Personal Web Home Pages of Adolescents With Cancer: Self-Presentation, Information Dissemination, and Interpersonal Connection

Suzuki, Lalita K.

doi:10.1177/1043454206287301

Cited by 40 publications

(46 citation statements)

References 34 publications

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“…This may be attributable to the high degree of anonymity that exists in a non-threatening environment which can encourage honest communication and empathy with peers. Suzuki and Beale (2006) noted that teenagers who had created their own webpages were comfortable discussing personal experiences openly via diary entries, personal essays or even poetry.…”

Section: Online Data Collection 351 Justification For Use Of Onlinementioning

confidence: 99%

“…The authors noticed that the sites were providing important information and emotional support for individuals (Suzuki and Beale, 2006). Similarly, Valaitis and Sword (2005) found that a website originally set up to gather the views of pregnant and parenting teens evolved into a support tool for the young people, who reported that they felt less isolated and had more friends as a result of using it.…”

Section: Online Data Collection 351 Justification For Use Of Onlinementioning

confidence: 99%

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Exploring the experiences of teenagers with cochlear implants

Watson

Verschuur

Lathlean

2016

Cochlear Implants International

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Whilst much research has focused on the general health needs of adolescents, little is known about the specific needs of teenagers who wear cochlear implants. Thus it is important to widen the knowledge base regarding the experiences of this population, and to assist professionals to support this age group more effectively.This qualitative study investigated teenage cochlear implant users' perceptions of deafness, surgery, fitting of the device and life as a cochlear implant wearer in order to gain a more comprehensive understanding of teenagers' experiences of living with a cochlear implant by putting their perspectives at the heart of the research. This was achieved by working with the teenagers collaboratively throughout the research.Phase one of the study involved engaging with a small group of teenagers with cochlear implants to develop a website that would allow them to share their experiences. In phase two, ten semi-structured interviews were undertaken and nine were analysed using template analysis. Some teenagers experienced great preoperative anxiety and significant post-operative pain. Anxiety and pain are physiologically linked so strategies for reducing their anxiety are discussed. There was also a mismatch between their expectations and the disappointing reality of adjusting to the device. Disconfirmation-expectancy theory suggests that expectations counselling may narrow this gap. However, over time they experienced significant functional and psychosocial benefits as a result of their lives being easier. Almost all described complex, flexible identities where they felt connections with both the hearing and deaf world. Theoretical models of deaf identity support this 'bicultural' state. However, the hearing world sometimes posed difficulties for them when the listening environment was challenging. By giving prominence to the teenagers' voices this study has added new knowledge concerning their experience of surgery. The findings also more fully revealed the challenges of adjusting to the device and the impact of having a cochlear implant on the teenagers' identities.ii iii

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Section: Online Data Collection 351 Justification For Use Of Onlinementioning

confidence: 99%

Section: Online Data Collection 351 Justification For Use Of Onlinementioning

confidence: 99%

Exploring the experiences of teenagers with cochlear implants

Watson

Verschuur

Lathlean

2016

Cochlear Implants International

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“…Patients with cancer have embraced personal Web pages as another means of communicating information to and receiving support from their social networks (Suzuki & Beale, 2006). Some organizations (e.g., CaringBridge ® , Carepages) offer free, personalized, password-protected Web sites to patients that provide an easy, accessible, and private way to share information and receive support in a controlled manner (Chandler, 2006).…”

Section: Communication Optionsmentioning

confidence: 99%

The Internet: Friend or Foe When Providing Patient Education?

Anderson¹,

Klemm²

2008

Clinical Journal of Oncology Nursing

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The Internet has changed how patients with cancer learn about and cope with their disease. Newly diagnosed patients with cancer often have complex educational and informational needs related to diagnosis and treatment. Nurses frequently encounter time and work-related constraints that can interfere with the provision of patient education. They are challenged to educate patients in an environment of rapidly expanding and innovative computer technology. Barriers that hinder nurses in integrating educational Internet resources into patient care include lack of training, time constraints, and inadequate administrative support. Advantages of Internet use for patient education and support include wide-ranging and current information, a variety of teaching formats, patient empowerment, new communication options, and support 24 hours a day, seven days a week. Pitfalls associated with Internet use for patients with cancer include inaccurate information, lack of access, poor quality of online resources, and security and privacy issues. Nurses routinely use computer technology in the workplace and follow rigorous security and privacy standards to protect patient information. Those skills can provide the foundation for the use of online sources for patient teaching. Nurses play an important role in helping patients evaluate the veracity of online information and introducing them to reliable Internet resources.

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“…Developments in information and communication technologies have opened up new possibilities in the field of health care (Suzuki and Calzo, 2004;Suzuki and Beale, 2006). This includes the opportunity to monitor patients at home and provide 'real-time' information to health care providers and, in turn, prompt timely support.…”

Section: Introductionmentioning

confidence: 99%

Working in collaboration with young people and health professionals. A staged approach to the implementation of a randomised controlled trial

Aldiss

Taylor

Soanes

et al. 2010

Journal of Research in Nursing

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ASyMS ! is an Advanced Symptom Management System utilising mobile phone technology to monitor chemotherapy-related symptoms and promote self-care. It was first developed with an Downloaded from adult cancer population and is now being evaluated with young people through an iterative development process. ASyMS ! involves patients recording and sending symptom reports to the hospital and receiving tailored self-care advice. Health professionals are alerted when severe symptoms are reported. Three phases of the ASyMS ! -YG (young people) study are complete. Phase 1 involved young people identifying the symptoms to be assessed. Phase 2 involved young people testing the symptom report system, and ascertaining young people's, parents' and professionals' perceptions of ASyMS ! -YG. This paper reports on Phase 3, in which the system was developed further in preparation for a randomised controlled trial (RCT). Health professionals devised an alert system based on risk modelling side-effect severity, and young people and professionals developed self-care advice. A pilot study was conducted to test the alert system and study design in readiness for a definitive RCT. The contribution young people and professionals have made to this project is invaluable in evaluating the practical effectiveness of ASyMS ! -YG and ensuring the intervention is acceptable and works in everyday practice.

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Personal Web Home Pages of Adolescents With Cancer: Self-Presentation, Information Dissemination, and Interpersonal Connection

Cited by 40 publications

References 34 publications

Exploring the experiences of teenagers with cochlear implants

Exploring the experiences of teenagers with cochlear implants

The Internet: Friend or Foe When Providing Patient Education?

Working in collaboration with young people and health professionals. A staged approach to the implementation of a randomised controlled trial

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