Personal Responses to Traumatic Brain Injury: A Qualitative Study

Crisp, Ross

doi:10.1080/02674649366780371

Cited by 33 publications

(43 citation statements)

References 23 publications

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“…Although based on a limited number of participants, the findings replicated previous research showing that TBI creates a profound change to self-concept [1,5,10,29].…”

Section: The Experience Of Contraction and Expansionsupporting

confidence: 87%

“…The need to re-construct a sense of order in the face of uncertainty appears to have resulted in an Expansion of self -defined by: uncomfortable acceptance of societal expectations for a time. Disparity between self images and those held by others about the individual is a cause for considerable disruption to self-narrative [4,29]. Indeed, Nochi [1] described a similar process of dissociation whereby individuals with TBI shifted awkwardly between personal self-restoration (i.e.…”

Section: The Experience Of Contraction and Expansionmentioning

confidence: 96%

“…In this context, chronological time markers remain spurious and should not determine the individual process. Rather than recovery following a linear path, a personally relevant and individualized trajectory seems more likely to occur [26,28,29]. This considered, individuals with TBI should be provided with space in which to explore opportunities as they attempt to incorporate injury into their lives and expand their feelings of competence and confidence.…”

Section: Introductionmentioning

confidence: 93%

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Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance

2008

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“…Although based on a limited number of participants, the findings replicated previous research showing that TBI creates a profound change to self-concept [1,5,10,29].…”

Section: The Experience Of Contraction and Expansionsupporting

confidence: 87%

Section: The Experience Of Contraction and Expansionmentioning

confidence: 96%

Section: Introductionmentioning

confidence: 93%

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Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance

2008

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“…10 Effective training includes promoting optimal care for persons with TBI that is clientcentered and reflects best practices specific to this condition. Using evidence from qualitative research facilitates more client-centered approaches 11,12 since it provides personal in-sight into TBI, emphasizes the importance of clients' receiving empathy and respect for their care decisions, 11,13 and increases professionals' understanding of the challenges that clients and their families face as they move through the health care system and reintegrate into the community. 6 The use of dramatic productions based on research to promote best practices in clinical education is a relatively new field that has enormous potential to make research more vital, tangible, and relevant.…”

Section: Introductionmentioning

confidence: 98%

After the crash: Research-based theater for knowledge transfer

Colantonio

Kontos

Gilbert

et al. 2008

Journal of Continuing Education in the Health Professions

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“…[3] There is a growing consensus that major and unexpected life events, such as traumatic brain injury (TBI), resonate in one's personal narrative. [4][5][6][7][8] The subsequent changes in an individual's self-concept are then reflected in the decisions they make and act upon. This study explores the interface between the experience of decision making and the process of self-conceptualization after TBI.…”

Section: Introductionmentioning

confidence: 99%

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

Knox

Douglas

Bigby

2016

Disability and Rehabilitation

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Purpose: Although adults who sustain a severe traumatic brain injury (TBI) require support to make decisions in their lives, little is known about their experience of this process. The aim of this study was to explore how participation in decision making contributes to self-conceptualization in adults with severe TBI. Method: We used constructivist grounded theory methods. Data included 20 in-depth interviews with adults with severe TBI. Through a process of constant comparison, analysis involved open and focused coding until clear categories emerged and data saturation was achieved. Results: Self-conceptualization emerged as a complex and multifaceted process, as individuals with TBI aimed to reestablish a sense of autonomy. We describe a recursive relationship in which decision-making participation assists the dynamic construction of self, and self-concept contributes to the experience of making decisions. The role of an individual's social support network in acting as a bridge between participation and self-conceptualization is presented. Conclusions: Findings emphasize that contributing to decisions about one's own goals across a range of life areas can reinforce a positive self-concept. It is vital that supporters understand that participation in decision making provides a pathway to conceptualizing self and aim to maximize the person's participation in the decision-making process. ä IMPLICATIONS FOR REHABILITATIONPrevious research has identified that the experience of sustaining TBI has a significant impact on a person's conceptualization of self. This study identified that decision-making experiences play an important role in the ongoing process of self-conceptualization after injury. Decision-making experiences can reinforce a person's self-concept or lead them to revise (positively or negatively) their sense of self. By maximizing the person's decision-making participation, those around them can support them to develop positive self-attributes and contribute to shaping their future goals. ARTICLE HISTORY

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Personal Responses to Traumatic Brain Injury: A Qualitative Study

Cited by 33 publications

References 23 publications

Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance

Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance

After the crash: Research-based theater for knowledge transfer

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

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