Perceptions of the risks and benefits of medicines in patients with rheumatoid arthritis and other painful musculoskeletal conditions

Berry, Diane; Bradlow, Anthony; Bersellini, Elisabetta

doi:10.1093/rheumatology/keh196

Cited by 37 publications

(37 citation statements)

References 12 publications

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“…A number of studies have addressed medication use from the patient's perspective (29)(30)(31)(32)(33)(34), including a detailed questionnaire study by Neame and Hammond (35). The current study differs from earlier investigations in several important ways.…”

Section: Discussionmentioning

confidence: 85%

Resistance of rheumatoid arthritis patients to changing therapy: Discordance between disease activity and patients' treatment choices

Wolfe

Michaud

2007

Arthritis & Rheumatism

116

117

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Objective. Despite advances in rheumatoid arthritis (RA) treatment, patients' decisions regarding therapy often deviate from expert recommendation. This study was undertaken to investigate patients' acceptance and satisfaction with therapy, willingness to change therapy, and reasons for not changing.Methods. Participants (n ‫؍‬ 6,135) completed an 11-item questionnaire concerning treatment preferences. Eight questions assessed reasons for not wanting to change therapy. The contribution of individual predictors was determined by logistic regression analysis.Results. Questionnaire responses showed that 63.8% of the patients would not want to change therapy as long as their condition didn't get worse; 77.3% were satisfied with their medications, while 9.4% were dissatisfied. These assessments were weakly related to RA activity and functional status. Side effects had occurred in 22.4% of the patients during the previous 6 months, and in 65.5% at some period during their lifetime. Predictors of unwillingness to change therapy were satisfaction with RA control, which had an odds ratio ( Conclusion. There is substantial discrepancy between declared satisfaction with therapy and measured RA activity and functional status. Most RA patients are satisfied with their therapy, even many with abnormal scores. Fear of loss of control of RA and fear of side effects are major patient concerns. Maintenance of current status, rather than future improvement, appears to be a high priority for patients.

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Section: Discussionmentioning

confidence: 85%

Resistance of rheumatoid arthritis patients to changing therapy: Discordance between disease activity and patients' treatment choices

Wolfe

Michaud

2007

Arthritis & Rheumatism

116

117

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“…16 Barriers to adherence included the complexity of the treatment regimen, unpleasant side effects of the drugs, lack of apparent immediate benefits, and cultural, social, and behavioral factors. 17,18 In addition, social barriers and miscommunication between clients and staff contribute to failure to comply with medication regimen. 18 While there has been significant progress in the reduction in the incidence of acute rheumatic fever (ARF) in developed countries, developing countries have not seen comparable results.…”

Section: Introductionmentioning

confidence: 99%

Low adherence to secondary prophylaxis among clients diagnosed with rheumatic fever, Jamaica

Thompson

Brown

Edwards

et al. 2014

Pathogens and Global Health

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Objectives:To determine the level of adherence and possible barriers to secondary prophylaxis among clients with rheumatic fever in Kingston, Jamaica. Methods: Cross-sectional survey of 39 clients diagnosed with rheumatic fever, receiving penicillin prophylaxis for more than a year using a 22-item self-administered questionnaire on adherence to secondary prophylaxis and knowledge of rheumatic fever. The patients' records were reviewed to determine the number of prophylaxis injections the patients received for the year 2010. Results: The majority of participants (74%) were females and 51% were adults. Only 48.7% had a high level of adherence. The majority (72%) had low knowledge levels regarding their illness, while only 5% had a high knowledge level score. Most clients (70%) strongly agreed that nurses and doctors encouraged them to take their prophylaxis. However, over 60% reported that they travelled long distances and or waited long periods to get their injections. One-third reported that they missed appointments because of fear of injections and having to take time off from work or school. Discussion: Clients attending the health centers studied had limited knowledge about rheumatic fever. Barriers to adherence included fear of the injections, long commutes, and long waiting periods at the facilities studied.

