group and contained items on basic demographics and their health status following cancer treatment. The focus groups indicated that only a minority of women actually developed a SCP. Those who developed a SCP in collaboration with their providers valued the personal care and attention received. However, some participants reported poor communication with their providers and within their health-care team, resulting in frustration and confusion. Participants’ suggestions for ideal SCPs included better education and personalization, particularly in appropriate nutrition and exercise, and managing side effects and comorbidities. Lastly, the women believed that additional long-term care resources, such as health coaches, were important in improving their survivorship. These findings provide insight into enhancing the content, communication, and application of SCPs to improve the survivorship experience of older breast cancer survivors.

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Section: Discussionsupporting

confidence: 91%

Perspectives of Survivorship Care Plans Among Older Breast Cancer Survivors: A Pilot Study

et al. 2020

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“…The literature review on breast cancer survivorship and its determinants indicated significant unmet survivorship care needs among Latina breast cancer survivors including issues related to finance, symptom management, and survivorship care related information [4,25] and poor mental and physical health and low quality of life [26][27][28]. The determinants for the optimal use of SCP included knowledge about survivorship related issues [4,29,30], psychological distress (i.e., anxiety and fear concerning cancer recurrence) [26,27,31], and lack of confidence in patient-physician communication and management of chronic illness [30,32,33].…”

Section: Step One: Needs Assessmentmentioning

confidence: 99%

Development of a Survivorship Care Plan (SCP) Program for Rural Latina Breast Cancer Patients: Proyecto Mariposa—Application of Intervention Mapping

Zúñiga

Woodruff

et al. 2020

IJERPH

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Latina breast cancer survivors are less likely to receive a comprehensive Survivorship Care Plan (SCP) than non-Latina Whites. Evidence-based and theory driven interventions are needed to promote a culturally and linguistically responsive SCP. This paper describes the application of Intervention Mapping (IM) in the development of Proyecto Mariposa, a comprehensive SCP program targeting Latina breast cancer survivors living in a rural U.S.–Mexico border region. We conducted a needs assessment using focus groups (n = 40) and individual interviews (n = 4) with stakeholders to elicit their needs and preferences relating to SCPs and SCP aid (Step1). Content analysis of transcripts was conducted using Atlas.ti. The findings informed the development of a matrix of change objectives where we selected specific behavioral theories to ground the practical application of the SCP program (Step 2). We identified behavioral theories and the practical application of behavioral change (Step 3) and designed and developed a comprehensive SCP program which consisted of a culturally—and linguistically—adapted SCP document and animated video as an SCP aid (Step 4). The systematic application of the IM framework resulted in the development of a comprehensive and culturally tailored SCP intervention. Stakeholder active involvement in the cultural tailoring of the program was imperative and strengthens the SCP intervention.

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“…In comparison to non‐Latina White women, Latinas are more likely to (a) be diagnosed before age 50, (b) be diagnosed at an advanced stage, (c) have difficult to treat cancer types, and (d) have higher symptom burden 3,5–7 . They are also more likely to report unmet needs related to finances, continuity of care, information, and symptom management 3,8,9 . Thus, it is important to develop infrastructure, expand psychosocial supports, and understand the factors that facilitate women's access to these supports 3,9–11 .…”

Section: Introductionmentioning

confidence: 99%

“…3,[5][6][7] They are also more likely to report unmet needs related to finances, continuity of care, information, and symptom management. 3,8,9 Thus, it is important to develop infrastructure, expand psychosocial supports, and understand the factors that facilitate women's access to these supports. 3,[9][10][11] In particular, research is needed to examine ways to enhance access for Latina women who traditionally have been underserved-those who immigrated to the United States, whose primary language is Spanish, and who have limited access to health care.…”

mentioning

confidence: 99%

“…3,8,9 Thus, it is important to develop infrastructure, expand psychosocial supports, and understand the factors that facilitate women's access to these supports. 3,[9][10][11] In particular, research is needed to examine ways to enhance access for Latina women who traditionally have been underserved-those who immigrated to the United States, whose primary language is Spanish, and who have limited access to health care. 3,11 Reviews of the extant literature describing research largely conducted with White, non-Latina samples, show that breast cancer survivors derive benefits from psychosocial care.…”

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confidence: 99%

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Creating community: Expanding access to psychosocial programs for Latina breast cancer survivors

2021

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Objective Breast cancer survivors often derive benefits from psychosocial interventions, but less is known about Latina women's experiences. Given the disproportionately high disease burden faced by Latina survivors, it is critical to examine ways to enhance access for this population. Thus, the present study aimed to (a) examine women's perceptions of factors associated with effective delivery of a psychosocial program designed for Spanish speaking women with limited access to care, and (b) identify the mechanisms by which the program enhanced women's psychological well‐being. Methods In a qualitative study, in‐depth interviews were conducted with 15 immigrant Latina breast cancer survivors who previously received psychosocial services at a community‐based organization. Grounded theory was used to analyze the data. Results Through open, axial, and selective coding, we arrived at the core category achieving a sense of community. The psychosocial program promoted access and enhanced women's psychological well‐being by creating a sense of community among participants. This was facilitated by three primary aspects of service provision: access factors, a holistic approach to health, and therapeutic factors imparted through a biweekly support group. Conclusions Psychosocial services promoted a sense of community among Latina breast cancer survivors while reflecting their cultural values and unique psychosocial needs. Findings may guide the development of interventions to increase access to care, enhance health outcomes, and create and maintain a sense of community among medically underserved populations.

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Perceptions of Survivorship Care among Latina Women with Breast Cancer in Los Angeles County

Cited by 10 publications

References 28 publications

Perspectives of Survivorship Care Plans Among Older Breast Cancer Survivors: A Pilot Study

Perspectives of Survivorship Care Plans Among Older Breast Cancer Survivors: A Pilot Study

Development of a Survivorship Care Plan (SCP) Program for Rural Latina Breast Cancer Patients: Proyecto Mariposa—Application of Intervention Mapping

Creating community: Expanding access to psychosocial programs for Latina breast cancer survivors

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