Perfil sociodemográfico e participação paterna nos cuidados diários de crianças com microcefalia

Abstract

Introduction: The family lives sociocultural transformations requesting more of the man in the children's daily cares with deficiency because commonly the mothers wrap up in the tasks causing an overload in the daily tasks. Objective: To verify the paternal participation in the daily care to the child with microcephaly, to trace the paternal socio-demographic profile, to know the main activities performed by the fathers and to analyze their perception in the participation of the children daily cares. Method: This is a quantitative and qualitative study, held in 3 Specialized Centers in Rehabilitation in the city of Maceio, AL, Brazil, with 23 fathers of children with microcephaly, in the period of September of 2017 to February of 2018. For the quantitative component, a specific questionnaire and analysis through descriptive statistics, arithmetic average and percentage were used. In the qualitative component, a semi-structured interview was used that was analyzed through the Analysis of Content.Results: Most of the fathers live with the child, 70% make available 2 hours of time for the son's daily care, and there was a larger paternal engagement in the activities of playing on 74% and social participation on 91%. In the qualitative component, 4 parents participated in the interview, and three thematic categories emerged: Paternal perception and self-assessment regarding the participation in the daily care of the child with microcephaly; Factors associated with paternal engagement in the daily care; and Identification of the activities performed by the fathers in the care to the child with microcephaly. Conclusion: The fathers engaged in daily care to assist the mothers and not as the protagonist. It stands out the need for strategies that favor such participation in the dimensions of the care to the child with a disability.

A (nova) relação pai-filhos: uma revisão integrativa da literatura nacional entre 2000 e 2019

“…Todavia, observaram-se ambientes domiciliares marcados por papeis tradicionais e pouca estimulação paterna às crianças (Silva & Aielo, 2009). Uma vez que, apesar do engajamento em atividades de brincar e participação social, os pais atuavam como auxiliares das mães nos cuidados diários com os filhos (Cruz, Santos, Silva, Reis, & Silva, 2019). Situações que envolvem hospitalização da criança, como no caso da prematuridade, chamaram a atenção para o sofrimento vivido pelos pais no período de internação, marcado pelo sentimento de incompletude ao deixar o filho no hospital, por movimentos de solidariedade de pessoas próximas e aprendizagens de cuidar do filho e assumir responsabilidades paternas nesse contexto (Tronchin &Tsunechiro, 2006).…”

“The fight is ours”: the experience of caregivers of children with congenital zika syndrome

“…The literature shows that fathers can also have active engagement and involvement in the care of the child with special needs, and when they do, they are skilled and willing to provide the best care for the child. However, these actions by the fathers are still performed in an auxiliary manner, with no male protagonism 18,19 .…”

Relações pai-filho e o cuidado da criança com deficiência: olhar da equipe de saúde

“…Os profissionais deste estudo recorrem a diálogos e orientações aos pais para aproximá-los das atividades e participação dos cuidados à criança. Tal conduta é recomendada no âmbito interdisciplinar, visto que os profissionais devem estimular o engajamento dos pais no cuidado de seus filhos por meio da elaboração de estratégias nos serviços, como: orientações, atividades direcionadas a eles, reuniões, grupos ou eventos educacionais (Cruz et al, 2019).…”