Perspective of family caregivers on self-care independence among older people living in long-term care facilities: A qualitative study

Chang, Su-Hsien; Yu, Ching-Len

doi:10.1016/j.ijnurstu.2012.10.013

Cited by 14 publications

(22 citation statements)

References 17 publications

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“…23 In addition, the institutionalized older adults, their family members and the caregivers of the long-term care institutions must construct a partnership and define common objectives, so as to -among other aspects -improve performance of self-care of those older adults who need long-term care. 24 In this study, it was perceived that the workers valued the presence of the family in the LTCI. However, with the structural changes which have been occurring with families, they have found difficulties in performing the tasks which commonly used to be attributed to them.…”

Section: Discussionmentioning

confidence: 77%

The perceptions of workers in a long-term care institution for older adults regarding the family

Santos

Beuter

Girardon-Perlini

et al. 2014

Texto contexto - enferm.

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This study aimed to investigate the perception of the workers in a Long-Term Care Institution for the Elderly regarding the families of the older adults in the institution. It is qualitative research, undertaken with 16 workers of the multidisciplinary team. Data collection occurred in February-June 2012, through semi-structured interviews. The technique used for treatment of the data was thematic analysis. The results indicate that the family members visit the Long-Term Care Institution for the Elderly rarely, with commemorative dates being the main occasions in which they appear. The workers evidenced some situations of abandonment, in which the family does not visit the older adult even when called. They understand that nobody can substitute the role of the family, as it is the reference for the older adults. Therefore, spending time with the family can positively influence the well-being of the older adults in institutions.

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Section: Discussionmentioning

confidence: 77%

The perceptions of workers in a long-term care institution for older adults regarding the family

Santos

Beuter

Girardon-Perlini

et al. 2014

Texto contexto - enferm.

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“…We make crucial links between dining standards, practices related to lifts and transfers, language related to activities of daily living and the institutionalized use of physiotherapy services to show how they are fundamental elements in PSWs' incapacity to support actual activities of daily living. Our interview data reveal how features of the daily goings on in LTC are discursively buttressed by narrow ideological constructions of doing for self (discussed as self‐care in the literature) and activities of daily living (Chang ; Coll ; Chang and Yu ). These are approaches to care that circulate in the theorized ideas about what residents need, and what professional nurses and managers believe.…”

Section: Discussionmentioning

confidence: 96%

The social organization of a sedentary life for residents in long‐term care

et al. 2015

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Worldwide, the literature reports that many residents in long-term care (LTC) homes are sedentary. In Canada, personal support workers (PSWs) provide most of the direct care in LTC homes and could play a key role in promoting activity for residents. The purpose of this institutional ethnographic study was to uncover the social organization of LTC work and to discover how this organization influenced the physical activity of residents. Data were collected in two LTC homes in Ontario, Canada through participant observations with PSWs and interviews with people within and external to the homes. Findings explicate the links between meals, lifts and transfers, and the LTC standards to reveal that physical activity is considered an add-on program in the purview of physiotherapists. Some of the LTC standards which are intended to product good outcomes for residents actually disrupt the work of PSWs making it difficult for them to respond to the physical activity needs of residents. This descriptive ethnographic account is an important first step in trying to find a solution to optimize real activities of daily living into life in LTC.

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“…Improved education, support and understanding of disease progression, medication and symptoms management, warning signs, complications prevention and resources available may help to empower family caregivers' actions of these participants. The removal of these barriers may support family caregivers to feel more con dent in providing care and avoiding complications, hospital admissions as other studies suggest it [15,34,37]. Practical training is essential to support family caregivers when seeking help [38].…”

Section: Discussionmentioning

confidence: 99%

“…Nurses have the opportunity to explain or share information about the awareness of the risk of complications [39]. Healthcare professionals can also deliver training and supervision to increase caregivers' con dence, prevent complications and burnout [34,40].…”

Section: Discussionmentioning

confidence: 99%

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

Teixeira

Abreu²,

Costa

et al. 2020

Preprint

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Background: Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly outside of high-income settings. The aim of this study was to explore family caregivers’ experiences of caring for a relative living with advanced progressive disease at home, and their perceptions of met and unmet care needs over time. Methods: An ethnographic study comprising observations and interviews. A purposive sample of 10 family caregivers and 10 relatives was recruited within a rural area in the north of Portugal. Data were collected between 2014-16 using serial participant observations (n=33) and in-depth interviews (n=11). Thematic content analysis was used to analyse the data. Results: Five overarching themes were yielded: (1) provision of care towards independence and prevention of complications; (2) perceived and (3) unknown caregiver needs; (4) caregivers’ physical and emotional impairments; and (5) balancing limited time. An imbalance towards any one of these aspects may lead to reduced capability and performance of the family caregiver, with increased risk of complications for their relative. However, with balance, family caregivers embraced their role over time. Conclusions: These findings enhance understanding around the needs of family caregivers, which are optimally met when professionals and family caregivers work together with a collaborative approach over time. Patients and their families should be seen as equal partners. Family-focused care would enhance nursing practice in this context and this research can inform nursing training and educational programs.

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Perspective of family caregivers on self-care independence among older people living in long-term care facilities: A qualitative study

Cited by 14 publications

References 17 publications

The perceptions of workers in a long-term care institution for older adults regarding the family

The perceptions of workers in a long-term care institution for older adults regarding the family

The social organization of a sedentary life for residents in long‐term care

Understanding Family Caregivers’ Needs to Support Relatives with Advanced Progressive Disease at Home: An Ethnographic Study in Rural Portugal

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