Person‐centred care in nurse‐led outpatient rheumatology clinics: Conceptualization and initial development of a measurement instrument

Abstract

A conceptual outpatient PCC framework and a 24-item questionnaire intended to measure PCC in nurse-led outpatient rheumatology clinics were developed. The extent to which the questionnaire represents a measurement instrument remains to be tested.

Whose centre is it anyway? Defining person-centred care in nursing: An integrative review

“…The term 'relationship' is prominent in the literature including the terms therapeutic relationship [16], clinical relationship [35] and partnership [29,36,37]. This is described in the contexts of cohesive, cooperative teams [29,32], mutuality between provider and receiver [38], and the balance of power and the sharing of knowledge [16]. These themes are further developed through the practice of the nurse and are thus carried forward to the next theme, Practice.…”

“…Further to this is the notion of the person having 'active' involvement in the care process [22,35]. This is described through identification of the person's strengths and reinforcing this through the care continuum [16,38]. In addition to this, the literature describes empowerment, promoting the sense of self efficacy [31,33,37], supporting the person to be as self-managing as possible [36] or to have a level of autonomy in their care.…”

“…Consistently, the literature discussed the idea of measuring PCC as a method of quantifying this important element of nursing practice amongst the myriad of measurable tasks nursing time is allocated to. The need and ability to measure PCC is cited as crucial for quality improvement of care [31,38]. This review excluded articles related to the measurement of PCC as the primary aim was to find how PCC was defined, however this was still very much a part of the discussion around the meaning and practice of PCC.…”

“…Lawrence & Kinn [27] found that outcome measures used where often in line with the needs and requirements of clinicians, auditors and researchers, or hospital clinical outcomes [33], rather than with the goals of the patient. Outcomes vary from self-care, patient satisfaction, well-being and improved quality of care [28,31,38] to improved adherence and decreased hospitalisation [29]. This highlights competing priorities within the nursing profession and demonstrates that nursing time is conflicted between what they 'should' do and what they 'must' do, hence highlighting a nurses limited power to practice PCC in the context of the system standards.…”

Shared decision‐making in people with chronic disease: Integrating the biological, social and lived experiences is a key responsibility of nurses

“…Nursing is characterized by evidence‐based practice and SDM with the patient, and takes place in the context of a multidisciplinary team care (Bech et al, ). Therefore, nurses should have a pivotal role in assessing and managing the impact of disease and promoting SDM (Bala et al, ; Salisbury et al, ; Ventura, ).…”