Perspectives on ICD-11 to understand and improve mental health diagnosis using expertise by experience (INCLUDE Study): an international qualitative study

Hackmann, Corinna; Balhara, Yatan Pal Singh; Clayman, Kelsey; Nemec, Patricia B.; Notley, Caitlin; Pike, Kathleen M.; Reed, Geoffrey M.; Sharan, Pratap; Rana, Mona Sharma; Silver, Jody; Swarbrick, Margaret; Wilson, Jonathan; Zeilig, Hannah; Shakespeare, Tom

doi:10.1016/s2215-0366(19)30093-8

Cited by 30 publications

(32 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Of the eight included studies, three studies were conducted in multiple countries, with one study being conducted between India, the United Kingdom and the United States (Hackmann et al, 2019), and two between Denmark and the United States (Bach and First, 2018; Hansen et al, 2019). Of the remainder, one study was conducted in Denmark (Bach et al, 2018) and the remaining four in the United States.…”

Section: Resultsmentioning

confidence: 99%

The clinical utility of the ICD-11 classification of personality disorders and related traits: A preliminary scoping review

Tracy

Tiliopoulos

Sharpe

et al. 2021

Aust N Z J Psychiatry

View full text Add to dashboard Cite

Objectives: A diagnostic system that fails to deliver clinically useful information will not be utilized and consequently will be unable to provide valuable data for health policy and clinical decision making. Therefore, it is imperative to obtain an accurate depiction of the clinical utility of the eleventh revision of the International Classification of Diseases (ICD-11) Personality Disorder (PD) model. The current mixed-methods systematic review aimed to determine the clinical utility of the ICD-11 PD classification system. Method: An electronic screening of six databases was conducted and resulting studies were subjected to specific exclusion criteria, which elicited eight studies of interest. Study characteristics were tabulated and methodological quality was appraised. Results: Four studies offered strong support for the model’s clinical utility, three offered some support accompanied by notable limitations and one study could only offer criticisms. Conclusion: Future investigation of the ICD-11 PD classification system’s (a) communicative value between clinicians and their patients, and between clinicians and their patient’s families; (b) ease of use; and (c) feasibility in terms of practical application is required to achieve a complete understanding of its clinical utility and ultimately bring clarity to the current ambiguous findings.

show abstract

Section: Resultsmentioning

confidence: 99%

The clinical utility of the ICD-11 classification of personality disorders and related traits: A preliminary scoping review

Tracy

Tiliopoulos

Sharpe

et al. 2021

Aust N Z J Psychiatry

View full text Add to dashboard Cite

show abstract

“…The 11th revision of the ICD required more than 10 years of intensive work and the involvement of hundreds of experts as members of the Advisory and Working Groups as consultants [25]. Moreover, the revision process has required an extensive collaboration with WHO member states, funding agencies, professional and scientific societies, and it has been defined as "the most global, multilingual, multidisciplinary and participative revision process ever implemented for a classification of mental disorders" [35], which included users' perspective [8,14], and cultural differences in the presentation of mental disorders [13]. The revision of the Chapter on Mental, Behavioural and Neurodevelopmental Disorders has brought significant changes to the conceptualization of many disorders, which may have an impact on their validity and clinical utility [2,9].…”

Section: Discussionmentioning

confidence: 99%

The Italian ICD-11 field trial: clinical utility of diagnostic guidelines for schizophrenia and related disorders

Luciano

Sampogna

Vecchio

et al. 2020

Int J Ment Health Syst

View full text Add to dashboard Cite

Background: The 11th revision of the International Classification of Diseases and Related Disorders (ICD-11) has been released. In order to test the clinical consistency and the clinical utility of the proposed guidelines the World Health Organization (WHO) has carried out the Ecological Implementation Field Studies in various countries. In this paper the results of the Italian field trials on the clinical utility of the ICD-11 diagnostic guideline concerning schizophrenia and related disorders will be presented. Methods: In Italy, field trials have been carried out at the Department of Psychiatry of the University of Campania "L. Vanvitelli". All patients showing any psychotic symptom and referring to the outpatient and inpatient units have been recruited. Patients were interviewed by two clinicians with whom they had not had any prior clinical contact. At the end of each interview, clinicians were asked to complete 12 questions about the clinical utility of the diagnostic guidelines as applied to each patient. Results: Fourteen clinicians and 100 patients have been involved. The ICD-11 clinical guidelines were perceived as easy to use, with an adequate goodness of fit, clear and understandable and with an adequate level of details and specificity to describe the essential features of the diagnoses. Clinicians rated very positively their usefulness in describing the threshold between patient's disorder and normality. Despite still very positive, the guidelines have been perceived as less useful to select a treatment, to assess patients' prognosis and to communicate with other mental health professionals. Conclusions: The 11th revision of the chapter on Mental, Behavioural and Neurodevelopmental Disorders has made substantive changes to the conceptualization of mental disorders which could have impacted on their reliability and clinical utility. Results of the Italian field studies, in line with those reported by the international sample, highlight that ICD-11 has been rated as highly clinically useful by participating clinician, more than the ICD-10. This could be considered a good reason to be optimistic about the implementation of the ICD-11 among global clinicians. Trial registration The study has been approved by the Ethical Review Board of the University of Campania "L. Vanvitelli" (N. 416, 2016

show abstract

“…Some scholars consider medical and experiential knowledge to be related to different semantic and cultural spaces. For them, making a medical classification both accessible and minimally negative and stigmatizing entails adding to ICD-11 a lay version of diagnostic information [30]. Contrary to this point of view, our position is to consider both languages as complementary.…”

Section: Limitationsmentioning

confidence: 98%

How service users and carers understand, perceive, rephrase, and communicate about “depressive episode” and “schizophrenia” diagnoses: an international participatory research

Roelandt

Baleige

Koenig

et al. 2020

Soc Psychiatry Psychiatr Epidemiol

View full text Add to dashboard Cite

Background For ICD-11, the WHO emphasized the clinical utility of communication and the need to involve service users and carers in the revision process. Aims The objective was to assess whether medical vocabulary was accessible, which kinds of feelings it activated, whether and how users and carers would like to rephrase terms, and whether they used diagnosis to talk about mental health experiences. Method An innovative protocol focused on two diagnoses (depressive episode and schizophrenia) was implemented in 15 different countries. The same issues were discussed with users and carers: understanding, feelings, rephrasing, and communication.

show abstract

Perspectives on ICD-11 to understand and improve mental health diagnosis using expertise by experience (INCLUDE Study): an international qualitative study

Abstract: Developed in collaboration with the WHO

Cited by 30 publications

References 21 publications

The clinical utility of the ICD-11 classification of personality disorders and related traits: A preliminary scoping review

The clinical utility of the ICD-11 classification of personality disorders and related traits: A preliminary scoping review

The Italian ICD-11 field trial: clinical utility of diagnostic guidelines for schizophrenia and related disorders

How service users and carers understand, perceive, rephrase, and communicate about “depressive episode” and “schizophrenia” diagnoses: an international participatory research

Contact Info

Product

Resources

About