Perspectives of the community-based dementia care workforce: “occupational communion” a key finding from the Work 4 Dementia Project

Elliott, Kate-Ellen; Stirling, CM; Martin, Angela; Robinson, Andrew; Scott, Jenn

doi:10.1017/s1041610212002323

Cited by 14 publications

(28 citation statements)

References 18 publications

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“…A key finding from this study was that dementia carers wanted to develop the workforce, commenting that workers’ attitudes, skills, and knowledge varied but were “mostly fine.” Interestingly, our previous research on the perspectives of formal dementia care workers found similar results (Elliott, Stirling, Martin, Robinson, & Scott, ), suggesting both informal and formal carers align on their views that more training and specialist expertise are required for the dementia care workforce. Developments in public policy in some nations (e.g., Australia's National Framework for Action on Dementia, 2006, England's National Dementia Strategy, 2009) across the globe support this finding because dementia plans suggest improvements in dementia knowledge and skills are needed for workforce development.…”

Section: Discussionsupporting

confidence: 61%

“…Formal aged and dementia care workers have previously been found to show strong attachment to their clients (Howes et al, 2008), thought to be related to adjustment and commitment to the work environment (Elliott et al, 2013). The implications of collaborative relationships for quality of care are well established in other health settings (Cao, Depinho, Ernst, & Vousden, 2011).…”

Section: Discussionmentioning

confidence: 99%

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Coproduction for Sustainability: Seeking the Perspectives of Informal Dementia Carers’ on Capacity Building for Community Services

Elliott

Stirling

Martin

et al. 2017

Journal Community Psychology

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Dementia is a worldwide health priority and much of the burden of care for people with dementia is placed on family members and informal systems of care in the community. The perspectives of 36 informal dementia carers on current and future community‐based services for people with dementia in Tasmania, Australia, are reported using a mixed methods design. Qualitative data were collected, thematically analyzed, and double coded. Quantitative data were collected and analyzed to determine carers’ level of satisfaction with services. Three main themes were identified: (a) quality support for carers and people with dementia; (b) adaptive, tailored, and flexible organizations; and (c) development of the workforce. Although most carers were highly satisfied with the current support services they received, they wanted organizational and workforce changes to meet their varied and complex needs. Results suggest a community‐driven agenda for a coproduction approach for aged and dementia care reform in Australia.

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Section: Discussionsupporting

confidence: 61%

Section: Discussionmentioning

confidence: 99%

Coproduction for Sustainability: Seeking the Perspectives of Informal Dementia Carers’ on Capacity Building for Community Services

Elliott

Stirling

Martin

et al. 2017

Journal Community Psychology

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“…Social interaction at work with colleagues, where employees could discuss ‘tricks of the trade’ was found to be desired by community‐based dementia care workers, who reported isolation when performing their aged care job duties (Elliott et al . ). The extent of collaboration and collegiality between colleagues and inter‐professionally (e.g.…”

Section: Discussionmentioning

confidence: 97%

“…In this context, the impact of informational justice on mood may be influenced by the isolated (Elliott et al . ) and decentralised nature of the aged care work environment (Yeandle et al . ), where nurses may need to maximise their opportunities to gain as much information as possible in order to maintain their well‐being at work.…”

Section: Discussionmentioning

confidence: 99%

Aged care nurses’ job control influence satisfaction and mental health

2017

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“…Diet As the population ages and the prevalence of dementia increases, in both LMICs and HICs, an adequately skilled and sufficiently large dementia care workforce is essential to meet long-term care needs (World Health Organisation and Alzheimer's Disease International, 2012;Coogle et al, 2007; Bruckner et al, 2011;Elliott et al, 2012;Elliott et al, 2013). As with informal caregivers, the majority of formal paid health and social care for people with dementia is provided by women, who make up over 85 per cent of this workforce (Alzheimer's Association, 2014;Cummings et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

The impact of dementia on women internationally: An integrative review

Erol

Brooker

Peel

2016

Health Care for Women International

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Women are disproportionately affected by dementia, both in terms of developing dementia and becoming caregivers. We conducted an integrative review of English language literature of the issues affecting women in relation to dementia from an international perspective. The majority of relevant studies were conducted in high income countries, and none were from low-income countries. The effects of caregiving on health, wellbeing and finances are greater for women; issues facing women, particularly in low and middle-income countries need to be better understood.Research should focus on building resilience to help people adjust and cope long term.Dementia is a global public health issue that disproportionately affects women, either through developing the condition themselves, or as a carer for someone with dementia. The effects on women of living with or caring for someone with dementia from an international perspective needs to be more fully understood. In our review of the published literature, we explore the impact of dementia on changing roles, identity, wellbeing and finances for women in both high-income and low-and middle income countries. An improved understanding of these factors can support research, and policy developments, that address the issues specifically relevant to women.As age is the greatest risk factor for dementia, and women have a greater life expectancy worldwide than men, a larger number of people with dementia are women (Alzheimer's Association, 2014).There are also clinical differences between genders in disease risk and severity, especially in relation to dementia and cognition (Carter et al., 2012). There is a significant association between age, gender, and dementia in many areas of the world, with women showing a higher prevalence rate for dementia than men (Bamford, 2011;Takeda et al., 2011; Alzheimer's Disease International, 2015) expectation that women will assume caregiving roles (Godfrey & Warshaw, 2009;Lantz, 2009;Gibbons et al., 2014). In many studies of dementia caregivers, all or most participants are women, reflecting the disproportionate extent to which women are relied upon as carers, although few reports focus on gender specifically (Robinson et al., 2014). Therefore the assumption that women provide informal care to people with dementia is embedded (often implicitly) in much of the existing research.The financial impact of providing dementia care on family caregivers is substantial; caregivers in the United States reported that they were reluctant to take time off work to provide care, or took on additional work to cover caregiving costs, which had increased because of the recent economic downturn (Evercare, 2009). Women may also have the responsibility of caring for young children alongside caring for a parent with dementia -referred to as the 'sandwich generation' (Solberg et 3 al., 2014). Despite this (often dual) caring responsibility, families often prefer , for a variety of cultural, obligational and practical reasons to continue to provide care at ho...

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Perspectives of the community-based dementia care workforce: “occupational communion” a key finding from the Work 4 Dementia Project

Cited by 14 publications

References 18 publications

Coproduction for Sustainability: Seeking the Perspectives of Informal Dementia Carers’ on Capacity Building for Community Services

Coproduction for Sustainability: Seeking the Perspectives of Informal Dementia Carers’ on Capacity Building for Community Services

Aged care nurses’ job control influence satisfaction and mental health

The impact of dementia on women internationally: An integrative review

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