Perspectives of patients and health professionals on the experience of living with psoriatic arthritis-related foot problems: a qualitative investigation

Carter, Kate; Walmsley, Steven; Chessman, Diana; Rome, Keith; Turner, Deborah E.

doi:10.1007/s10067-018-04411-2

Cited by 23 publications

(39 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This study was conducted using an iterative consensus-based process of linking items from the LFIS-RA to the ICF classi cation ( Figure 1) and applies data previously collected by linking concepts, obtained from a qualitative investigation into the patient experience of PsA-foot problems, to the ICF classi cation [18,32]. The study was approved by the Ethics committee of each health organisation involved (numbers: HREC/171/LPOOL/353; AUTEC 1/320; RM/3907).…”

Section: Methodsmentioning

confidence: 99%

“…Concepts important to people with PsA-related foot involvement were identi ed in previous research from qualitative data and linked to the full version of the ICF classi cation [18,32]. The list of ICF categories serves as a framework that de nes the typical spectrum of problems in functioning relevant to the impact of localised disease in the foot in PsA.…”

Section: Appraisal Of the Content Validity Of The Lfis-ramentioning

confidence: 99%

“…Disease persistence in the foot with potential to progress to structural joint damage has been found in the context of low global disease activity in PsA [16], which indicates the need for foot-speci c outcome tools. In the absence of a validated disease-and foot region-speci c outcome measure to assess the impact of localised disease in the foot in PsA, the Leeds Foot Impact Scale in rheumatoid arthritis (LFIS-RA) has been used in previous studies [16][17][18][19][20][21]. However, how well the LFIS-RA functions and measures what is intended to be measured in PsA is not known.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Linking the Effect of Psoriatic Arthritis-Related Foot Involvement to the Leeds Foot Impact Scale using the International Classification for Functioning, Disability and Health: A Study to Assess Content Validity.

Carter

Tannous

Walmsley

et al. 2020

Preprint

Self Cite

View full text Add to dashboard Cite

Background Previous research to describe the impact of foot involvement in psoriatic arthritis has used the Leeds Foot Impact Scale in Rheumatoid Arthritis (LFIS-RA) in the current absence of any psoriatic arthritis foot-specific tools. However, the LFIS-RA is a rheumatoid arthritis disease-specific outcome measure and its content validity for evaluating the experiences of people with psoriatic arthritis-related foot involvement is unknown. The study objective was to determine the content validity of the LFIS-RA for assessing people with psoriatic arthritis, using the International Classification of Functioning, Disability and Health (ICF) as the frame of reference.Method Concepts within each item of the LFIS-RA were linked to the best-matched ICF categories using established linking rules, which enable a systematic and standardised linking process. All concepts were independently linked to the ICF by 2 investigators with different professional backgrounds, which included occupational therapy and podiatry. The list of ICF categories derived from previous research that pertained to the foot in psoriatic arthritis was then compared with the ICF categories linked to the LFIS-RA. The comparison was undertaken in order to determine the extent to which concepts important and relevant to people with psoriatic arthritis-related foot involvement were addressed. Results Thirty-five distinct ICF categories were linked to the LFIS-RA, which related to body functions (44%), activities and participation (35%), environmental factors (16%) and body structure (5%). In comparison with the ICF categories derived from concepts of the foot in psoriatic arthritis previously defined, the LFIS-RA provided coverage of key constructs including pain, functioning, daily activities, footwear restrictions and psychological impact. Other concepts of importance in psoriatic arthritis such as skin and toenail involvement, self-management and paid employment were not addressed in the LFIS-RA. Conclusion Content validity of the LFIS-RA to determine the impact of foot functional impairments and disability in people with psoriatic arthritis was not supported by the results of this study. Future work should consider the development of a psoriatic arthritis foot-specific patient reported outcome measure, using the LFIS-RA as an important foundation.

show abstract

Section: Methodsmentioning

confidence: 99%

Section: Appraisal Of the Content Validity Of The Lfis-ramentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Linking the Effect of Psoriatic Arthritis-Related Foot Involvement to the Leeds Foot Impact Scale using the International Classification for Functioning, Disability and Health: A Study to Assess Content Validity.

Carter

Tannous

Walmsley

et al. 2020

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

“…Results were re ned by discussion between the investigators (KC, SW and DET). Detailed descriptions of the preliminary work involved in phase 1 have been previously reported [9,35,36]. In brief, a qualitative study of people with PsA and rheumatology health professionals (rheumatologists, podiatrists and physiotherapists) revealed key themes on the impact of PsA-related foot problems on daily life [9,35].…”

Section: Participant Recruitmentmentioning

confidence: 99%

“…Detailed descriptions of the preliminary work involved in phase 1 have been previously reported [9,35,36]. In brief, a qualitative study of people with PsA and rheumatology health professionals (rheumatologists, podiatrists and physiotherapists) revealed key themes on the impact of PsA-related foot problems on daily life [9,35]. Concepts important and relevant to the patient experience of foot involvement in PsA, obtained from the qualitative study, were subsequently linked to the International Classi cation of Functioning, Disability and Health (ICF) model and a list of over 100 distinct ICF categories were identi ed, which comprehensively described the impact of localised disease in the foot on daily functioning [36].…”

