Performance of health-related quality-of-life instruments in a spinal cord injured population

Andresen, Elena M.; Fouts, Bradley S.; Romeis, James C.; Brownson, Carol A.

doi:10.1016/s0003-9993(99)90077-1

Cited by 222 publications

(166 citation statements)

References 33 publications

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“…20 The SF-36 still lacks a means of measuring and focusing on urinary symptoms As a result, it is necessary to combine it with the King's Health Questionnaire, a condition-specific quality of life measurement, to assess the unique impact of HRQL because of urinary problems. In this study, we found that the Spearman's correlation coefficients ranged from À0.52 to À0.68 (P-value o0.05 in all domains).…”

Section: Discussionmentioning

confidence: 99%

The relationship between bladder management and health-related quality of life in patients with spinal cord injury in the UK

Liu

Gall

et al. 2009

Spinal Cord

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Study design: Cross-sectional study. Objectives: (1) To assess the relationship between bladder management methods and the healthrelated quality of life (HRQL) in patients with spinal cord injury (SCI). (2) To identify any correlation between the two questionnaires used to assess the quality of life (one validated for SCI and one validated for bladder symptoms). Setting: Spinal Cord Injury Centre, Royal National Orthopaedic Hospital, Middlesex, UK. Methods: This study is based on two questionnaires with results collected from 142 people with SCI. The two questionnaires were based on information from the Short-Form 36-Item Health Survey (SF-36) and the King's Health Questionnaire and included demographic characteristics, bladder management methods and the frequency of incontinence. Results: There is a moderate correlation between the results of the SF-36 and the King's Health Questionnaire. Only 21% SCI patients report normal voiding without any other form of bladder management. The type of bladder management may influence the HRQL in patients with SCI. Clean intermittent catheterization by attendant, indwelling transurethral catheterization and indwelling suprapubic catheterization are the three groups with the worst mental status. In addition, the frequency of incontinence is a strong influence on HRQL. Conclusions:The results of this study may provide a general baseline HRQL for patients with SCI. Our findings show the relationships between bladder management methods and quality of life in patients with SCI. In addition, the impact of incontinence on quality of life was also confirmed.

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Section: Discussionmentioning

confidence: 99%

The relationship between bladder management and health-related quality of life in patients with spinal cord injury in the UK

Liu

Gall

et al. 2009

Spinal Cord

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“…The IADL was rated as 'acceptable' by a large majority in a sample of individuals with SCI (in response to a request for their opinion about completing the scale 23 ).…”

Section: Assessment Of Functional Walkingmentioning

confidence: 99%

Long-term body-weight-supported treadmill training and subsequent follow-up in persons with chronic SCI: effects on functional walking ability and measures of subjective well-being

et al. 2005

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Study design: Longitudinal, prospective within-subject design. Objectives: (1) To determine the effects of long-term body-weight-supported treadmill training (BWSTT) on functional walking ability and perceived quality of life in persons with chronic incomplete spinal cord injury (SCI), and (2) to investigate whether training adaptations are maintained following cessation of the BWSTT programme. Setting: Hamilton, Ontario, Canada. Methods: A group of 14 individuals with chronic (mean 7.4 years postinjury) incomplete SCI (ASIA B & C) participated in thrice-weekly sessions of BWSTT for a period of approximately 12 months (144 sessions). Functional walking ability and indices of subjective well-being were evaluated during the training programme and over an 8-month follow-up. Results: In total, 13 subjects successfully completed the 144 training sessions in the required study period (max. 15 months). Adherence to the thrice-weekly training frequency was 78.8%. All subjects improved in treadmill walking ability (54% reduction in required external bodyweight support (BWS), 180% increase in treadmill walking speed, 335% increase in distance walked/session), and six subjects improved their capacity to walk over ground. There were accompanying increases in satisfaction with life and satisfaction with physical function, both of which were significantly correlated with improvements in treadmill walking ability. All but one subject returned for follow-up assessment 8 months post-training; while there was a slight decline in treadmill walking performance, over ground walking scores remained relatively stable. The only change in subjective well-being in the follow-up was a slight decrease in satisfaction with physical function. Conclusion: Thrice-weekly BWSTT for 12 months was an effective stimulus to improve treadmill walking ability and indices of subjective well-being in persons with chronic incomplete SCI, and most of these improvements were maintained for up to 8 months following the cessation of training.Spinal Cord (2005) 43, 291-298.

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“…The form takes about 5-10 min to complete. In general, SF-36 has been shown to be acceptable to people with disabilities [1]. Some changes in wording was suggested for respondents using wheelchairs, for example due to spinal cord injury [49].…”

mentioning

confidence: 99%

Health related quality of life outcome instruments

Németh

2005

Eur Spine J

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Performance of health-related quality-of-life instruments in a spinal cord injured population

Cited by 222 publications

References 33 publications

The relationship between bladder management and health-related quality of life in patients with spinal cord injury in the UK

The relationship between bladder management and health-related quality of life in patients with spinal cord injury in the UK

Long-term body-weight-supported treadmill training and subsequent follow-up in persons with chronic SCI: effects on functional walking ability and measures of subjective well-being

Health related quality of life outcome instruments

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