Personalizing choices: Patients' experiences with making treatment decisions

Kelly-Powell, Mary L.

doi:10.1002/(sici)1098-240x(199706)20:3<219::aid-nur5>3.0.co;2-l

Cited by 58 publications

(33 citation statements)

References 17 publications

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“…Kelly-Powell (1997) found in her study that decisions to accept treatment are personalised to correspond with the patients’ view of themselves within the context of their life stories. Thorne et al (2003) explained how people with chronic disease come to rely heavily on a skill-base founded on personal experience with the disease within the context of their unique lives rather than standardised knowledge alone.…”

Section: Discussionmentioning

confidence: 99%

Understanding unexpected courses of multiple sclerosis among patients using complementary and alternative medicine: A travel from recipient to explorer

Salamonsen

Launsø²,

Kruse³

et al. 2010

International Journal of Qualitative Studies on Health and Well

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Complementary and alternative medicine (CAM) is frequently used by patients with multiple sclerosis (MS). Some MS patients experience unexpected improvements of symptoms, which they relate to their use of CAM. The aim of this study was to obtain knowledge and develop understandings of such self-defined unexpected improvement of MS symptoms. Two cases were constructed based on documents and 12 qualitative interviews. Our aim was not to make generalisations from the cases, but to transfer knowledge as working hypotheses. We identified four health-related change processes: the process of losing bodily competence; the process of developing responsibility; the process of taking control; and the process of choosing CAM. The patients explained unexpected improvements in their MS symptoms as results of their own efforts including their choice and use of CAM. In our theoretical interpretations, we found the patients’ redefinition of history, the concept of treatment and the importance of conventional health care to be essential, and leading to a change of patients’ position towards conventional health care from recipients to explorers. The explorers can be perceived as boundary walkers reflecting limitations within the conventional health care system and as initiators regarding what MS patients find useful in CAM.

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Section: Discussionmentioning

confidence: 99%

Understanding unexpected courses of multiple sclerosis among patients using complementary and alternative medicine: A travel from recipient to explorer

Salamonsen

Launsø²,

Kruse³

et al. 2010

International Journal of Qualitative Studies on Health and Well

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“…Previous health-related experiences or familiarity with treatment options can influence treatment choice (Kelly-Powell, 1997; Mazur & Merz, 1996). Using Grounded Theory methodology, Berry and colleagues uncovered a set of related, meaningful factors among men with localized prostate cancer (stage I or II), which included past experience with cancer (Berry, et al, 2003).…”

Section: Patient-centered Factors That Affect Cancer Treatment Decisimentioning

confidence: 99%

Physician, Patient, and Contextual Factors Affecting Treatment Decisions in Older Adults With Cancer and Models of Decision Making: A Literature Review

Tariman

Berry

Cochrane

et al. 2011

Oncology Nursing Forum

104

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Purpose/Objectives To review physician, patient, and contextual factors that affect treatment decision-making in older adults diagnosed with cancer and relate these factors to theoretical models of decision-making. Data Sources PubMed (1966-April 2010), PsycINFO (1967-April 2010) and CINAHL (1982-April 2010) databases were searched to access relevant medical, psychological and nursing literature. Data Synthesis Physician factors in treatment decisions include physician personal beliefs and values, expertise, practice type, perception of lowered life expectancy, medical factors, power, and communication style. Patient factors include personal beliefs and values, ethnicity, decisional control preferences, previous health-related experience, perception of the decision-making process, and personal factors. Contextual factors include availability of caregiver, lack of insurance, poor financial status, and geographical barrier. The interplay of physician, patient, and contextual factors are not well understood. Existing models of decision-making are not sufficient to explicate TDM process in older adults diagnosed with cancer. Conclusions Clinical studies in older adult patient population using a longitudinal and prospective design are needed to examine real-time interplay of patient, physician, and contextual factors and to better understand how these divergent factors influenced actual treatment decisions. Implications for Nursing Oncology nurses can advocate for a patient’s autonomy during TDM by coaching them to seek evidence-based discussion of various treatment options, benefits and risks assessments, and truthful discussion of the probability of success for each treatment option from their physicians. Oncology nurses must promote an informed treatment decisions that are consistent with a patient’s personal preference and values within the limits of the patient’s personal contexts.

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“…Similarly, Kelly-Powell (1997) investigated patients' experiences of the decision-making process and found that people make "personalized choices." Patients made decisions based on their perception of past experiences and a wish to maintain a current image of self as well as images of the future.…”

Section: Review Of the Literaturementioning

confidence: 99%

Breast Cancer Survivors’ Perceptions of Complementary/Alternative Medicine (CAM): Making the Decision to Use or Not to Use

et al. 1999

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The study described in this article explored breast cancer survivors' perceptions and experiences as they decided whether to use a variety of complementary/alternative therapies. Six focus groups were conducted composed of women who had been diagnosed with breast cancer. Each 2-hour session was audiotaped and transcribed verbatim. In this article, the process by which the participants made the decision to use or not to use complementary/alternative therapies, including their discovery and investigation of complementary/alternative medicine (CAM) and their experiences using or not using CAM, are described. Barriers to using CAM included cost, access, and time. Family and friends generally supported the decision to use CAM; however, the participants described health care practitioners' reactions as mixed.

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Personalizing choices: Patients' experiences with making treatment decisions

Cited by 58 publications

References 17 publications

Understanding unexpected courses of multiple sclerosis among patients using complementary and alternative medicine: A travel from recipient to explorer

Understanding unexpected courses of multiple sclerosis among patients using complementary and alternative medicine: A travel from recipient to explorer

Physician, Patient, and Contextual Factors Affecting Treatment Decisions in Older Adults With Cancer and Models of Decision Making: A Literature Review

Breast Cancer Survivors’ Perceptions of Complementary/Alternative Medicine (CAM): Making the Decision to Use or Not to Use

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