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“…Con relación a algunas características sociodemográficas y clínicas es sólo en el grupo de AR donde hubo impacto de estas. El "estrato socioeconómico" impactó positivamente el índice sumario mental (MOS SF-36), mientras la variable clínica "recibe tratamiento farmacológico" afectó negativamente el índice sumario físi-co. Los pacientes de IRC y AR como se ha indicado son los que más comprenden su enfermedad y los que más tiempo llevan con ella, posiblemente esto los hace estar más alerta de las consecuencias sociales, económicas, físicas y emocionales que acarrea la misma, esto se refleja mucho más en los pacientes de AR donde el nivel socioeconómico y el tratamiento médico les afecta mucho más ya que la enfermedad les implica costos y tener que soportar los efectos secundarios de la medicación aunque sean aceptados y vistos como necesarios por los pacientes (Berry, Bradlow & Bersellini, 2004;Konttinen et al, 2006), a diferencia del grupo de EPOC que son los que menos entienden lo que les pasa y consideran que su enfermedad es más "pasajera" razón que puede explicar porque las consecuencias de su enfermedad están más focalizadas en lo emocional, ya que, quizás su preocupación gira alrededor de los costos sociofamiliares, económicos, de cambios en su estilo de vida, de no poder hacer las actividades rutinarias en ese momento por la hospitalización. Estas diferencias pueden explicarse en parte a anales de psicología, 2012, vol.…”

Section: Discussionunclassified

Resilience, illness perception of disease, beliefs and spiritual-religious coping in relation to the health-related quality of life in chronic colombian patients

2012

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Resumen: El objetivo del estudio fue relacionar la resiliencia, percepción de enfermedad, creencias y afrontamiento espiritual-religioso sobre la calidad de vida relacionada con la salud en 121 pacientes de la ciudad de Medellín (Colombia) con diagnóstico de insuficiencia renal crónica (n=40), artritis reumatoide (n=41) y enfermedad pulmonar obstructiva crónica (n=40). Instrumentos: escala de resiliencia (RS), escala de resiliencia breve CD-RISC2, cuestionario breve de percepción de enfermedad (IPQ-B), inventario de sistema de creencias (SBI-15R), escala estrategias de afrontamiento espirituales (SCS) y cuestionario de Salud MOS SF-36. Los resultados del análisis de regresión lineal múltiple indicaron que las consecuencias y respuesta emocional tuvieron un peso negativo sobre el índice de salud mental, y que la competencia personal, años de estudios y afrontamiento no religioso tuvieron un peso positivo. Y, las consecuencias, edad y tiempo de diagnóstico de la enfermedad tuvieron un peso negativo sobre el índice de salud física. En conclusión, la CVRS se ve más afectada por las consecuencias, mientras que los años de estudios, el tener mayor tiempo de diagnóstico y más edad la favorecen. Finalmente las creencias/prácticas y el afrontamiento espiritual-religioso no tienen un peso significativo sobre la CVRS. Palabras clave: resiliencia; percepción de enfermedad; creencias y afrontamiento espiritual-religioso; calidad de vida relacionada con la salud; enfermedad crónica.Title: Resilience, illness perception of disease, beliefs and spiritualreligious coping in relation to the health-related quality of life in chronic colombian patients. Abstract: The aim of this study was to evaluate the resilience, illness perception, beliefs and spiritual-religious coping above health-related quality of life in 121 patients from Medellin (Colombia) with chronic kidney disease (n = 40), rheumatoid arthritis (n = 41) and chronic obstructive pulmonary disease (n = 40). Instruments: resilience scale RS, the ConnorDavidson resilience scale CD-RISC2, the brief illness perception questionnaire IPQ-B, systems of beliefs inventory SBI-15R, spiritual coping scale SCS and medical outcomes study short form 36 ítems MOS SF-36. The results of multiple linear regression analysis indicated that the consequences and emotional response of illness perception had a negative weight on the mental health index, and personal competence -RS, years of study and non-religious coping had a positive weight. And the consequences -IPQ-B, age and time of diagnosis of the disease had a negative weight above physical health index. Conclusion, HRQOL is more affected by the consequences, while that the years of schooling, more diagnosis time and years older favor it. Finally beliefs/practices and the spiritualreligious coping are not significant above HRQL.

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Perceptions of the risks and benefits of medicines in patients with rheumatoid arthritis and other painful musculoskeletal conditions

Cited by 37 publications

References 12 publications

Resistance of rheumatoid arthritis patients to changing therapy: Discordance between disease activity and patients' treatment choices

Resistance of rheumatoid arthritis patients to changing therapy: Discordance between disease activity and patients' treatment choices

Low adherence to secondary prophylaxis among clients diagnosed with rheumatic fever, Jamaica

Resilience, illness perception of disease, beliefs and spiritual-religious coping in relation to the health-related quality of life in chronic colombian patients

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