Perinatal grief following neonatal comfort care for lethal fetal condition

Depoers-Béal, C; Baccon, F A Le; Bouar, G. Le; Proisy, Maïa; Arnaud, Alexis; Legendre, Guillaume; Dayan, Jacques; Bétrémieux, P.; Lous, Maëla Le

doi:10.3233/npm-180180

Cited by 5 publications

(2 citation statements)

References 25 publications

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“…The findings relating to the need for compassionate care are congruent with other literature regarding TOPFA, which highlights the importance and impact of compassionate relationships with healthcare professionals for parents in this situation [44,50,80]. While these findings are not dissimilar to the experiences of every pregnant woman [94], the circumstances and the outcome of a TOPFA makes this different [95][96][97]. Women and their partners want and need staff to connect with them as grieving parents and to acknowledge and respond to the loss of their baby [98][99][100].…”

Section: The Importance Of Compassionate Caresupporting

confidence: 80%

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Heaney¹,

Tomlinson

Aventin³

2022

BMC Pregnancy Childbirth

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Background Improved technology and advances in clinical testing have resulted in increased detection rates of congenital anomalies during pregnancy, resulting in more parents being confronted with the possibility of terminating a pregnancy for this reason. There is a large body of research on the psychological experience and impact of terminating a pregnancy for fetal anomaly. However, there remains a lack of evidence on the holistic healthcare experience of parents in this situation. To develop a comprehensive understanding of the healthcare experiences and needs of parents, this systematic review sought to summarise and appraise the literature on parents’ experiences following a termination of pregnancy for fetal anomaly. Review question What are the healthcare experiences and needs of parents who undergo a termination of pregnancy following an antenatal diagnosis of a fetal anomaly? Methods A systematic review was undertaken with searches completed across six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane). Eligible articles were qualitative, quantitative or mixed methods studies, published between January 2010 and August 2021, reporting the results of primary data on the healthcare experiences or healthcare needs in relation to termination of pregnancy for fetal anomaly for either, or both parents. Findings were synthesised using Thematic Analysis. Results A total of 30 articles were selected for inclusion in this review of which 24 were qualitative, five quantitative and one mixed-methods. Five overarching themes emerged from the synthesis of findings: (1) Contextual impact on access to and perception of care, (2) Organisation of care, (3) Information to inform decision making, (4) Compassionate care, and (5) Partner experience. Conclusion Compassionate healthcare professionals who provide non-judgemental and sensitive care can impact positively on parents’ satisfaction with the care they receive. A well organised and co-ordinated healthcare system is needed to provide an effective and high-quality service. Trial Registration: PROSPERO registration number: CRD42020175970.

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Section: The Importance Of Compassionate Caresupporting

confidence: 80%

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Heaney¹,

Tomlinson

Aventin³

2022

BMC Pregnancy Childbirth

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“…Perinatal loss is the death of a fetus through intra-uterine death, stillbirth, or neonatal death [1,2]. The largest proportion of the world's perinatal loss occurs in the late preterm, term, and intrapartum periods [3].…”

Section: Introductionmentioning

confidence: 99%

Maternal Coping Mechanism and Its Associated Factors Following Perinatal Loss in Hospitals of Wolaita Zone, South Ethiopia 2021

Yeshambel¹,

Alene²,

Adella³

et al. 2023

OBM Neurobiol

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Perinatal loss is the most painful and unanticipated experience for those who conceived and it is a major global concern worldwide, especially in developed countries like Ethiopia. Women who lost their pregnancy are believed to be at higher risk of developing severe grief following a loss. To reduce the risk of complications after perinatal loss, healthcare providers need to appreciate the grieving process and identify grief factors in mothers for early copying and to be managed promptly by providing adequate emotional, social, and psychological support. This study aimed to assess the level of maternal coping mechanisms and associated factors following perinatal loss in Hospitals of Wolaita Zone, Ethiopia, 2021. A hospital-based cross-sectional study design was conducted from June 30/2021-August15/2021. Study participants were selected through systematic random sampling. Epi-data manager version 4.6 was used for template preparation and data entry and SPSS version 25 was used for analysis. Logistic regression was employed. The strength of association was declared at a p-value < 0.05 with 95% CI. Out of the total 393 participants, 51.4% had positive coping mechanisms whereas the rest, 48.6% had a poor coping mechanism following perinatal loss. Participants who have been satisfied with marriage (AOR = 5.64, 95% CI(3.10-10.29)), history of Antenatal care(ANC) follow-up(AOR = 2.52, 95% CI(1.39-4.57)), profession-based support(AOR = 2.91, 95% CI(1.64-5.15)), support from their own spiritual belief (AOR = 3.87, 95% CI(2.33-6.43)), support from their parents(AOR = 8.11, 95% CI(3.94-16.69)), support from their husband(AOR = 3.2, 95% CI (1.74-5.89)) and discussed/received information from those who had a history of loss(AOR = 2.65, 95% CI (1.31-5.32)) were some of the factors associated with positive maternal copying following perinatal loss. Maternal coping following the perinatal loss was relatively low. Thus, healthcare providers need to be more cautious and ensure mothers receive adequate care, and giving adequate emotional, social, and psychological support for them during grieving moments is essential.

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The Medical Process in Pregnancy Terminations for Fetal Anomaly: An Analysis of Counselling and Bereavement

Sénéchal

Taillefer

Payot

2022

Journal of Obstetrics and Gynaecology Canada

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Perinatal grief following neonatal comfort care for lethal fetal condition

Cited by 5 publications

References 25 publications

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Maternal Coping Mechanism and Its Associated Factors Following Perinatal Loss in Hospitals of Wolaita Zone, South Ethiopia 2021

The Medical Process in Pregnancy Terminations for Fetal Anomaly: An Analysis of Counselling and Bereavement

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