Personal eHealth Knowledge Spaces though Models, Agents and Semantics

Kondylakis, Haridimos; Plexousakis, Dimitris; Hrgovcic, Vedran; Woitsch, Robert; Premm, Marc; Schuele, Michael

doi:10.1007/978-3-319-12256-4_31

Cited by 3 publications

(2 citation statements)

References 4 publications

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“…Findings of a recent review from Boots et al [ 22 ] indicated that multicomponent interventions, combining tailored information with interaction, are the most promising. The technical design of the eHM-DP was realized by service-oriented architecture based on the open source Web platform, Liferay; modeling and semantic knowledge engineering methods; and multiagent systems (MAS) [ 28 , 29 ]. Based on the aforementioned technologies and a rapid and iterative design process between technical and medical partners, the caregivers’ needs were integrated based on (1) a caregiver focus group, (2) interviews with three medical professional experts in the field, and (3) reviews of current scientific literature [ 2 , 3 , 5 , 21 , 22 , 30 - 33 ].…”

Section: Methodsmentioning

confidence: 99%

Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Schaller¹,

Marinova-Schmidt²,

Setzer³

et al. 2016

JMIR Res Protoc

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BackgroundThe European eHealthMonitor project (eHM) developed a user-sensitive and interactive Web portal for the dementia care setting called the eHM Dementia Portal (eHM-DP). It aims to provide targeted support for informal caregivers of persons with dementia and professionals.ObjectiveThe objective of this study was to assess the usefulness and impact of the eHM-DP service in the dementia care setting from two user perspectives: informal caregivers and professionals.MethodsThe evaluation study was conducted from June to September 2014 and followed a before-after, user-participatory, mixed-method design with questionnaires and interviews. The used intervention was the eHM-DP: an interactive Web portal for informal caregivers and professionals that was tested for a 12-week period. Primary outcomes for caregivers included empowerment, quality of life, caregiver burden, decision aid, as well as perceived usefulness and benefits of the eHM-DP. Primary outcomes for professionals involved decision aid, perceived usefulness, and benefits of the eHM-DP.ResultsA total of 25 informal caregivers and 6 professionals used the eHM-DP over the 12-week study period. Both professionals and informal caregivers indicated perceived benefits and support by the eHM-DP. In total, 65% (16/25) of informal caregivers would use the eHM-DP if they had access to it. Major perceived benefits were individualized information acquisition, improved interaction between informal caregivers and professionals, access to support from home, and empowerment in health-related decisions (PrepDM Score: 67.9). Professionals highlighted the improved treatment and care over the disease course (83%, 5/6) and improved health care access for people living in rural areas (67%, 4/6). However, there was no improvement in caregiver burden (Burden Scale for Family Caregivers) and quality of life (EuroQol-5D-5L) over the study period.ConclusionsOur study provides insight into the different user perspectives on an eHealth support service in the dementia treatment and care setting. These results are of importance for future developments and the uptake of eHealth solutions in the dementia domain and reinforce the importance of early user involvement. Turning to the primary target of the eHM-DP service, our findings suggest that the eHM-DP service proved to be a valuable post-diagnostic support service, in particular for the home-based care setting. Further research on a larger scale is needed to enhance the implementation in existing health care infrastructures.

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Section: Methodsmentioning

confidence: 99%

Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Schaller¹,

Marinova-Schmidt²,

Setzer³

et al. 2016

JMIR Res Protoc

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“…Interoperability: PHR systems are rarely integrated and interoperable with other electronic service providers [8,9]. In most of the cases, end-users need to enter the whole amount of input information by themselves.…”

Section: Introduc Onmentioning

confidence: 99%

Integrated Care Solutions for the Citizen: Personal Health Record Functional Models to Support Interoperability

Katehakis¹,

Kondylakis²,

Koumakis³

et al. 2017

ejbi

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The ever-growing demand for acquiring, managing and exploi ng pa ent health related informa on has led to the development of many e-Health systems and applica ons. However, despite the number of systems already developed and the apparent need for such systems, end users can only collect online and exploit, only a limited set of informa on for health purposes in the context of personalized, preven ve and par cipatory medicine. To this direc on, this paper ini ally presents the personal health record (PHR) concept, related work and best prac ces for the development of PHR systems in a standardized manner. It also outlines the proposal for meaningful use criteria in the United States (US) and the health level seven (HL7) personal health record system func onal model (PHR-S FM). Focus is put on trying to link core func onality modules of the Integrated Care Solu ons TM PHR system, designed to support the ci zen, paying emphasis on wellbeing, home care and the management of chronic diseases with PHR-S FM personal health func ons, in a preliminary eff ort towards the explora on of func onal models to support interoperability. Based on accumulated experiences from many European Union (EU) research projects, the paper concludes by providing direc ons towards achieving wider PHR adop on and meaningful use.

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Tailored e-Health services for the dementia care setting: a pilot study of ‘eHealthMonitor’

Schaller

Marinova-Schmidt

Gobin

et al. 2015

BMC Med Inform Decis Mak

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BackgroundThe European eHealthMonitor project (eHM) developed a user-sensitive and interactive web portal for dementia care: the eHM Dementia Portal (eHM-DP). It aims to provide targeted and personalized support for informal caregivers of people with dementia in a home-based care setting. The objective of the pilot study was to obtain feedback on the eHM-DP from two user perspectives (caregivers and medical professionals), focusing on caregiver empowerment, decision aid, and the perceived benefits of the eHM-DP.MethodsThe study on the eHM-DP was conducted from March 2014 to June 2014. The methodological approach followed a user-participatory design with a total number of 42 participants. The study included caregivers of people with dementia and medical professionals (MPs) from the metropolitan region of Erlangen-Nürnberg (Bavaria, Germany). Study participants were interviewed face-to-face with semi-structured, written interviews.ResultsCaregivers indicated a high degree of perceived support by the eHM-DP and of provided decision aid. In total, 89 % of caregivers and 54 % of MPs would use the eHM-DP if access were provided. The primary benefits participants perceived were the acquisition of individualized information, computerized interaction between caregivers and MPs, empowerment in health-related decisions and comprehensive insights into the progress of the disease. Major recommendations for improving the eHM-DP encompassed: an active search functionality based on predefined terms, the implementation of a chatroom for caregivers, an upload function and alerts for MPs, as well as the overall design.ConclusionsOur study is the first to have provided new insights and results on an interactive and needs-oriented web portal, endeavouring towards empowerment and assistance in decision making for caregivers as well as MPs within the realm of caring for patients with dementia. The acceptance and willingness to use the eHM-DP emphasizes the potential of eHealth services for community-based dementia care settings.Electronic supplementary materialThe online version of this article (doi:10.1186/s12911-015-0182-2) contains supplementary material, which is available to authorized users.

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Personal eHealth Knowledge Spaces though Models, Agents and Semantics

Cited by 3 publications

References 4 publications

Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Usefulness of a Tailored eHealth Service for Informal Caregivers and Professionals in the Dementia Treatment and Care Setting: The eHealthMonitor Dementia Portal

Integrated Care Solutions for the Citizen: Personal Health Record Functional Models to Support Interoperability

Tailored e-Health services for the dementia care setting: a pilot study of ‘eHealthMonitor’

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