Perspectives of Remote Volunteer Palliative Care Consultants During COVID: A Qualitative Study

Tong, Wendy; Kapur, Supriya; Fleet, Alexa; Russo, Samantha; Khedagi, Apurva; Blinderman, Craig D.; Nakagawa, Shunichi

doi:10.1016/j.jpainsymman.2021.07.028

Cited by 4 publications

(12 citation statements)

References 24 publications

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“…Patients and family caregivers praised the convenience of telehealth in relation to not needing to leave home or office and to saving on traveling costs (gas, transportation, parking; Atreya et al, 2020; Broglio & Kirkland, 2021; Wu et al, 2020). Telehealth also allowed geographically dispersed family members to join family meetings and goals‐of‐care discussions, which would remain a beneficial practice even after the pandemic (Elma et al, 2022; Tong et al, 2022). Additionally, goals‐of‐care discussions and palliative care were needed at a higher rate during the COVID‐19 surge, and hospitals were able to leverage remote volunteering programs to meet the demand (Israilov et al, 2020; Tong et al, 2022).…”

Section: Resultsmentioning

confidence: 99%

“…Telehealth also allowed geographically dispersed family members to join family meetings and goals‐of‐care discussions, which would remain a beneficial practice even after the pandemic (Elma et al, 2022; Tong et al, 2022). Additionally, goals‐of‐care discussions and palliative care were needed at a higher rate during the COVID‐19 surge, and hospitals were able to leverage remote volunteering programs to meet the demand (Israilov et al, 2020; Tong et al, 2022). Telehealth also made after‐hours support possible (Rainsford et al, 2022; Tong et al, 2022), and some programs were able to provide services for neighboring states (Adhikari et al, 2021; Biswas et al, 2020).…”

Section: Resultsmentioning

confidence: 99%

“…& Kirkland, 2021; Wu et al, 2020). Telehealth also allowed geographically dispersed family members to join family meetings and goals-of-care discussions, which would remain a beneficial practice even after the pandemic (Elma et al, 2022;Tong et al, 2022).…”

Section: Ta B L E 1 (Continued)mentioning

confidence: 99%

“…The remote palliative care volunteers raised ethical concerns related to COVID-19. During surges in New York City, the volunteers felt that their agenda was to manage scarce medical resources, which conflicted with the purpose of palliative care (Tong et al, 2022). The volunteers also experienced distress that revolved around the uncertainty and widespread tragedy caused by COVID-19 (Tong et al, 2022).…”

Section: Ethical Concernsmentioning

confidence: 99%

“…During surges in New York City, the volunteers felt that their agenda was to manage scarce medical resources, which conflicted with the purpose of palliative care (Tong et al, 2022). The volunteers also experienced distress that revolved around the uncertainty and widespread tragedy caused by COVID-19 (Tong et al, 2022). The palliative care professionals providing telehealth for inpatient cancer patients experienced multidimensional distress, including feeling guilty about working remotely while their colleagues treated patients in person, feeling disempowered in supporting patients, and feeling uncertain about how to remotely manage clinically challenging situations (Rosa et al, 2023).…”

Section: Ethical Concernsmentioning

confidence: 99%

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Telehealth in palliative care during the COVID‐19 pandemic: A systematic mixed studies review

Lin

2023

Worldviews Ev Based Nurs

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BackgroundThe coronavirus disease‐2019 (COVID‐19) pandemic caused unprecedented disruption to healthcare delivery worldwide. The use of telehealth practices rapidly expanded during the pandemic, while its application in palliative care remains a conflicted issue.AimsThe aims of this study were to evaluate users' reports of their satisfaction with telehealth palliative care during COVID‐19 and to identify facilitators and barriers to telehealth implementation in palliative care during COVID‐19.MethodsA systematic search of the literature, including studies between January 2020 and June 2022, was conducted using PubMed, MEDLINE, CINAHL Plus, Embase, and Google Scholar. Empirical studies of telehealth in palliative care during COVID‐19 were included.ResultsA total of 18 studies were included in the review, of which nine were outpatient consultations, four were family meetings, two were remote volunteering programs, two were inpatient care, and one was a residential care home needs assessment. The satisfaction rates were high (66%–99%) among patients and family members who participated in telehealth consultations, but the satisfaction with family meetings was mixed. Compared with their clients, healthcare professionals were less likely to assess telehealth as satisfactory. The authors identified four barriers and four facilitators. The barriers were technological challenges, lack of nonverbal communication, ethical concerns, and limitations for clinical practice. The facilitators were accessibility and convenience, visual cues, facilitation and training, and family engagement.Linking Evidence to ActionThis systematic mixed studies review suggests that current evidence supports the feasibility of telehealth implementation in palliative care for outpatient consultations and routine follow‐up appointments. This review also identified facilitators and barriers to telehealth in palliative care, and the findings can inform the implementation of future palliative care services. Future attention should be paid to the effectiveness of telehealth implementation in palliative care patients.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Ta B L E 1 (Continued)mentioning

confidence: 99%

Section: Ethical Concernsmentioning

confidence: 99%

Section: Ethical Concernsmentioning

confidence: 99%

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Telehealth in palliative care during the COVID‐19 pandemic: A systematic mixed studies review

Lin

2023

Worldviews Ev Based Nurs

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The Evolving Roles and Expectations of Inpatient Palliative Care Through COVID-19: a Systematic Review and Meta-synthesis

Zhao,

Robinson,

Pozzar

et al. 2023

J GEN INTERN MED

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Mobilising volunteer groups, communities and agencies during the pandemic: a rapid realist view of the evidence

Kneale,

Bangpan,

Hartley

et al. 2023

Humanit Soc Sci Commun

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The COVID-19 pandemic represented a rise in ‘people power’ globally, expressed through manifold acts of kindness, solidarity and mutualism as communities organised and came together where governments could or would not. In this study we were interested in the mechanisms through which communities and agencies extended existing practices and structures to respond to the pandemic or adopted new ways of organising. We undertook a rapid realist systematic review, following established steps and drawing on the Volunteer Process Model as our core theory. We worked with 59 studies to identify the mechanisms through which individuals, agencies and organisations, and communities mobilised and we identified six mechanisms. Gaining experience and developing role identity were key in mobilising volunteers to undertake activities and also resulted in positive outcomes for the volunteers themselves. Adaptability ensured that individuals, groups and local agencies and organisations were able to respond to the changing needs of beneficiary groups. Co-ordination helped communities, agencies and mutual aid groups to work together rather than in competition. Emotional support, support in the form of social and material recognition, and support through training were important in sustaining a volunteer workforce and protecting the wellbeing of the volunteer workforce. Altruism was a key motivator for stepping up during the pandemic and becoming a volunteer while greater trust was linked with the extent to which groups and communities were able to scale up efforts to respond to higher demands during the pandemic. While the COVID-19 pandemic represented a period of great social upheaval, it illuminated the ‘power of people’ working together. Our findings identify six key mechanisms that supported this mobilisation, which may be critical to activate in future health emergencies, but are also largely reflective of investments made before the pandemic to support the development of social capital and the development of volunteering infrastructure.

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Perspectives of Remote Volunteer Palliative Care Consultants During COVID: A Qualitative Study

Cited by 4 publications

References 24 publications

Telehealth in palliative care during the COVID‐19 pandemic: A systematic mixed studies review

Telehealth in palliative care during the COVID‐19 pandemic: A systematic mixed studies review

The Evolving Roles and Expectations of Inpatient Palliative Care Through COVID-19: a Systematic Review and Meta-synthesis

Mobilising volunteer groups, communities and agencies during the pandemic: a rapid realist view of the evidence

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