Section: Participant Recruitmentmentioning

confidence: 99%

Development of a national survey on foot involvement among people with psoriatic arthritis in Australia using a best practice approach: A survey development protocol

Carter

Walmsley

Rome

et al. 2020

Preprint

Self Cite

View full text Add to dashboard Cite

Background Limited research to date has defined the nature and extent of foot involvement in a psoriatic arthritis-specific population in Australia and the scale of the problem remains unclear. Survey research provides the ideal opportunity to sample a large population over a wide geographical area. Although quality criteria for survey research have been developed, research shows that adherence is low and that survey studies are poorly reported in peer-reviewed survey articles, which limits the ability to inform future survey design. The objective of this paper was to develop a national survey about foot involvement in people with psoriatic arthritis using a best practice approach. This is a methods paper for the development of survey research.Methods A systematic, multi-stage process of survey development was undertaken, which comprised 3 phases: 1) the generation of the conceptual framework and survey content; 2) the development of the survey and pre-testing and 3) development of the survey dissemination strategy. A survey best practice approach was adopted using iterative pre-testing techniques, which included; cognitive debriefing, cultural sensitivity review, survey design expert validation, subject expert validation and pilot testing. Targeted postal and online survey dissemination strategies were developed a priori to optimise the response rates anticipated.Results A 59-item survey with 8 sections was developed. Findings demonstrated a high survey response (n=649), high data completeness (83% of respondents reached the end of the survey) and low rates of missing data (below 5% for 95% of respondents). Extensive survey pre-testing among the target population, health professionals and experts improved the overall quality, content validity, functioning and representativeness of the survey instrument, which optimised potential response rates. Clear audit trails that mapped the analytical process at each stage substantiated the rigour of the survey development methods. Robust strategies for sampling, survey dissemination and community engagement were deemed to have made a powerful contribution to response rates and the scale of information collected.Conclusions Robust patient-centred methods in survey design were used to create a novel, high-quality survey to comprehensively evaluate psoriatic arthritis-related foot involvement. Transparent and precise description of the survey design and dissemination methods provides useful information to other researchers embarking on survey design in healthcare.

show abstract

Significant functional impairment and disability in individuals with psoriatic arthritis and Achilles tendon pain: a cross-sectional observational study

Patience,

Steultjens,

Siebert

et al. 2024

Rheumatol Int

View full text Add to dashboard Cite

The Achilles tendon (AT) insertion is the most common site of enthesitis in psoriatic arthritis (PsA). The structure and function of the AT in PsA, and the prevalence of mid-portion pathology, is unknown. To compare the structure and function of the AT in people with PsA with self-reported AT pain (PsA + AT), PsA without self-reported AT pain (PsA-AT) and healthy controls. A cross-sectional, observational study was conducted. The ATs were assessed by clinical and US examination (B-mode and Power Doppler), performance-based testing (bilateral heel raise test (HRT) and 10 m walk test), and patient-reported outcome measures (PROMs) (including the Victorian Institute of Sport Assessment-Achilles [VISA-A]). Between-group differences were described using descriptive statistics, Chi-squared testing, parametric (1-way ANOVA) and non-parametric (Mann-Whitney or Kruskal-Wallis) testing. 22 PsA (11 per group) and 11 healthy control participants who were comparable in terms of sex, age, and BMI (PsA-AT = longer PsA disease duration) were recruited. VISA-A scores were significantly worse in the PsA + AT group compared to the PsA-AT group and healthy controls (p < 0.001). Inflammatory US features were significantly more prevalent in the PsA + AT group (p < 0.001). Mid-portion AT pathology was observed in the PsA + AT group, irrespective of entheseal disease. Clinical examination alone missed 5/7 cases of ‘active’ US-confirmed AT enthesitis. AT functional deficits were significant in the PsA + AT group and both PsA groups had lower HRT repetition rates and walked slower compared to healthy controls. Less than 1/3 of the PsA + AT group had received podiatry or physiotherapy care. Significant differences in the structure and function of the AT in PsA were noted. Despite management in line with current guidance, AT pain appears to persist and can result in severe functional impairment.

show abstract

Perspectives of patients and health professionals on the experience of living with psoriatic arthritis-related foot problems: a qualitative investigation

Cited by 23 publications

References 38 publications

Linking the Effect of Psoriatic Arthritis-Related Foot Involvement to the Leeds Foot Impact Scale using the International Classification for Functioning, Disability and Health: A Study to Assess Content Validity.

Linking the Effect of Psoriatic Arthritis-Related Foot Involvement to the Leeds Foot Impact Scale using the International Classification for Functioning, Disability and Health: A Study to Assess Content Validity.

Development of a national survey on foot involvement among people with psoriatic arthritis in Australia using a best practice approach: A survey development protocol

Significant functional impairment and disability in individuals with psoriatic arthritis and Achilles tendon pain: a cross-sectional observational study

Contact Info

Product

Resources

About