Personally tailored activities for improving psychosocial outcomes for people with dementia in long-term care

Mohler, R. Albert; Renom, Anna; Renom, Helena; Meyer, Gabriele

doi:10.1002/14651858.cd009812.pub2

Cited by 29 publications

(36 citation statements)

References 107 publications

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“…However, carers can be at odds with a procedural and accountable form of person-centred care, where oppressive institutional structures threaten their satisfaction and self-worth by limiting their ability to exercise rational choices and perform moral duties. Such findings may also contribute to understanding why randomised trials might fail to show effects for personally tailored activities of care [ 50 ]. Disparate interpretations of person-centred care have made the true meaning of the term to evaluate [ 18 ] and subsequently care staff can see person-centred care as an ideal, elusive, or feel sceptical about such theory in practice [ 51 ].…”

Section: Discussionmentioning

confidence: 99%

Care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews

et al. 2018

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Personhood discourses in dementia care have gained prominence and current care home standards mandate that care should be “person-centred”. However, it is unclear how the personhood of staff is construed within the care relationship. This paper aims to explore how the personhood of paid carers of people with dementia can be understood by focussing on the views and experiences of care home staff. We undertook a secondary qualitative analysis of interviews with 25 paid care staff in England, conducted as part of the MARQUE (Managing Agitation and Raising QUality of lifE) study. The authors inductively developed themes around the topic of personhood for staff, contrasting management and care staff perspectives. We found that many care staff are not identified as persons in their own right by their employing institutions, and that there is a general lack of acknowledgment of the moral work of caring that occurs within formal care work. This oversight can reduce the complex relationships of care work to a series of care tasks, challenges care workers’ self-worth and self-efficacy, and impede their efforts to deliver person-centred care. We conclude that care staff status as persons in their own right should be explicitly considered in quality standards and supported by employers’ policies and practices, not simply for their role in preserving the personhood of people with dementia but for their own sense of valued personhood. Enhancing staff personhood may also result in improved care.

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Section: Discussionmentioning

confidence: 99%

Care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews

et al. 2018

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“…Under the framework of person‐centred care for people living with dementia activity has become a focus of increased scholarship and a range of terms have emerged in the literature to describe these activities. These include “tailored” (Gitlin et al, , ; Kolanowski, Litaker, Buettner, Moeller, & Costa, ; Mohler, Renom, Renom, & Meyer, ), “individualised” (Van Haitsma et al, ), “preferred” (Cohen‐Mansfield, Gavendo, & Blackburn, ) and “purposeful” (Dementia Australia, ), each enriching our common understanding of the centrality of the unique person in activity planning. This focus is consistent with the view that the value of recreational activities is based on the essential human need for activity (Csikszentmihalyi, ).…”

Section: Introductionmentioning

confidence: 99%

Enjoyable, engaging and individualised: A concept analysis of meaningful activity for older adults with dementia

Tierney

Beattie

2020

Int J Older People Nursing

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Aim:The term "meaningful activity" is widely used in policy, practice and the research literature. However, definition and use of the term is unclear and inconsistent. A concept analysis was conducted to explore the fundamental attributes that make an activity meaningful for older adults with dementia and propose a conceptual model for understanding "meaningful activity" in this population. Methods: This study followed Walker and Avant's method of concept analysis. Searches were conducted in the Scopus, MEDLINE, CINAHL, PubMed, Academic Search Elite and Web of Science databases for literature using the term "meaningful activity." Papers published before 1996 were excluded. Results: Twenty-nine papers concerned with "meaningful activity" were analysed. This analysis identified five attributes that make activities meaningful for people with dementia: (a) enjoyable; (b) suited to the individual's skills, abilities and preferences; (c) related to personally relevant goals; (d) engaging; and (e) related to an aspect of identity. The conceptual model illustrates how individual and opportunity factors influence participation in "meaningful activity" and the consequences of this participation as discussed in the existing literature. Conclusion: The findings of this concept analysis provide insight into what characteristics make an activity meaningful. Specific activities that are meaningful are different for each person and participation in personally 'meaningful activities' has the potential to positively impact the lives of people with dementia. Implications for practice: This understanding of 'meaningful activity' can be used by those involved in research, planning or delivery of services and care for people with dementia to encourage and support participation in activities that are meaningful to individuals. K E Y W O R D S concept analysis, dementia, meaningful activity, older adults, person-centred care

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“…Furthermore, patients with dementia obtain happiness and enjoyment by engaging in meaningful activities, such as various leisure activities, social participation, and work-related activities [49,50], which also contribute to improving the individual's sense of autonomy and identity [51,52]. This study designed and developed a virtual scenario to meet the psychological needs of the participants by securing their emotional immersion and engagement in accordance with the preferences and emotions of Korean persons.…”

Section: Discussionmentioning

confidence: 99%

Developing a Virtual Reality for People With Dementia and Mild Cognitive Impairment Based on Their Psychological Needs: A Feasibility Study

Kim

Park

Lim

2020

Preprint

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BackgroundPurpose of this study was to develop a virtual reality (VR) intervention program based on the psychological needs of patients with dementia and mild cognitive impairment residing in nursing facilities in Korea to relieve their behavioral and psychological symptoms, and to confirm the possibility of utilizing VR in patients with dementia and mild cognitive impairment.MethodsIn the first phase, surveys and questionnaires were used to identify activities that relieved the behavioral and psychological symptoms of dementia (BPSD) among patients. These activities were classified into five types of psychological needs. In the second phase, a fully immersive, interactive, easy-to-use VR platform was developed that reflected these psychological needs. The VR content was used with patients with dementia and mild cognitive impairment. The researchers assessed the level of the participants’ immersion, preference, and interaction with the VR, using a 5-point Likert scale. ResultsIn the feasibility test, the mean immersion score was 4.93 ± 0.16 points, the mean preference score was 4.35 ± 0.41 points, and the mean interaction score was 3.84 ± 0.43 points. Six out of 10 participants required assistance while using the VR. The mean VR experience duration was 10.00 ± 3.46 minutes.ConclusionsThe VR-based intervention program that was developed to reduce BPSD was feasible for the participants, and provided them with a high degree of satisfaction and immersion. Furthermore, this study also confirmed the convenience and safety of the program. These findings provide evidence for the potential of VR to provide BPSD intervention programs for patients with dementia and mild cognitive impairment, and potentially for other geriatric conditions.

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Personally tailored activities for improving psychosocial outcomes for people with dementia in long-term care

Abstract: Personally tailored activities for improving psychosocial outcomes for people with dementia in long-term care.

Cited by 29 publications

References 107 publications

Care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews

Care workers, the unacknowledged persons in person-centred care: A secondary qualitative analysis of UK care home staff interviews

Enjoyable, engaging and individualised: A concept analysis of meaningful activity for older adults with dementia

Developing a Virtual Reality for People With Dementia and Mild Cognitive Impairment Based on Their Psychological Needs: A Feasibility Study

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